I need help...................

[whatishappeningtome]

Hi, I am currently under a lot of pressure and stress...I am 29, dp not lived with us since xmas...another story, I have a dd, nearly 9 and ds, just turned 3, who has complex special needs..has a rare genetic disorder, so rare it has no name, he suffers from severe epilepsy, hypotonia(very low muscle tone), hypermobility(very flexible joints), damage to his brain, can't walk, talk, and in nappies etc etc....

Anyway...the last kinda 6 mnths I feel like I am spiralling outta control...most days I don't go out and am in my pyjamas all day, I do my housework, washing etc, look after my kids, but just dunno why I cannot get out my pyjamas... it is a major thought to get out of them and get a bath/shower...

I do suffer from depression and severe OCD, I am on antidepressants, diazepam every couple days for anxiety in regards to ds, and nw co codamol for bad period pain but found myself taking them for no reason or for frequent headaches, I am in such a rut n need help....

I think there must come a point where you think to yourself or a good friend says - yes you are having a shit time,yes its understandable you feel like this but for the sake of your dc and indeed your sanity you need to get dressed and get out of the house and do some living.

you need to get on to the social work children with disbilities team and get some good repsite care sorted out -can be regular help in your home or can be away from your home. is very hard to cope with this level of disability without support.

they can do family link support where he can be with another family for short breaks (from a few hours to full weekends) and allow you to recharge. it is not a failure to request help. your dd also needs time when you can pay attention to her.

get the right support for your ds and that may help you be able to address the other stuff too.

Is DP still about to help?

Hiya! A need to dig myself outta ths hole, I have a socialworker with disabilities team, she is coming on Friday to talk bout more respite, currently I get 2 hrs a week!!!

My DP isn't all tht reliable tbh, we are on and off a LOT, just feel like my life is shit, and I know I have to pull myself outta ths for my dc, they are my world, I am finding gettn the strength to do things VERY hard

Feel so

Is there anyone else going thru the same thing?

im not going through same thing , didnt want your thread to go unanswered , (((hug)))

sounds like you could do with a hand do you have any family/friends you could call on to help you , or just be with you ?

can you maybe call your social worker today just for a chat see if they can help .

hope things improve soon for you .

Everything is such a bloody effort - i'm not surprised you feel like staying in PJs all day. What is your 9 yr old up to during the hols? Does she have friends she can visit?

I'm not going to breeze in and say "slap on a scarf and go and feed the ducks you'll feel soooo much better", however you obviously need to start going out a bit as you've said yourself. Are there any groups in your area that cater for children like your DS and their parents?

FWIW stick with MN too - it's been a mad few weeks on here at the mo but you will get so much support from others in a similar situation to you.

I am so sorry you are feeling like this. I can relate to it somewhat though I don't have a disabled child.

I wanted to say that I found the time when ds1 was 3, the hardest of my life.

It was when he started school that finally things started to get a little bit better.

When does your little one begin going to school? Is it this year or next?
x x

Hi, my dd tends to stay in on Ps3, laptop etc, and when I tell her after a couple of hrs tht no more computers, she will watch TV, not really interested in going out to play, but to be fair, none of her school friends live near us....

The only group we have is SN group for DS, but not tht sort of group. It's for the kids, no support for adults, we don't really talk bout anything, like personal things.....

I am finding it very hard right now, but have made a conscious effort to get in bath soon as I am up and ds is sorted(dd is staying at my mum and dad's tonight) and go do SOMETHING, it is not fair on the kids, but it is soo hard to get the strength to DO ANYTHING

My Socialworker is a right bitch and I don't take much to do with her if I can avoid it, am hoping she retires soon actually, I'm not the only parent to think this hehe

Aw sorry fliight, ds has only just turned 3, starts nursery in August, but whether that will be 5 days a week or not I dunno, as need to see how he deals with it...doesn't do well with change, has more seizures and stuff, so he will go to nursery for 2 years then when he is 5 he will start school, SN unit at a mainstream school

Well today much better, my ds's physio came in today, ended up crying all over herxxx

Sometimes a good cry is what is needed . Keep posting Whatis - there are alot on here going through similar.

Thanku portblacks..., the last post was meant to say " Well today, not much better" not "Well today, much better"...oops, I will keep posting....having a REALLY hard timexx