please help my 8 year old son with cerebral palsy (I'm not asking for money!)

[kakamg]

hi my name is karla griffiths and my son has severe cerebral palsy and other complex health problems, he lives in a nursing home where i placed him in 2008, social services do not agree with this and are continually hunting for foster carers as it is a cheaper option, the people they bring in are not experienced or qualified enough let alone equipped for the job. in short my son needs the 24 hour MEDICAL care and attention he currently receives.

please read this and if you support this cause please sign the petition and pass on to your friends.
the more people, the more impact we will have against an extremely flawed system.

please follow the link to

Keep Miles Griffiths In Footprints.

many thanks for taking the time to read this i will answer any questions you may have.

Karla xx

Hi sorry to hear about the difficulties you are having. Afraid I can't work your link tho

why doesn't he live with you Karla? that must be difficult for you :(

wouldn't you rather campaign to get him the support he needs to live at home with you rather than in a nursing home?

sorry if i am speaking out of turn as i don't have experience of having a disabled child

LINK DID NOT WORK!!!! PLEASE GO TO www.ipetitions.com/petition/keepmilesinfootprints/

link does not work

also see www.keepmilessmiling.co.uk for our full story! It will answer most questions you may have!!

Petition and background story

Good luck Karla.

petition here

website here

Hello Karla, I have made the links for you and signed your petition. I looked at the website, Miles seems to be an amazing boy.

Haha xposts.

Have signed your petition. Good luck.

Have read the website and signed the petition. Karla, it sounds like you have had an incredibly tough time and have done the absolute best for your lovely boy. I'm so sorry that you are going through this added stress. Best of luck.

Have signed for you Karla. Best of luck with everything.

x

Hi Karla, do you mind me asking if you have legal support? I could help point you in a possible direction for this if needed.
(sorry if not relevant haven't red a the link yet)

Good luck with your campaign.

Ive signed the petition. Good Luck!!

but what if they were able to find a well trained FC? Wouldn't that be better for him, to be in a family environment?
Parents aren't trained when they have child with CP either, but they manage.

Lisa not all parents and families manage. None of us are in a position to judge or question this families decision. They have obviously thought long and hard, and I suspect with heavy hearts, to come to what they feel is the best care for Miles. If they honestly thought it would be better for him to be placed with foster carers, do you not think they would support this option? This is another example of local authorities tightening their purse strings ... simple as that. In this country we have an appalling record of caring and supporting disabled children .. in fact we have a pretty shite track record of looking after and supporting our children full stop (voted the worse place to bring up a child in Europe pretty damning ah ??) Also our children are the 'unhappiest' they've ever been according to another study.
Karla I have signed your petition.. good luck

I wasn't trained.
a child is for life not just Christmas.

im not judging just pointing out its not just black and white, eg FC vs Care home.
Does he go to school?
The thing is this post is bound to upset a few parents of SN children, sorry but it will

we do judge on mn, so why not here??
would you say it was all ok if the boy was nt??

Sorry to be stupid, 2shoes, but what do you mean by 'nt'? (Thought it meant neurotypical). I think your comment about 'a child is for life' is really unkind and unnecessary, btw.

Having read the website, I can understand the op's decision to place her child in a care home. She couldn't care for him day and night, as well as looking after her other two children. Her boy needs 24-hour care, which he gets at the care home and which she couldn't provide. She feels, understandably, that foster carers couldn't provide this care either.

I am sure she thought long and hard about it and made the decision based on what was best for him, her and the rest of the family.

Sometimes parents just cannot meet the needs of their severley SN children, it's desparately sad, but true.

Doesn't mean they havne't tries, doesn't mean they wish they could, doesn't mean their hearts aren't broken, doesn't mean they don't totally and utterly love them, doesn't mean they aren't trying to do what is best for the child, doesn't mean they are any less of the child's mother/parent, doesn't mean they won't fight for the very best for them ntil the last breath leaves thier body. doesn't mean the child is less important in the family...

It's just the child's needs have proved to be beyond the care of the family, and it's judged by the family and outside agnecies that the child actually needs additional care the family cannot provide.

It's rare, it's tragic, but it does happen and just because you can meet the needs of your SN child shouldn't mean you can throw nasty accusations at those who can't. They are not you, their child is not your child, you do not know them, their circumstances, their child needs, or the extra care arrangements they've made.

I'm sure many parents of SN children have said or felt 'walk a mile in my shoes first' to people making judgements ignorant of what's involved, well the same goes for other parents with SN children, jurt having a SN child does not give you a right to judge every other parent with a SN child. It doesn't.

That's very sad but I won't be signing, sorry.

Of course questions and opinions, it's an interesting, dificult and important topic where opinions will strongly differ.

But 'a child is for life not just christmas' is more of a degrading insult that an opinion. In my opinion.