I have something wrong with my ovaries and now my nipples produced milk - AFTER a hysterectomy!!??

[PurpleLostPrincess]

I had a hysterectomy just over a year ago, they left my ovaries in as they appeared to be healthy and I'm 33 so the consultant didn't want to take them unnecessarily. I got the occasional 'twinge' in my right ovary from time to time over the year; and just assumed it was that I was ovulating, got the usual pmt symptoms without the period of course.

Anyway, this twinge turned into pain on Tuesday and gradually got worse through Wednesday to the point were DH and DS wanted to call 999. I rang the out of hours doctor and went up to their clinic where they ruled out appendicitis but moved me into A&E who took my blood and gave me painkillers. They tried oramorph first, then IV paracetamol, none of which worked, finally the IV morphene gave me some much needed relief! They came to the conclusion it must be something to do with my ovary. They offered for me to stay overnight but I just wanted to go home rather than stay in a hospital bed which could be needed more by others. I have a scan tomorrow morning to see what it could be - options are: twisted ovary, a cist, or endometriosis (histology showed up that I had it before the hysterectomy and apparently it can reoccur after). We got in at 4am - driving home through a blizzard wasn't fun!

I'm at home and taking oramorph to ease the pain and take the edge off it. Wanted to post here earlier but was in too much pain to type or figure out what to say!

So, was getting ready for a shower earlier when I noticed that the pores around my nipples were a bit strange - looked a bit like a small spot, so I started squeezing gently and what looked like milk came out of my nipple . I couldn't believe it!!!

Has anybody had this post-hysterectomy before? Does it confirm that there's something not right with my ovaries, being as they produce my hormones etc? Totally blown away by all this and exhausted from it all too - any experiences of anything similar would be most welcome, just so I don't feel like such a freak . Also concerned they may have to take the ovary away which would mean more time in hospital, as well as potential menopause which I thought I had avoided!

TIA

You're really going through the mill aren't you . Can you get more oramorph?

The gynea scan should be able to tell you everything shouldn't it?

Thanks meglet - yes if it gets to a certain level I'll ring the GP for some oramorph, I'm trying to avoid it unless absolutely necessary as I don't want to get addicted to the stuff lol!

I guess I'm just feeling sorry for myself too as it's my birthday on Saturday and I'm worried if this escalates that it will ruin our plans. DH suffers with mental health problems and is having a bad week so it's one of those gloomy days and the house is a state! Thanks for listening to me moan away...

Yes, I'm hoping a gynae scan will tell us more. I'm still convinced it must have shrunk being as I'm not writhing around like I was back in December, which is a good thing really.

Hello, just popped in with an update and need to vent really... Finally got the scan I begged for and an appointment with a member of the team.

As I lay on the table, I mentioned to the lady that most of my pain had been on the left lately but that it was probably referred pain. I've been really bad lately but have just struggled through...

So, she starts scanning, and lo and behold, she finds something straight away - a cyst on my left ovary (previous one was on my right), measuring around 5x5 cms again!!!! The one on the right has gone and is just a folicle now (normal), and she took some time checking to see what type this one is, including doing an internal scan. At first she didn't think it was haemoragghic but after more investigation she reported it to be endometrial (sp?).

I saw the guy from the team straight after, he remembers me from when I was admitted back in December and also last time I visited. He said again that it would be up to my consultant to decide what the next step is. I made it clear again that I just want my ovaries taken out - I'll be having a menopause at some point anyway, why not just do it and have it over with!? He thinks they may want to do injections for 6 months to confirm that it is the ovaries causing the pain.

He has put in a request for my consultant to see me at the next available appointment, he reckons it will be 2 to 3 weeks... Also I've got a CA125 blood test, which didn't freak me out like it did last time lol!! Apparently with this type of cyst, it can raise the levels slightly but that is indicative of what we are dealing with.

In the meantime, I've been in absolute agony as I think the poking and stuff with the scan has agitated things - I'm ringing to get oramorph today

So, the saga continues... I'll pop back with an update or another moan soon, thanks for listening if you've got this far!

just read your whole journey, you poor thing. wish there was something more productive i could say

how's your dh doing now?

