I have something wrong with my ovaries and now my nipples produced milk - AFTER a hysterectomy!!??

[PurpleLostPrincess]

I had a hysterectomy just over a year ago, they left my ovaries in as they appeared to be healthy and I'm 33 so the consultant didn't want to take them unnecessarily. I got the occasional 'twinge' in my right ovary from time to time over the year; and just assumed it was that I was ovulating, got the usual pmt symptoms without the period of course.

Anyway, this twinge turned into pain on Tuesday and gradually got worse through Wednesday to the point were DH and DS wanted to call 999. I rang the out of hours doctor and went up to their clinic where they ruled out appendicitis but moved me into A&E who took my blood and gave me painkillers. They tried oramorph first, then IV paracetamol, none of which worked, finally the IV morphene gave me some much needed relief! They came to the conclusion it must be something to do with my ovary. They offered for me to stay overnight but I just wanted to go home rather than stay in a hospital bed which could be needed more by others. I have a scan tomorrow morning to see what it could be - options are: twisted ovary, a cist, or endometriosis (histology showed up that I had it before the hysterectomy and apparently it can reoccur after). We got in at 4am - driving home through a blizzard wasn't fun!

I'm at home and taking oramorph to ease the pain and take the edge off it. Wanted to post here earlier but was in too much pain to type or figure out what to say!

So, was getting ready for a shower earlier when I noticed that the pores around my nipples were a bit strange - looked a bit like a small spot, so I started squeezing gently and what looked like milk came out of my nipple . I couldn't believe it!!!

Has anybody had this post-hysterectomy before? Does it confirm that there's something not right with my ovaries, being as they produce my hormones etc? Totally blown away by all this and exhausted from it all too - any experiences of anything similar would be most welcome, just so I don't feel like such a freak . Also concerned they may have to take the ovary away which would mean more time in hospital, as well as potential menopause which I thought I had avoided!

TIA

PLP

Thanks for the update.

I am sorry to read you have a haemorrhagic cyst (btw is this also is known as a chocolate cyst?. Perhaps you can ask the cons. I ask this because chocolate cysts can be related to endometriosis which you have previously mentioned) but at least now you properly know. I am also glad to read that it can be sorted out.

Would think the milk produced is due to excess prolactin; this can be treated with tablets. Do speak again to the gynae re this.

No more googling!!.

Wishing you all the best.

Well, I've made it through Christmas without being rushed into A&E - was worried as I used to ovulate every 3 weeks before the hysterectomy, which could have fallen over Christmas. The pain has been around a number 2 or 3, hoping it is shrinking and that I won't get another flare up - will keep you posted! Got my letter through for a scan the first week of February, praying that this thing will be smaller or gone - what are the chances of that?

Happy Christmas all!

Oh dear, I spoke too soon!!! Pain kicked in last night - got up to a 5 or 6 with painkillers - considered going up to A&E but then it eased off. Today it has stayed at around a 4, and I've finally managed to have a PJ day.

It's made me realise that we need to have a plan in place should it get bad. I think perhaps if it gets to a number 7 or above, we should get up to A&E and I should have a hospital bag packed just incase. Thing is, I'm not sure what they will do once I get there. I guess they will do another scan to see if it has changed size/shape and decide from there? I've heard that cysts are usually removed if 5cms or more - the consultant said if he's going in, he would take both ovaries, which would mean menopause . So, I'm reluctant to go up there unless it really is unbearable - what do you think mn?!? Feeling low today too, not sure if it's because of this or vice versa or nothing to do with it...!?!

Sorry to waffle, just getting worried!

It's staying at a 5...

I'm hoping that it has already shrunk and this is just a little blip - we'll see!!

Got an appointment in the post for a scan on Monday 10th in the afternoon which is good. Pain is really wearing me down now, but as long as it doesn't hit a 7 I'm staying put. I'm trying to get on with things and try to forget it, but it's not working very well... Hopefully I can hang on until 10th! This is turning into my pain diary on here, sorry

Not sure how much longer I can go on like this, thinking of ringing the out of hours doctor and getting some morphine or oramorph, there's just no let up

Sorry to whinge, but I need to vent!

