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I am back from the hospital and now have my diagnosis :-(

102 replies

phipps · 15/10/2010 13:45

I still have to have more blood tests done and change some medication but I have fibromyalgia. I am pretty upset though relieved that I have not imagined the symptoms. I guess a day of googling is in order to see how I can manage the symptoms.

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ArthurPewty · 15/10/2010 20:41

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phipps · 15/10/2010 20:41

I told the consultant my memory was shot too and he said it was FM fog. I can't concentrate to read come the evening Sad.

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phipps · 15/10/2010 20:42

Thank you, will try now.

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ArthurPewty · 15/10/2010 20:43

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ArthurPewty · 15/10/2010 20:44

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phipps · 15/10/2010 20:46

I have just sent a short, polite email and will await her response. Thank you so much.

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ArthurPewty · 15/10/2010 20:48

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CristinaTheAstonishing · 15/10/2010 20:49

Here is another link from a website much used by GPs. I'd keep within the NHS rather than go all out for 'specialists' in the area, less so for internet-based self-diagnosis.

smokinpumpkins · 15/10/2010 20:52

Leonie, thank you for that thyroid testing link. My mum has thyroid problems and has been nagging me for years that mine could be that not fibro but my current GP says no. I will try another GP in the surgery, but if they wont agree to the full tests I will go private at £48.

ArthurPewty · 15/10/2010 20:55

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smokinpumpkins · 15/10/2010 20:59

Thanks Leonie. My mum was saying about the FT3 and FT4, and thats what my GP said he wouldnt test for as they have been told not to (as you state) Think I will save up and pay privately - just to put my mind at ease. I personally think it is overeating and lack of exercise and fibro ( can get down to 1st overweight then overeat again) but with my mums history I want to be sure.

phipps · 15/10/2010 20:59

I tell you what else I am Confused about. At the moment I have shoulder pain and a headache but I don't know if it is okay to take paracetamol when I will be taking amytriptyline soon.

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ArthurPewty · 15/10/2010 21:03

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phipps · 15/10/2010 21:05

Thank you so much for all the time you have put in to help me these last few days, LD. :). I will let you know if and when I get an answer from my email.

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smokinpumpkins · 15/10/2010 21:05

yes phipps, you can take paracetemol with amytriptyline. I never got on with amytriptyline for my fibro, but strangely since being on citralopram for depression have slept better.

The other thing is what kind of pillow and mattress you use. I couldnt use my memory foam mattress topper last night and I am feeling it today.

I was explained that with fibro you may sleep for 12 hours, but only rest for 2 or 3. This is why you can be constantly tired, and exhausted. I've fallen asleep at my desk before after a 12 hour sleep Blush

A TENS machine is a godsend in my case for shoulder pain and headaches.

phipps · 15/10/2010 21:07

I am off to bed now. I just want today over. At least when I am asleep I don't feel any pain. Thanks everyone :).

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ArthurPewty · 15/10/2010 21:07

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smokinpumpkins · 15/10/2010 21:07

Leonie, the problem is how similar Fibro and Thyroid problems can be. My mum and i have very similar symptoms - the main difference being my neck pain and the obvious positioning of the "pressure points" common with Fibro. Also, she gets dizzy spells that I dont tend to.

ArthurPewty · 15/10/2010 21:14

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ArthurPewty · 15/10/2010 21:18

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smokinpumpkins · 15/10/2010 21:27

No, thats really interesting. Will definately pay out for those blood tests to find out. I have hypermobility syndrome (EDSIII) which is linked with fibro too, there are so many developing links and ideas out there

ArthurPewty · 15/10/2010 21:29

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smokinpumpkins · 15/10/2010 21:30

Maybe thats why acupuncture helps my fibro the best - its known to boost blood flow and metabolism. Interestingly I always start losing weight easier when I have had a series of acupuncture too.

DBennett · 15/10/2010 23:33

@LeonieDelt

We've talked about your ideas regarding T3 in the past.

The papers which you, and TPA, seem to be very keen on just aren't very good pieces of evidence.

And better quality evidence does not support the conclusion that T3 is a useful adjunct to Thyroxine in thyroid dysfunction.

You have expressed dissatisfaction with pubmed in the past but I hope you'll indulge me by looking at three separately conducted systemic reviews/meta-analysis which look at all the studies conducted on this issue.

As we've discussed before, this is the highest level of evidence in medicine.

This from 2005.

This from 2006.

And this from 2007.

All of these conclude that T3 has no benefit.

I don't think this will change your mind.
I'm not posting with that as an objective.

I just want to clear to the OP and others who look here that the T3 hypothesis you push so fervently is a not supported by the best evidence available.
And never has been.

alypaly · 16/10/2010 00:08

been reading all your posts with interest. I developed fibro myalgia and CFS/ME symptoms after catching parvo virus from my youngest son.

I have also been left with a weird feeling in my hands and feet.Sometimes they feel puffy,but arent. They feel slightly tingly and hot but arent hot to the touch.