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Asbestos OCD/ Intrusive Thoughts

16 replies

wildflower93 · 31/05/2026 08:47

Hi all,

Context: my partner nearly died in December due to a medical emergency and since then I cannot stop worrying about harm coming to my son or me somehow falling in and leaving him behind. I am a good mum. We have endless fun and we do endless activities together. He is adored.

Last March I discovered what asbestos was. I knew it was a dangerous material but after my brother pulling out of a house due to it, it crippled me with anxiety. The nature of it being a long latency period and the inability to discover the level of exposure has crippled me.

As a result, I had a surveyor come round to test some artex ceilings. Initially, he was supposed to test 5 but he only needed to test 2 as the others were sandtex and wallpaper. This made me calm for a while but then I started to panic about all the other areas of ceiling that had been left etc.

We are selling the house and needed to get some ceilings skimmed and parts removed. So I had my son’s room tested by an additional surveyor- also negative.

During this time, I asked both surveyors to look inside my under stairs cupboard that houses the boiler.

Both said there’s nothing to be concerned about in there. However, more recently I’ve discovered what insulation boards are. The plaster in our cupboard is heavily damaged and broken half way down (assuming by age and the location).

We’ve also had a new boiler fitted and the plaster/ wall has been drilled through. I asked my gas engineer about whether it was insulation board and he said he wouldn’t have a clue. The boiler wasn’t significantly old- around 15 years.

I am plagued by this cupboard. Despite two expert opinions, I am convinced that it’s damaged ACM as Google says you can’t tell by looking.

My partner is telling me that we don’t need to get it tested and that if I do then it’s me doing another compulsion that will inevitably just latch on to something else. I fear that he’s completely right! I’m going back to the roof replacement that we had now and freaking out. It’s just an endless amount of stress that I can’t keep on top of.

The physical symptoms are crazy right now.
I can’t sleep properly, I’m not eating. I’m getting out and about for my son.

I’m receiving private talk therapy weekly, I do a hypnotherapy class once a week. I’m finally receiving CBT/ ERP beginning on Friday from the NHS with the hopes that it will refer me for psychotherapy and to see a proper psychiatrist. The assessor believes I may have PTSD from what happened to my partner.

There’s no real reason in me writing this. I’m just absolutely convinced my child will get unwell and it will be my fault. If anything ever happened to him I could not live.

Has anyone got better?

OP posts:
wildflower93 · 31/05/2026 08:47

*falling ill

OP posts:
Lizzbear · 31/05/2026 08:53

I’m
sorry you’re feeling so awful op. We had an old back-boiler removed by a workman a few months ago. We think there’s asbestos on the bottom of the fireplace. I worried a lot about it at first, but seem to have told myself that it’s ok as long as we don’t disturb it.
I may get it tested for my peace of mind.
I have intrusive, obsessive thoughts, but they’re around relationships/friendships.
I would love to have ERP but haven’t found anyone who does it.
Im having a private zoom call with a psychiatrist soon as my anxiety is making me ill too.
Sending solidarity.

wildflower93 · 31/05/2026 09:03

Lizzbear · 31/05/2026 08:53

I’m
sorry you’re feeling so awful op. We had an old back-boiler removed by a workman a few months ago. We think there’s asbestos on the bottom of the fireplace. I worried a lot about it at first, but seem to have told myself that it’s ok as long as we don’t disturb it.
I may get it tested for my peace of mind.
I have intrusive, obsessive thoughts, but they’re around relationships/friendships.
I would love to have ERP but haven’t found anyone who does it.
Im having a private zoom call with a psychiatrist soon as my anxiety is making me ill too.
Sending solidarity.

Sending you lots of love. It’s consuming my life.

OP posts:
PearlsTeapot · 31/05/2026 12:27

I'm so sorry you're suffering so badly. it's good you're getting help. For me the only thing that helped me be able to live with OCD was ERP so I hope the same for you.

Lizzbear · 31/05/2026 13:11

PearlsTeapot · 31/05/2026 12:27

I'm so sorry you're suffering so badly. it's good you're getting help. For me the only thing that helped me be able to live with OCD was ERP so I hope the same for you.

Where did you get ERP please?

wildflower93 · 31/05/2026 13:31

Lizzbear · 31/05/2026 13:11

Where did you get ERP please?