DH is a bit worried about having sex and worried he is going to hurt me. We've always had a healthy sex life, we communicate well and have talked about this. He was a bit funny when I was pg with DD2, and we got through that. But now we're hardly ever doing it. We've been married over 8 years and have known each other 25 years, we were never one of those couples who only did it every now and then. But now it's hardly ever and I'm pissed off that this thing inside me is affecting so much of my life! AIBU to just want them to take it out so I can get on with life without pain and being able to be closer to DH? We are close etc, but obviously we both have needs

Still haven't rung the out of hours doctors for painkillers, I guess I really should but I'm hoping I can hold on until the scan on 10th...

Rang them, picking up some oramorph in the next hour, can't wait to get some relief from this pain

Hello PLP, I remember you from our ante natal thread when your dd2 was born (I think I was MrsMar in those days) I'm so sorry to hear you're going through all this now. I do hope you get some proper pain relief today. It seem such a long wait to get a scan, was there a specific reason you have to wait 6 weeks for it? I had a friend who had a chocolate cyst, she also has grade 4 endo and has has lots of problems ttc.

I think if they have to take both ovaries they will offer you some kind of hormone replacement if you want it as you are so young. I know there are risks with taking hormone replacement for long periods, but there are also risks with having menopause so early too (osteoporosis I think is one of the risks)

Good luck with it all!

MrsMars!!!!!! How lovely to come across you, how are you doing? How is LO!?!

Thank you for the support! I think the 6 weeks was to do with waiting for another 'cycle' as such, 10th January is less than that which is good (surprisingly!). I think this is also known as a chocolate cyst from what I've read, sorry to hear about your friend. Thankfully I don't have the problem of worrying about ttc due to having had the hysterectomy, phew!

Yes, the consultant said they would have to give me HRT. Funny you should mention oesteo, my Mum had her menopause at 38 and suffers with osteo - she shrunk by 2 inches last year bless her!

The oramorph hasn't provided as much relief as I had hoped, but at least more than the co-codamol did, I'm resting on the sofa with some chocolate which is always good! Was feeling so low, but starting to feel a bit better now...

Oh I'm glad you've got a teeny bit of relief. Sorry I misunderstood, I thought you were going to have to wait until 10th Feb. At least you have less than a week now.

DS is great thanks, bonkers but great. How's your dd doing?

Just a thought re the milk production - are you taking domperidone at all? One of the side effects is lactation!

lactation a side affect of some anti depressants too, I'd put mine down to those but I've stopped my ad's now but still leaking, let me know if you work that one out, I'm back to GP's this week for another check (I even googled it - usually a bit mistake but actually I was none the wiser...)

I hope everything else is sorted out for you soon and you get some relief from the pain x

MrsMars, she's great thanks, she has so many obstacles to get over but is still very funny, entertaining and loving, bless her! Glad DS is doing well - they are totally bonkers aren't they lol!

I do take citalopram, but I've been on it for 2 years and never had this before. I went to the GP about it, and he said the only thing he would do is a blood test, and being as they seem to have everything in hand in gynae, and they hadn't sent him all my test results, he said to wait and see what they show when he gets them. I pretty much told him not to worry about it, it's not hurting me or anything, just shocked me at the time! Now, they're not leaking, but if I gently squeeze I get a few drops of milk come out, more on the left than right. Strange because I bf all 3 of mine, but only for the first 6 to 8 weeks as I ran out of milk

Meant to say kerrymumbles, will be thinking of you tomorrow.

Also, beaver, how did your scan go? Hope all is well...?

purple Only just noticed this thread. How scary for you . I remember when you had your op as I think it was just after mine.

Hope gynea can get to the bottom of it as soon as possible.

Thanks meglet, yes I do remember you . In fact I've had a look over my old threads from when I had the op, interesting reading! When I was admitted the other week, one of the consultants went over my notes and pointed out that they found over 400 clots in my tummy when they went in the second time !!! That may well be quite normal but I was quite taken aback by it!

I love mn

I'm off to bed early - DD2 is back to playschool tomorrow so I've got to try and get up early. Also, I do a bit of typing for my parents - they run their own business but Dad is getting rather old and finds typing really hard now, so I help him out a few days a week. I know it's not 'work' as such, but it'll be nice to get back into a routine. At the same time I'm dreading having to get on with normal life when I'd much prefer to stay in bed all day - the joys of family life eh!

