Support options for managing severe mood drops with autism and ADHD

[Needtoscream]

I have a diagnosis of autism and ADHD
I've been having awful mood drops that I'm struggling to cope with .
They are in response to situations I'm being put in
For them to stop ,I think I'd literally need to be on an island alone .
I need to learn to manage them ,but it's difficult as I don't know how
Does anyone know
Where is any help I could access ..my doctor has told me not to keep contacting the surgery when I get like this ..but haven't suggested anywhere I can go for help instead.
Today has been a very bad day
Has anyone any ideas or suggestions

Your doctor has told you not to contact the surgery?!?! What sort of a doctor is that! A rubbish doctor! They should be prescribing you with anti depressants or sign you up for CBT or referring you to a psychiatrist. I can think of this over the internet, I have no idea why they can't be more helpful. Hope you can get something sorted. Maybe ask for a different GP at the surgery?

This sound tough.

What is happening to trigger them and how server and how long are they lasting? Is it anger, depression, sucidial feelings or some thing else? What have you tried so far? - Just so people don’t suggest stuff you’ve already tried?

Is your diagnosis new? I’m asking because the first year afterwards is tough.

The samaritian helpline is open 24/7
https://www.samaritans.org/how-we-can-help/contact-samaritan/

This is totally out of touch with reality to suggest that an NHS GP should be referring a patient to a psychiatrist for low mood. The resources don’t exist for that

Thanks for your replies
I am diagnosed with autism and ADHD .
I'm not coping with my mood when it drops low ,I get in a tailspin and do an e consult for medication..that is what the doctor is telling me not to do .
She says I've tried every antidepressant possible and there is nothing left to try me on I haven't already had .I have had countless amounts of counselling and CBT
I'm due to start concerta xl for my ADHD ,so I'm really hoping that will help me .
I originally went to the doctor's about 7 years ago for help ,ask was sure I had cyclomainia .. doctor suggested asessment for autism and ADHD ,which 7 years later I am diagnosed with both ..but the moods swings still persist and the anxiety is through the roof ,and I'm really not sure where to turn

@Easylifeornot thankyou for your link to Samaritans,I have phoned them in the past
Doctor says my mood swings are autistic shutdowns
For a long time I thought it was a type of bi pola ..
But sometimes during the mood drops ,I loose my words as happened at the weekend
So I think my doctor is most probably right
She is an absolutely lovely doctor and very positive about autism,she has spent lots of time on the phone explaining autism to me ..so I can't say she doesn't listen or anything
I think I was using the e consult,as a way of coping with the mood drops ...
So I need some help for my autism most probably
In real life I don't know any adults with autism,who I could ask how they cope with this

I take it back, the GP really should be referring you to a psychiatrist when you have tried so many options and she has effectively given up on helping you herself. I highly doubt that she has tried all the antidepressants and psychiatrists can try combinations of AD and low level antipsychotics.
Im really sorry you have been suffering so badly for so long. I can empathise with that myself.

Sorry I meant to quote your previous post.

So if the mood drops as you call them are shutdowns, we need to prevent you getting to shutdowns.

Do you track your mood and activity in anyway? Do you get any warning signs?

Ok it sounds a bit out there but you’ve asked for options. Have you looked into getting a AuADHD coach?

So in my ADHD asessment I was asked if I'd been sectioned,which I said no ,then asked if I'd been referred to a psychiatrist,when I said no ,she asked why not ..
I can only assume it's because I've had 5 different doctors in the last 30 years and none of them look back at my notes .

I wouldn't know where to start getting one

I have been trying to take notice of them ,and they are usually in response to some interaction I can't control.. email or phone call ..always something out of my control

If I could just speak to someone with the same diagnosis and experiencing the same things that would massively help ,to hear how they manage it

That’s why I suggested the coach. For example:

https://www.autism.org.uk/autism-services-directory/adhdbrain-coach

I found my ADHD coach through google and read reviews. Found it very helpful. Might be out of scope for your mood issues though.

Thanks for the link @WannabeMathematician
Much appreciated

Feeling for you, my lovely. In a similar situation and it's super hard some days... I'm AudHd and struggle with making phone calls. I have used the CALM live chat a few times which has been helpful: https://www.thecalmzone.net/suicide-prevention-helpline sending you lots of hugs xxx

Please consider that some of your lows may be hormone related. Theres a lot of overlap between hormones and neurodiversity and to add to the complication perimenopause magnifies the neurodiversiry and the mood swings.

I'm also Autistic and have ADHD, it sounds to me like you're in the start of 'burn out'. Have you ever been prescribed anxiety medication rather than antidepressants? When I was in your situation a few years ago, I was prescribed Buspirone to take when I felt I needed it rather than everyday, and it really really helped. I'd take it as soon as I started feeling overwhelmed and it stopped me from getting worse each time

So ,I have started on ADHD medication,and I do seem to be a bit more level on it
It's early days ,but I'm hopeful it will help me .
I have propropnal for anxiety,that does help when I remember in the moment to take it
I really really hope these meds help me , because I'm getting very embarrassed at the amount of times I've now contacted the doctors.
And I just want something to work for me
I haven't had brusperon,but I got 15 valium to help with attending a funeral..but I only ever took one and couldn't cope with the feeling
I think ..(I've been doing a lot of thinking..)I think I probably do need antidepressants..but I just can't seem to tolerate any of them .
I can feel them working within a couple of hours ,and they just zombie me ..it's like they make everything worse ..I've no idea why they effect me like that .
I can already tell the ADHD meds are not doing that ,as I'm tolerating them very well so far ( touch wood ) and unless I am imagining it ,I feel they are definitely helping with my (constant) anxiety
Please god ,let these meds actually help me .. because I'm getting to the point I'm actually getting sick of myself