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Pneumococcal Meningitis

137 replies

Amyjade · 11/10/2005 10:15

Hi my name is Amy and i wanted to share with all you mums the tragic story of the loss of my beautiful, 19 month old daughter Freya.

I feel i need to get across to as many people as possible information on this 'HIDDEN' Meningitis which took away my baby girl.
Pneumococcal meningitis is never really talked about and parents of often ignorant to this terrible form of meningitis.
Pneumococcal is a severe form of bacterial meningitis which is more common in the under 2's.
Children don't usually get the so called 'RASH' with this strain which is why it is so hard to diagnose.

Freya became ill with a high temperature and vomiting on 5th April 2005 and was seen by my GP who said she needed parecetemol but Freya became very drowsy so we took her to hospital where she began to have seizures. We were transferred to our local PICU where Freya suffered kidney failure and irreversible brain damage, she died in her daddy?s arms 11 days later.

As all this was happening i was 28 weeks pregnant with my second daughter Libby who was born only 8 weeks after her big sister died.
Our lives have been torn apart after the loss of our precious little girl but the real kick in the teeth was that Freya's life could have been saved as there is a vaccine called Prevenar that protects children from the pneumococcal disease.

Prevenar has been used in the USA for over 5 years but still our government has yet to introduce it.

I hope this will make all parents more aware that this disease exists and that there is a vaccine to protect your children.
50 children a year die from this infection, in my eyes 50 is too many. something needs to be done before more lives are shattered.

Libby is 4 months old now and is about to have her third prevenar tomorrow.

OP posts:
Springchicken · 12/10/2005 19:20

HMo2, she is 15 months. I just put the toppling over down to her maybe having an ear infection and she has been very coldy etc and thought that may be effecting her but yesterday she was sat on her bum playing with the clothes pegs and she just fell right backwards, she wasn't leaning over or anything, just fell right back. This has happened about 4-5 times over the last 2-3 weeks each time in similar circumstances. She is a very competant walker and has been doing so for 2-3 months now.

Springchicken · 12/10/2005 19:22

Oh Shit, she has had a gungy eye for weeks now and the drops are just not shifting it - slightly clears up by the end of the course and then comes back within a few days. Here eye is like glue in the mornings especially.

HappyMumof2 · 12/10/2005 19:32

Message withdrawn

mears · 12/10/2005 19:45

Springchicken - try not to be too worried by the symptoms your DD has. Gungy eyes are very common and at this age most usually due to blocked tear duct. Cold hands and feet are not unusual either.
When my DS had meningitis he was not feeding at all. He had a very high temperature as well as freezing cold hands and feet.

The symptoms were altogether if you see what I mean. If your DD otherwise seems well then it is highly unlikely she is developing meningitis. Have her checked over by GP if you are worried thou.

Springchicken · 12/10/2005 19:47

She was sick last Thursday evening a few times then wouldn't eat a thing but weetabix for about 6 days, she is finally eating normally again now though. I explained all of this to the doctor who said it was all part of a cold.
I have no faith in my doctors surgery whatsoever so not filling me with much confidence so far

How can I make them be more thorough with examining her? I need to stress to them how concerned I am but being a young mum doesn't help, just get knowing looks!

Springchicken · 12/10/2005 19:49

Thanks Mears. This is why i am so confused, I don't know if I am just over reacting or not but I could never forgive myself if it was something worse.

mears · 12/10/2005 19:55

Be reassured that eating normally is a very good indicator of a child's health

Amyjade · 12/10/2005 20:05

Springchicken,
Please don't worry yourself too much over these symptoms, lots of children get middle ear infections and lose their balance, Freya was just terribly unlucky for it to progress to meningitis.

Meningitis moves so quickly usually within hours the symptoms appear.
It sounds to me your DD has been poorly off and on for a while.
The problem is with this disease is that the early symptoms are the same as any other childhood illness (sickness bugs etc) but you know your child so if your worried that they seem to be getting worse quickly take them to your GP or even casualty and don't leave untill you are happy.