I’ve been referred for CBT through the NHS but I’m hoping they’ll see how bad it is and refer me for ERP. If it’s rubbish I’ve actually arranged a call with a therapist from the priory on Wednesday for ERP. She seems really good and clued up on asbestos ocd (lifeeee) but it’s £80 a session. I will just have to make sacrifices to afford it as I can’t stay the way I am

OP posts:
Lizzbear · 31/05/2026 19:13

wildflower93 · 31/05/2026 13:31

I’ve been referred for CBT through the NHS but I’m hoping they’ll see how bad it is and refer me for ERP. If it’s rubbish I’ve actually arranged a call with a therapist from the priory on Wednesday for ERP. She seems really good and clued up on asbestos ocd (lifeeee) but it’s £80 a session. I will just have to make sacrifices to afford it as I can’t stay the way I am

Good luck op. I hope it helps you, really I do.

PearlsTeapot · 01/06/2026 10:13

I had erp privately through the priory north London. It changed my life.

Lizzbear · 01/06/2026 10:15

PearlsTeapot · 01/06/2026 10:13

I had erp privately through the priory north London. It changed my life.

That’s amazing. Thank you for replying. Can’t afford atm but am paying for an appointment with a psychiatrist in 2 weeks. Hope that will clarify things a bit!

PearlsTeapot · 07/06/2026 20:04

Best of luck with it. I had my ERP with Chris Callow and he changed my life, here's the website for the future https://overcomingocd.co.uk/who-we-are/

chaoticred · 07/06/2026 20:48

Hi! I have OCD and also have family members who work in asbestos removal.

I wouldn’t worry about your ceilings as they have come back negative. And it is true that to be sure you should get things sent off for testing, but honestly, the people that work with these things know more than anyone else, they work with ACM and all the various formats they may come in all day everyday. These experts have so much experience that they can say with high likelihood whether something is likely or unlikely to be asbestos. Your boiler sounds new as well so I wouldn’t worry about asbestos there.

Another thing to remember is that even if it IS asbestos, these materials aren’t 100% percent asbestos, some contain more/less than others, and exposure will not automatically lead to harm.

Your partner sounds lovely and I’m glad that you’re accessing the support systems you need. Everything will be fine! xx

wildflower93 · 07/06/2026 20:49

chaoticred · 07/06/2026 20:48

Hi! I have OCD and also have family members who work in asbestos removal.

I wouldn’t worry about your ceilings as they have come back negative. And it is true that to be sure you should get things sent off for testing, but honestly, the people that work with these things know more than anyone else, they work with ACM and all the various formats they may come in all day everyday. These experts have so much experience that they can say with high likelihood whether something is likely or unlikely to be asbestos. Your boiler sounds new as well so I wouldn’t worry about asbestos there.

Another thing to remember is that even if it IS asbestos, these materials aren’t 100% percent asbestos, some contain more/less than others, and exposure will not automatically lead to harm.

Your partner sounds lovely and I’m glad that you’re accessing the support systems you need. Everything will be fine! xx

Thank you. I’m doing slightly better than the other day. I’m doing everything I can to get myself better. It’s really, really hard. Some of my toddler’s sand tested positive for 0.001% of asbestos and it’s literally been ALL over my house. I’ve found some specs in my drawer today. It just never ends 😆

OP posts:
BeaPerry · 07/06/2026 20:52

ERP is
exposure response prevention
it is the gold standard treatment for OCD
it is a treatment that is part of CBT, CBT therapists deliver Exposure Response Prevention (ERP)

BeaPerry · 07/06/2026 20:54

I think you are getting confused with
EMDR
which is a treatment used for PTSD
not OCD

bignewprinz · 07/06/2026 21:12

Hello OP. Sorry you are struggling so badly. I have OCD and have previously been obsessed with asbestos after finding AIB in my home. I am better now, thanks to sertraline. I wasn't actually prescribed sertraline for OCD, but I woke up one day after taking it for 2/3 months to realise my OCD - the thing that had ruled my life for years and sent me demented on many an occasion - had all but gone.

I no longer take sertraline so some of the OCD has returned, but nowhere near the level it used to be. So yes, it can get better and I can say that as someone who no longer cares about asbestos but used to worry about it every waking moment!

YouOKHun · 07/06/2026 21:17

Agree with @BeaPerry. I’m a CBT therapist and Exposure Response Prevention would be part of CBT treatment after sessions to understand the nature of the problem and gain understanding of how OCD works generally and particularly for you @wildflower93. I have seen EMDR used in particular cases where OCD is
present but generally speaking CBT has the best evidence for the treatment of OCD, ErP is pretty much embedded in CBT for OCD.

I’ve mentioned some useful books about OCD before such as Break Free from OCD by Dr Victoria Bream, Prof Paul Salkovkis et al which you might find useful.

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