Hi Hippy, thanks for asking, he's not been good I'm afraid his Mum died in Feb and he's been really struggling with it. It came out a few weeks ago that he's stopped taking his AD's and just this morning he had an outburst that shook us all up. He's seeing the community psychiatric clinic in a few weeks and he's taking the AD's again, only problem is he is back to square one which means he is out of action, totally . On top of that, we have a new treatment plan for DD2 which involves me giving her a suppository every other morning which isn't pleasant to say the least!

Have been in agony today, just spoke with the doctor who is sending a prescription for oramorph down to the chemist before the surgery shuts. My lovely Dad is going to pick it up for me now, I don't know what I'd do without my parents! My poor Mum has a thrombosis in her arm a couple of weeks ago so we've all been struggling in one way or another, deep joy!! . She had a funny turn while we were out at the weekend and I honestly thought she was having a stroke in front of me, made me think about things, that's for sure!!

Will pop back later... thanks all for letting me waffle!!

As a family, you're really going through it aren't you :(

Got my appointment through in the post, it's on 21st June which isn't too bad I guess. It says I'll be seeing Mr Bates 'or a member of the team'. I'll kick off if it isn't him again, but we'll see!!!

Pain has eased slightly, but seems to be on the right today , oramorph really helps but I'm only taking it when needed rather than 4 times a day as stated on the bottle . Forgot to take my movicol yesterday so dreading tomorrow as it is agony when my bowels are full (sorry if tmi), and even worse if I'm constipated which I usually am on the oramorph...

Anyway, best get some sleep , night all xx

Oh and boobs have been really sore which they are when it's painful, meant to tell the guy that, will have to remember to tell the consultant... note to self...

Well, the pain has eased off, so maybe I'm not ovulating...? Thing is, DH and I got a bit 'fruity' last night and I'm in agony today! Sorry if tmi but we didn't actually have penetrative sex, but he gave me a rather intense orgasm - could it be that has agravated my ovary!? We avoid sex these days as it always hurts for a day or so afterwards, which has caused a few issues in our relationship. I thought he'd gone off me, but he genuinely didn't want to hurt me...

Well, my appointment was today - DD2's playschool had a day out at the farm so it was a mad rush to get there and I'm shattered now!

A lady came out and called my name so I followed her into the consulting room, I remembered her from when I was admitted in December. It was then that I realised my consultant wasn't going to be seeing me, so I immediately said that I wasn't being rude, but I was hoping to see Mr Bates personally as I keep being told he is the only one who can decide a way forward. She immediately went to see if he was available but he wasn't, so I started to explain that I'd seen lots of people etc. Her response was that she understood and that she had discussed my case at length with him earlier today... So, she went over my scan results, confirmed that my bloods had come back fine and generally summarised where things were at. I then told her that I just want my ovaries gone as I've had enough of living in pain and taking painkillers.

She went to great lengths in warning me of the potential risks - taking HRT and having menopause at such a young age; the risk of infection/bleeding; risk of problems if the ovaries are stuck to anything, and also explained that they would have to do it abdominally as they won't be able to go in by keyhole due to the scarring from the hysterectomy. She also said that there is a small risk that having them out may not cure the pain - I'm sure that's just to cover themselves though - how could a cyst the size of a tennis ball not be the cause of my pain!!??

I thanked her for being honest but stood my ground and said I haven't taken this decision lightly and I still want it done, so she filled out a form and told me to wait for a date in the post!!!!!!!! I cried with relief on the way back to the car...

I do need to lose weight so will focus on that, it's a good incentive really! Also I'm hoping it will spur DH into decorating the bedroom as it was stripped off ready for wallpaper when I had the hysterectomy 18 months ago and I'm not spending weeks on end recovering in what looks like a builders yard!!

The only thing worrying me is that my recovery put a lot of pressure on DH, the kids and my parents when I had the hysterectomy, but they have assured me that they will do all they can to keep things ticking over. Also many friends have already offered their support. I am very blessed to have a support network around me - I hope that doesn't sound smug, I'm just very appreciative of it!

Anyway, going to get an early night before I fall asleep while typing... thanks again for letting me waffle