My um, everything? hurts, I am so fed up

[KatyMac]

I'm waiting for tests but trying to work (OU)

My back, hips, knees, legs, feet, shoulders, wrists, hands, & neck hurt

As does my rt thumb & both little fingers

Just shot me

Aaaarrrgggghhh

Everything hurts; painkillers take off the edge but never kill it

I am so fed up

Chronic pain sucks so you have my utmost sympathies.

I have Ehlers-Danlos Syndrome (hypermobility type syndrome) and Fibromyalgia (chronic fatigue and pain condition). Is it just today you're in pain? if so go have a hot bath to take the edge off it. If it's long term what are they looking into?

Sending you some healing hugs.

I have CFS & they are looking at RA & FM & other autoimmunes

& I am sorry to whinge

I just feel I am popping pills all the time

Don't apologise for whinging you're allowed! Chronic pain is a horrendous nightmare.

I could have written your post you've just summed up how i feel right now. Constantly popping pills, going back to get the dosage increased, it sucks.

Have you gone down the dietary route to control it? Also have you read the new research out there that suggests exercise is supposed to be a good help?

The CFS is old & this pain is relatively new (3-5 yrs)

Exercise is good? for which CFS/FM or RA

Well the research thats just been published says for ME but i've been told it's very good for the CFS and FMS and tbh it does seem to ring true if i'm honest. Days where i've really pushed myself i sleep well then the following day i feel refreshed. Days where I mong out and 'give in' to the pain and fatigue my sleep is rotten and the following day the pain is worse.

Sadly today i've had to give in and mong after a bad week at work.

Im not suggesting going for a run or weight lifting but just push yourself to walk round the block instead of taking the car for instance.

Also finding the right medication helps, are you under a pain clinic? I didn't start to get the help until i was refered over to one now, although i'm on a lot of meds, they are working.

I am a bit wary in case it turns out to be RA because exercise doesn't seem to be very good for that

No - we are at very early stages the GP & I have stalled at "I'd like more painkillers" & "but I'd also like to consider different types of pain relief" to which the reply was "so do you want more pills or not"

Hopefully when I get referred it will help; these are not helping

if you get to a pain clinic they offer alternative therapies like acupuncture, hydrotherapy, steroid injections etc as well as offering up psychotherapies like CBT which are essential treatments for chronic pain and fatigue conditions.

I've been put on a medication called 'Lyrica' that my GP would not have otherwise put me on and also an anti-inflamatory specifically for arthritis (which i have in my spine) again which my GP would not have otherwise put me on. Previously i've gone down the whole 'have some codeine, paracetamol and diclofenac and off you trot" pathway. None of which worked. If what they're prescribing isn't working. Tell them. There is no point them giving you the tablets if they don't work. You deserve to feel better.

Also exercise doesn't mean join a gym. It means put a bit more effort into the hoovering, walk for the school run, do some gardening. Wear yourself out but don't push yourself to exhaustion.

"have some codeine, paracetamol and diclofenac and off you trot" - I so recognise that - it kind of works I can get through the day

I have been having reflexology & Reiki for a while & that helps

Being upright wears me out I work 50 hrs plus doing OU

Speak to your GP and find out if there is a Pain Clinic at your hospital. Mine is all fully NHS funded and it is so nice to have a sympathetic doctor.

Can you cut your hours down at all? No wonder you're fatigued doing 50+hrs and OU!! I struggle with 37+ and evening study.

Self employed

Tests on Wednesday - debating not taking any painkillers on Tuesday so they see me "as I am"

No referral anywhere until they come back; at least he has agreed to do lots of tests not just the normal ones

this is where we are up to

I have FM and are not dealing with it very well. The pain isn't unbearable but it is more a psychological worry that this is how things are going to be from now on and maybe get worse.

My pain is fairly unbearable

to the point of stoping doing random every day stuff

Sorry Imfab that was unfeeling of me

How long have you been diagnosed?

:( poor you sounds like you're really going through it at the moment.

The worst bit is the not knowing. Once you have the final diagnosis you can start working on a treatment plan in conjunction with your doctor and getting comfortable and in control.

ImFab - what support do you have in place? How are your HCP's helping?

Not unfeeling .

About 3 months but I think I have had it for over 3 years.

No support, was sent to physio but she said they can't do anything. Told to exercise and have to take medication at night but are very about why and what they do.

Know what the worst bit is for me? The brainfarts/fogs lol

I've just put dinner in the grill and put the oven on and wondered why it wasn't cooking

Refer back to my advice to Katy re: pain clinic seriously i cannot tell you how fantastic they are. Read up on FMS it's always good to hear another road you can walk down if you've not tried it before.

Yes, I get brain fog too and it is a sign/part of FM.

You see I had them with CFS but I don't have them really now

Dropping things, failing to pick them up, not using scissors yep

& the crappest ever - eating a baguette because I can't hold it long enough to eat it

or rather 'not' eating.......