Just a few more days till the scan - hoping they will say it has shrunk, praying in fact!

Wondering what will happen either way - do I just go home afterwards!? I have an appointment with the consultant on the 2nd week of Feb, there's no way I can make it till then with this pain! . I guess I could ring my GP and get a quick referral, not sure what the best course of action is. I do like to have a plan in place, probably not a good thing. I'd love to go with the flow normally...

Managed to have a couple of normal days, but ended up extremely tired by the evenings, it feels like this thing is draining the life out of me!

Oh, and I'm still getting droplets of milk coming out of my nipples...

Hi PLP, how did the scan go? Did you get the results straight away or do you have to wait? I hope the news was good either way.

Hiya headfairy! Was just thinking I should update... Hope you're good?

It was quite an experience and I felt rather deflated when I came out. The lady was quite off with me and couldn't crack a smile. She informed me my bladder wasn't full enough - I explained that I have a bladder problem but she insisted I drink another litre and she would call me back in 20 mins. Half an hour later I was pacing up and down on the brink of wetting myself when she called us (DH and I) back in. She couldn't find it OR my ovaries . She checked the images from my previous scan but still couldn't find it, so she suggested an internal one. I said fine and was extremely relieved (literally!) to be told to empty my bladder!

So, I came back into the room, started undressing (had to ask for a blanket, even though I knew DH wouldn't mind!) and said to her very calmly "I'm ever so sorry about all of this, I get the impression you're having a really bad day and I'm making it worse!". She immediately apologised and finally relaxed a little and informed me it wasn't my fault, but that I should have been booked into the maternity building for this scan, not the main hospital and that they don't allow for 'extras' like this in her schedule! She then seemed to become warmer and talked much more, she even smiled!!!

She did the internal, but STILL couldn't find either my ovaries or the cyst. She recommended I speak with my GP if I wanted to see the consultant sooner than planned...

So, I spoke with my GP today and he suggested I ring my consultants secretary and see if I could get a scan in the maternity section by a 'proper gynaecologist'. I rang her today and she was very happy to help, she will ring me back before 5pm tomorrow (Weds).

In the meantime, the pain has thankfully eased - not totally but at least it has gone down!

I'm convinced that it MUST have got smaller because although I'm overweight, her not being able to find it must mean something, it was 5x5x4 for goodness sake!!! Also, the fact that I'm not getting the acute pain that I had must be good too...

So, a bit mixed really but quite a journey - nothing is ever simple in my life!!!!

Oh, and DD2 seems to have a chest infection so it looks like we'll be going back and forth to the doctors all week now, poor thing

Hi PLP, gosh, I hope that means it's good news and as you say the cyst has shrunk. I guess it's a good sign the pain has reduced. I hope you get more answers soon and preferably ones that are good news!

Thank you, me too!

Got a letter today, my appointment has been changed to next Thursday 20th which is excellent! Will update when I've been...

Oh good, I hope it goes well. Do update when you know more.

Hiya,

Just a little update! I went to an appointment today that had been rescheduled from 10th Feb - only it was with another consultant!

He immediately said he didn't want to muddy the waters and tread on my consultants toes (too many cooks and all that), which I do appreaciate, but explained I don't care who does it, I just want something done!

So, he listened to my list of problems and let me explain, then dictated into his little machine a letter to my consultant recommending an exploratory laparoscopy to see what the problem is.

That's it really! I'm pleased I was taken seriously, but worried in case this flares up again before I hear from my consultant. More waiting... thankfully it's not been too bad today and yesterday but still keeping a diary.

It's getting really bad again - I used to be on a 3 week cycle, but since the hysterectomy it seems I am ovulating roughly every 4 weeks. I was in hospital the first week of December, then it got extremely bad again the first week of January to the point I needed oramorph to cope. And now it's the first week of February and I'm in agony!!!!

I rang the secretary to my consultant again today; he has only just got the letter from the other week and is just about to go on annual leave for a few weeks (so relieved I rang!). She said the earliest slot he has in his next clinic is 1st March and she is sure he would rather see me for a consultation and gynae scan than schedule me straight away for surgery. I agreed and she is ringing me back with a time when she has spoken with him.

Just need to get through the next few weeks, but she was very sympathetic and said if I need to go the emergency route, then so be it.