Psorasis

[Rhubarb]

Just noticed that some MN's dh's have this. Wondered if I could share a few thoughts and opinions on it?

No? Anyone wanna tell me of their experiences? What they've tried? What helps and what doesn't? How to live with a partner who has it?

I hae psorasis and have had it fr several years now. It is worst on my scalp and I have yet to find anything that has helped it there at all. I also get it on various places on my body. The latest cream the Gp gave me did get rid of it quickly, but sadly it always comes back.

No advice on how to deal with apartner with it. I don't think my psorasis really impacts on DH much though.

I have it too - on my scalp, but I manage to keep it in check with Betnovate Scalp application - wonderful wonderful stuff.

mum2girls - it didn't do anything for my scalp at all The cream for skin (similar soundingname) was fantastic though on my body.

Dh has it over most of his body. On his scalp, over his arms, legs and thighs and odd patches on his back. His arms and legs are the worst. Trouble is that I can't seem to help him as he gets very defensive about it and says that he knows everything there is to know about it, so I'm just talking rubbish. For example, he scratches it like hell, more out of habit I'm sure as he does it when he's on the phone or nervous, but he makes it bleed and I'm pretty damn sure that you're not meant to scratch it, but I can't say because I don't have it and don't know what it's like!

Our bed-sheets get covered in blood because he scratches at night, and it's embarrassing having all these blood spots over your quilt covers and sheets! Plus he sheds loads of skin, so I'm forever cleaning up after him. He does sometimes clean it himself, but not very well.

Am I being mean?

I've just started to get it on my knees and lower legs but haven't been to the GP about it yet. My father had it really badly and seemed to have endless creams and lotions which didn't do any good. It only really improved in the summertime when he was on holiday from work.

Hula - I really sympathise - i often think I would go insane without that stuff - how on earth do you cope with the avalanche of 'dandruff'?

Rhubarb, my dad used to leave little hills of flaked white skin around wherever he'd been sitting. I used to find it disgusting as a child. But now I have it as an adult I know just how itchy it can get!

It is very itchy and the flakes are part and parcel, whether you scratch or not. I hate it on my scalp as it makes me look like I have terrible dandruff, and there is nothing I can do to prevent it.

You do need to try and not scratch - bleeding is not good. I have not made myself bleed, but do itch my head without realising I am doing it.

I know, he keeps telling me this! But it's so embarrassing when he does it at other people's houses, or at home with visitors! And just about everywhere I go I see little flakes of skin, even the kids have bits on them. I can't keep up with him!

My point is that if I bleed on the sheets, I clean them straight away. He never does, tells me that if the dried blood doesn't come off then I'm not cleaning them properly! I have asked him to please, please try not to scratch in bed because I just cannot stand lying in it! But every night I hear him scratch and scratch for ages. I'm pretty sure it's turned into a habit.

mum2girls - that is my very worst part about it. I hate it and feel very uncomfortable. We go to a fair few balls, etc and black dresses are the norm. I get very self conscious and spend half the night checking my shoulders. My car seat is always covered

Rhubarb - it may well be subconscious by now.

My dh has had psoriasis for years but not as badly as some folks. It's kept under control by Metosyn cream. He's also had guttate psoriasis and has had psoriatic arthritis for quite a few years. That's got noticably worse over the past couple of years, I would say, and he now takes regular painkillers for it. Twiglett's dh is much more severly afflicted, sadly, and she's very up-to-date on info.

My niece has had psoriasis since she was 3mths old - she's now 28yo. It was dreadful at times, big red-raw cracks in her skin, hair full of flakes, she was deaf due to the build-up in her ears. She's also had two lots of PUVA therapy but having a baby has had the best effect - but that's not very useful info for a man!!

mmy musm hada ptch on her head
used soem foul smelling soap and avoids wool near her neckline

I don't want to sound mean. You lot have this horrible condition and I don't. But as women I bet you do clean up after yourselves! I'm not his nursemaid, yet I sometimes feel like his bloody cleaner!

DH's actual psoriasis causes him few problems... it's the psoriatic arthritis that blights his life! His is 39.. was diagnosed with PA at 32.. and has not worked since he was 33 because of the chronic to severe pain that he suffers. He has been on various medications.. currently methotraxate (has been taken off sulfasalazine) but he doesn't seem to be improving. Wouldn't like to say it's not working tho as maybe he would be worse without it? His mobility is slightly 'better' than it used to be.. but I think this is because he has become accustomed to living with so much pain and forces himself to do things now.

It's horrible to see the pain he goes thro
SJ x

Metosyn cream, is that steriod based?

I too suffer psorosis on my scalp and have done for 5 years ever since dd1 born.
It did used to be all over my body but in recent years has remained on my scalp, but i hate it!!
I hate going to the hairdressers, i can't wear black as it looks as though i have a bad case of dandruff.
I have tried everything, but nothing seems to work!!!
Anyone has any good remidies, please do tell!!!??
Butty.xxx

Rhubarb - I know exactly where you are coming from - my dh is exactly the same although he NEVER cleans it up it is all left up to me!!!
The flakes are everywhere, he scratches till he bleeds too. His psorasis isn't sooo bad at the moment as he got quite a good tan in the summer, but it is coming back slowly but surely. Diprosalic ointment is about the only thing that really works for him.

I'll mention those two creams to him, thanks!
Nice to know I'm not alone either! How do you deal with the bedding thing?

Have to change the sheets at least every other day, such a pain but it has to be done we have dark bedding - could never cope with white sheets!!!

Yeah, dh suggested we just get red sheets, but then we'd look like a boudoir! Black sheets and we're both dead!

Rhuby, I have psoriasis. Right pain in the arse it is. Scalp, elbows and knees. Best stuff i have found is from here Taylor-Jackson Mahonia aquifolium. Lotions, potions, shampoo, tablets, lots of stuff. The scalp oil is a heavenly relief from itch-scratch-itch. It is an auto-immune response. There has been some encouraging research into a trial on an arthritis drug for psoriasis. something like 80% effectiveness at clearing it up. Can't recall the name of the drug, but I want to get on a clinical trial asap.
Re practical stuff - aveeno moisturiser is ace for relieving the itch and stopping the bed flakes. slather him in it (a-la singing detective) at night and he should be less flaky and itchy. My house mites must be obese.

Ta very much Gingerbear! That research looks interesting, will you let me know if and when it comes out?

naturellement!