Meet the Other Phone. Child-safe in minutes.

Meet the Other Phone.
Child-safe in minutes.

Buy now

Please or to access all these features

General health

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

Pneumococcal Meningitis

137 replies

Amyjade · 11/10/2005 10:15

Hi my name is Amy and i wanted to share with all you mums the tragic story of the loss of my beautiful, 19 month old daughter Freya.

I feel i need to get across to as many people as possible information on this 'HIDDEN' Meningitis which took away my baby girl.
Pneumococcal meningitis is never really talked about and parents of often ignorant to this terrible form of meningitis.
Pneumococcal is a severe form of bacterial meningitis which is more common in the under 2's.
Children don't usually get the so called 'RASH' with this strain which is why it is so hard to diagnose.

Freya became ill with a high temperature and vomiting on 5th April 2005 and was seen by my GP who said she needed parecetemol but Freya became very drowsy so we took her to hospital where she began to have seizures. We were transferred to our local PICU where Freya suffered kidney failure and irreversible brain damage, she died in her daddy?s arms 11 days later.

As all this was happening i was 28 weeks pregnant with my second daughter Libby who was born only 8 weeks after her big sister died.
Our lives have been torn apart after the loss of our precious little girl but the real kick in the teeth was that Freya's life could have been saved as there is a vaccine called Prevenar that protects children from the pneumococcal disease.

Prevenar has been used in the USA for over 5 years but still our government has yet to introduce it.

I hope this will make all parents more aware that this disease exists and that there is a vaccine to protect your children.
50 children a year die from this infection, in my eyes 50 is too many. something needs to be done before more lives are shattered.

Libby is 4 months old now and is about to have her third prevenar tomorrow.

OP posts:
Fangache · 11/10/2005 10:17

hmm

Fangache · 11/10/2005 10:18

I was almost crying reading this until the last part. So sorry if this is true, but it sounds too muck like a sales pitch for a drug company.

Amyjade · 11/10/2005 10:27

It's not a sales pitch, i am grieving mum who is trying to make people aware that this disease and vaccine exists.
My baby girl died from this disease and i'm trying to raise awareness that her death could have been prevented.

This vaccine could save lives and it's up to the individual whether they have their child vaccinated, all i was trying to get across is that the vaccine is safe and Libby is fine after her second injection.

I am really hurt by this comment maybe it was a bad idea to post on this site.

OP posts:
Amyjade · 11/10/2005 10:29

My daughter has a website
freyabarstow.memory-of.com/

OP posts:
Baronessbeetroot · 11/10/2005 10:29

This reply has been deleted

Message withdrawn

Fangache · 11/10/2005 10:50

Anyjade - Sorry about my post, but you would be surprised how many people use stories like that to sell something.

So SO sorry I hurt your feelings. And I'm so sorry about your beautiful wee angel.

Amyjade · 11/10/2005 10:56

Thanks, little things do upset me at the moment as you can imagine.
I do know what you mean by sales people ,i am a member of the compassionate friends(a website for bereaved parents) and you should see some of the messages from sales people that are left on their website !!

OP posts:
projectmanagerCOd · 11/10/2005 10:56

hmm

MoggyMummy · 11/10/2005 11:19

Some of you make me so angry sometimes - why are you all so cynical about things. I have never said anything in anger to anyone on MN but this time I have to speak out. I think you you think before you write something down just incase you really do hurt someones feeling. Mumsnet isn't some fantasy land. Real people come here to share problems and get advice about real problems.

This poor lady lost her daughter and thought she could come here and get some support and all you can say is hmm. How low you can go? Would you do that to someone in RL?

AmyJade - I am so sorry for your loss. Please feel free to share whatever you want to. We may not be able to understand fully what you have gone through but some of us are hear to listen.

Fangache · 11/10/2005 11:25

MoggyMummy - By "some of you" you clearly mean Cod and I. Eh.... I did apologise.... and if you've been a MN'er for any length of time you'll know that there have been some real sicko's posting on here claiming to have lost children just to sell a product.

