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Update on psychotic symptoms/PD diagnosis

17 replies

PurpleLovecats · 31/03/2026 21:40

Thought I’d update after my posts where I was seeing and hearing things and very suicidal.

I had requested to go back on antipsychotics but been refused by the MH team as they diagnosed me with PD.

Well I had loads of antipsychotics left and in desperation I started taking them again. I’m a different person. Angels really quiet. Barely see any. Voices quiet. No bugs on skin, no orbit birds flying at me.

Can drive safely again. Have left the house several times. I can follow conversations. It’s amazing. I actually want to live.

I am dreading it when they run out, they’ve honestly saved my life these last few weeks.

OP posts:
Wellthatsitthenisuppose · 01/04/2026 01:11

Thats good news that you are feeling better on the antipsychotics. Are you going to let your GP and MH team know? Maybe they will believe you if they can see that you are presenting differently to when they saw you before?

pompomtiddly · 01/04/2026 02:01

People with personality disorders such as borderline personality disorder can experience psychotic symptoms At times of stress.
It is Worth seeing your GP and/or your mental health team now you are a lot more settled for advice on what to do next. It is not a Good idea to suddenly stop your antipsychotic medication just because you’ve run out, it may be that you will be able to stop it but you should be able to taper it off.

PurpleLovecats · 01/04/2026 15:14

I’ve told both my GP and MH team and suggested a meeting but they’ve not responded. There’s not much else I can do. GP won’t prescribe more antipsychotics and I’ve no psychiatrist any more. So it’s a dilemma really.
To the poster who said you can have psychosis with PD, I agree but my MH team are adamant I don’t. I also am awaiting clarification of my diagnosis as I don’t believe it is correct as I don’t meet all the criteria for diagnosis.

(Eg, I have no trauma in my background, no issues maintaining relationships, no fear of abandonment, no mood swings. No impulsivity.)

OP posts:
Wellthatsitthenisuppose · 03/04/2026 21:00

I’m in a similar situation in that I’m going to run out of antidepressants on Thursday. The withdrawal is likely to be tough but I’ve fallen out with my psychiatrist so I’ve got no way of getting a new prescription.

Orangesandlemons77 · 03/04/2026 21:08

I'm in antipsychotics but for PTSD and anxiety the PTSD is from an episode of psychosis though. It's a shame that if they are helping they are not letting you have them.

With me the go prescribes and I don't have any input from the MH team. I have yearly bloods and ecg at the GP surgery. Been on them years.

Climbinghigher · 03/04/2026 21:12

PurpleLovecats · 01/04/2026 15:14

I’ve told both my GP and MH team and suggested a meeting but they’ve not responded. There’s not much else I can do. GP won’t prescribe more antipsychotics and I’ve no psychiatrist any more. So it’s a dilemma really.
To the poster who said you can have psychosis with PD, I agree but my MH team are adamant I don’t. I also am awaiting clarification of my diagnosis as I don’t believe it is correct as I don’t meet all the criteria for diagnosis.

(Eg, I have no trauma in my background, no issues maintaining relationships, no fear of abandonment, no mood swings. No impulsivity.)

What are they basing the diagnosis on?

Can you ask for a second opinion? Stopping antipsychotics suddenly is very tough.

Orangesandlemons77 · 04/04/2026 07:46

I have been told you need to wean off them slowly - it was maybe not the best idea to just start taking them without support and advice but maybe the GPs will help you wean back off them if you explain

They won't want to prescribe them without the MH team advising it though, I find. They might need to ask them for advice what to do.

Orangesandlemons77 · 04/04/2026 07:47

Wonder if getting a private consult with a psychiatrist would help,

PurpleLovecats · 04/04/2026 18:39

Climbinghigher · 03/04/2026 21:12

What are they basing the diagnosis on?

Can you ask for a second opinion? Stopping antipsychotics suddenly is very tough.

I don’t know, they’ve not told me despite many requests.

OP posts:
Orangesandlemons77 · 04/04/2026 19:44

Wellthatsitthenisuppose · 03/04/2026 21:00

I’m in a similar situation in that I’m going to run out of antidepressants on Thursday. The withdrawal is likely to be tough but I’ve fallen out with my psychiatrist so I’ve got no way of getting a new prescription.

You should be able to get this through your GP or 111 I think, it can be dangerous just to stop, take care

Wellthatsitthenisuppose · 04/04/2026 23:15

Orangesandlemons77 · 04/04/2026 19:44

You should be able to get this through your GP or 111 I think, it can be dangerous just to stop, take care

Thanks. I thought the GP would need.a letter from my psychiatrist to ask them to take over prescribing the meds.

Orangesandlemons77 · 05/04/2026 16:25

Wellthatsitthenisuppose · 04/04/2026 23:15

Thanks. I thought the GP would need.a letter from my psychiatrist to ask them to take over prescribing the meds.

Honestly, I would just contact them and tell them what has happened, the dose you are on and how you are finding it, that you need support as not good to just stop them.

I'm currently reducing myself and the GPs are helping with that atm. Mine is olanzapine, doing one month 7.5mg from 10mg, them seeing how that goes, aiming to get to 5mg.

It's the metabolic problems that they lead to that is a concern as well. I put on a lot of weight and have only just lost it with expensive weigh loss meds (which they also know I am taking to help and have been supportive with, even though I have had to pay for them myself).

Wellthatsitthenisuppose · 06/04/2026 02:49

Orangesandlemons77 · 05/04/2026 16:25

Honestly, I would just contact them and tell them what has happened, the dose you are on and how you are finding it, that you need support as not good to just stop them.

I'm currently reducing myself and the GPs are helping with that atm. Mine is olanzapine, doing one month 7.5mg from 10mg, them seeing how that goes, aiming to get to 5mg.

It's the metabolic problems that they lead to that is a concern as well. I put on a lot of weight and have only just lost it with expensive weigh loss meds (which they also know I am taking to help and have been supportive with, even though I have had to pay for them myself).

Thanks. I have a self-destructive streak so I’m tempted to go cold turkey to make myself suffer.
I hope you can reduce your dosage of olanzapine without any withdrawal symptoms. It’s terrible how drugs which can mess with the metabolism are dished out without much thought. I came off Quetiapine because I was concerned about that.

Wellthatsitthenisuppose · 11/04/2026 03:05

When are you going to run out of your meds OP? What are you going to do then?

PurpleLovecats · 11/04/2026 11:47

I’ve got a few weeks left then I e found an overseas pharmacy I can order from.

OP posts:
Wellthatsitthenisuppose · 11/04/2026 18:18

PurpleLovecats · 11/04/2026 11:47

I’ve got a few weeks left then I e found an overseas pharmacy I can order from.

Excellent but obviously make sure it is legit otherwise you don’t know what you are taking

Orangesandlemons77 · 12/04/2026 12:39

Take care op sounds a bit dodgy, plus they need to monitor you on these meds, I get regular ECGs and blood tests.

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