OP posts:
Springchicken · 12/10/2005 20:16

I always thought that if something terrible was to happen you would just know, sort of instinct! i don't have that feeling atm.

Amyjade · 12/10/2005 20:25

I never thought or had any feeling that my precious little girl was going to be taken from us at only 19 months, if i had i would have held her every minute.

All i can say to all of you is cherish every moment with your child as they are all so special.x

OP posts:
Springchicken · 12/10/2005 20:31

Sorry Amyjade, that sounded so insensitive I didn't think before i typed! Sorry

Springchicken · 12/10/2005 20:32

Sorry Amyjade, that sounded so insensitive I didn't think before i typed! Sorry

Amyjade · 12/10/2005 20:40

Springchicken.

You didn't offend me at all.

Hope your DD gets better soon.x

OP posts:
Amyjade · 12/10/2005 20:40

Springchicken.

You didn't offend me at all.

Hope your DD gets better soon.x

OP posts:
expatinscotland · 12/10/2005 20:41

Amy
You've been such a big help to the mums on here. You've got us thinking, talking and asking our healthcare providers for the vaccine. You're courage is to be admired.

Springchicken · 12/10/2005 21:15

Here here Expat.

staceym11 · 12/10/2005 21:25

can anyone help me with how to ask a gp for this vaccine, what they might say and how to convince them im not jsut a paranoid young mum???

Passionflower · 12/10/2005 21:26

Sorry for being really dim, but if you do the prevanar do you have to do the pneumovax II as well when they turn 2, or does the prevanar cover for life.

Amyjade · 12/10/2005 21:27

Thankyou so much,xx

My daughter death could have been prevented.
We didn't know anything about this particular strain or the vaccine so i'm glad i have raised some awareness. 50 children a year die, 50 lives are shattered because of money !

Hope all your GP's, health visitors etc are willing to give your children the vaccine.
If not just tell them my story and i'm sure they will then.

OP posts:
expatinscotland · 12/10/2005 21:28

Not to mention all those children who survive with permanent disabilities! The NHS thinks their saving money? There's no price you can put on a child's life, and I wonder just how many millions of £'s they spend treating costly disabilities caused by pneumo meningitis, in addition to the lives which are forever changed by the disease.

Amyjade · 12/10/2005 21:29

For a newborn Prevenar is given in 4 doses 2,3 and 4 months then again at one.

Then when the child turns 2 they have to have one dose of the pneumovax.

So i think it all depends on the childs age.

OP posts:
Heartmum2Jamie · 12/10/2005 21:48

Yes, as Amyjade says, it all depends on age. Jamie is 15 months and will be having his 1st ever prevenar jab either this week or next. He will probably get at least one other prevenar jab before he turns 2 and then one dose of Pneumovax which should cover him for life.

homemama · 12/10/2005 21:52

Trying to think which one of the parenting mags is running a big campaign about the jab. They keep featuring families that have lost a child-needlessly because of our government's stubborn short term view.
An MP also raised it in the house 2 or 3yrs back after a child in his constituency died. Do a google search and lots of info comes up.

bakabat · 12/10/2005 21:57

Amyjade- I'm so sorry to hear your story. I agree that the arguments for vaccinating babies against this are exactly the same as the arguments for vaccinating against hib and men C - so if the NHS recommends those they should also recommend (and pay for) this one. IIRC the annual death rate from hib pre introduction of the jab was 56 (although that was off the top of my head so I stand to be corrected). Money should not be an excuse. ( I put that because regulars will know that my son was vaccine damaged- well thimerosal damged - money again!- and so I have taken a different course with his brothers). Completely agree that there are double standards going on here.

A very good friend lost her little boy to septicaemia just over a year ago (a random virus- should have caused sickness and diarrhoea- but didn't- far worse). She described his screaming and it sent shivers down me. I sent her a crystal and hung one in my home and whenever the light shines on it I think of her ds. I do hope you are getting lots of support, I see how difficult it is for my friend.

Passionflower · 12/10/2005 22:04

Thanks Amyjade, so as DD3 is 21mth it makes sense to hang on a couple of months and just do the pneumovax II on all three DD's.