S'cuse me for being cynical.

But I have visited the site and realise it was genuine and as I said, I've apologised to AmyJade.

trace2 · 11/10/2005 11:26

MoggyMummy i agree, i was in tears when i read this, and then angry at the responce she got.

Fangache · 11/10/2005 11:27

sigh

MoggyMummy · 11/10/2005 11:32

Fangache maybe that is the problem - I have only been on Mumsnet about a year and haven't come across these sickos or maybe I haven't read those types of threads.

Yes you apologised - fair play to you.

trace2 · 11/10/2005 11:33

i have not been on here to long, and i dont read every post but i understand there are trolls out there, and i dont usally respond to a lot of threads but this was upseting, even if she had made it up it was very convincing, which clearly she had not.

puff · 11/10/2005 11:39

Amy - how horrendous for you - every Mum's nightmare .

Amyjade · 11/10/2005 12:13

It was a nightmare for our whole family, Freya was such a wonderful, gentle little girl who touched the lives of everyone who met her.

I feel the only thing i can do now to keep Freya's memory alive and to make her proud of me is to raise money for the research into this disease and to raise awareness about this particular strain.
When we were told Freya had Pneumococcal meningitis we didn't realise how serious it was.
It took the doctors 3 days to diagnose it as Freya didn't have the 'RASH'. so her symptoms where similar to a sickness bug or urine infection.

OP posts:
Marina · 11/10/2005 12:27

I am so sorry Freya died of this dreadful disease Amyjade, she was such a lovely little girl.

I know American Mners in the past have expressed disbelief that Prevenar is not routinely offered in the UK. As both my children went into daycare as babies, I enquired about Prevenar with my GP and was told that it's only offered to children with a medical history of risk (not for all children in daycare as in France for example).
And yet there is serious discussion given to introducing the Chickenpox vaccine to the UK...

macwoozy · 11/10/2005 12:31

Oh dear how absolutely awful for you. I had a look at your website, she such a beautiful little girl.

Amyjade · 11/10/2005 12:52

It is only offered to 'at risk' children and the over 65's but the majority of cases of children who have died or are been left severly disabled are otherwise healthy children just like Freya.

OP posts:
staceym11 · 11/10/2005 13:01

i am so sorry for your loss, reading your post and looking at your little girls website made me cry, and i can only imagine losing my baby.

i feel for you and your whole family!

((hug))

HappyMumof2 · 11/10/2005 14:21

Message withdrawn

expatinscotland · 11/10/2005 14:27

Amy
Thank you for sharing your story and making us aware of this disease. I had no idea! I will ask my private GP about Prevenar.

It's shocking to think children's lives aren't valuable enough to invest the max amount of money into.

Yes, Prevenar is routinely given to babies in the US. As are flu vaccines for healthy children under 6 - as a mist rather than a jab. And thiomersal was banned from use in vaccines for children years ago.

Thank you for putting aside what must be unbearable pain in hopes of helping other peoples' children.

CountessDracula · 11/10/2005 14:38

Amyjade what a terrible thing to happen, very caring of you to post and warn others of the dangers. xxx

MoggyMummy · 11/10/2005 14:40

I was thinking of the Prevnar for DS when I lived in Canada. I should have gone with it there becasue when we moved back to the UK I found out it was not routinely offered.

I'm very scared about menengitis because I had it when I was two and after hearing what my parents and others like yourself have gone through I feel that I should be aware of the options for my DS.

Thank you again AmyJade

mancmum · 11/10/2005 14:45

I am so so hugely sorry to hear of your horrendous loss.. it must be so hard to bear the pain but I admire you for spreading knowledge about this cruel illness -- i am going to look into it.. your site is a beautiful memorial to a simply beautiful girl... my thoughts are with you ..

I am also very sorry for the horrible response that you got from a couple of posters who should feel ashamed of themselves - I am glad that one has had courtesy to apologise but I think that even if the site has been mis-used, it would be better to hold back on potentially hurting so cruelly somone who has already been through hell..