Incorrect diagnosis

[PurpleLovecats]

I have been diagnosed with something that is incorrect. I have done multiple online screenings that state I do not have this. My family all agree the symptoms do not adequately represent me. I’ve asked for clarity from the MH team of how they reached this diagnosis but have been ignored.
I was removed from medication that worked (family back me on this). Offered therapy for emotional disregulation when I don’t struggle with that.
i am being discharged from the MH team due to our fractured relationship. I want the diagnosis removed from my medical notes, has anyone managed this?

I suggest you contact PALS. Keep written records of any contact to mental health services.

Was there a difference OP between what the psychiatrists on the hospital wards thought and your home team psychiatrist thought? Was this discussed at any point?

For a supposed MH professional, you’re not actually very professional telling someone you have never met and know nothing about that there’s no actual evidence that MH disorders even exist. In addition, giving Jessica Taylor as an example of who to look up is pretty laughable.

Yes, They diagnosed me with psychosis, CMHT psychiatrist agreed to treat me as such. Then I was given a new psych who changed the diagnosis and removed the medication.

I believe disorders exist. I’m sceptical about personality disorders as it seems very nuanced and all the info I have found online does not reflect my experiences. I was removed from a PD support group as they stated it was clear I did not have a disorder as I couldn’t relate to anybody there.
I find it really confusing that nobody from the CMHT has been able to provide evidence of why I was diagnosed. If they did, maybe I could understand it better? On the other hand I have provided detailed responses to them as to why I feel it does not fit and they’ve not even acknowledged my emails.
We have agreed there is no way forward. So I am now liaising with my GP who is trying to support me.

How annoying for you. I'm sorry you're having this experience. Did you meet with the new psychiatrist? How long for?

I did. And he gave me the new diagnosis. I then started to question him about it and he asked me to leave!

You have a right to a second opinion.

So sorry about this. MH experts do get things wrong at times. My ASD son was given antipsychotics because of his outbursts at 13. They fucked him up completely. I wanted to believe the experts when they said it was the best treatment and we just had to change molecules and dosage. He never heard voices, he just got violent outbusts. The meds made him "crazier"; he got bulimic and piled on weight. We hid snacks so he went to steal crisps and donuts in our local supermarket!
His outbursts were due to pubertal hormonal changes and now he's just on Sertraline for OCD and anxiety and Tercian in the evening to calm him down.

I was wrongly diagnosed as bipolar 20 years ago. Medication given that made me agressive and very unstable. Well known private psychiatrist whose speciality was... bipolar disorder. He saw it everywhere. Yet I didn't have any maniac periods. Didn't have sexual relationships or spending problems. Didn't do anything "off". Saw another psychiatrist on the NHS who correctly diagnosed a depression and anxiety so on Effexor ever since.

@PurpleLovecats I feel for you. You are not the only one unfortunately. Sometimes I think they just have a diagnosis in mind and want to fit us in rather than trying to find out what our problem is.💐

I knew you were going to say you were autistic and it was EUPD.

I was diagnosed with the old fashioned BPD many moons ago in late teens. Since then I did my degree my dissertation on PDs and had children who are autistic. I was assessed for autism and diagnosed and they refused to remove the BPD from my records. Arguing with them is seen as proof you have it. Disputing how you meet the diagnostic criteria is dismissed the same way. Even when you are challenging that an autistic teen girl missed the social cues of danger due to communication differences and loneliness - which led to her suffering repeated sexual assaults and rape- that’s not evidence of promiscuity it’s evidence of abuse. Nope apparently it is promiscuity even when non consensual and the fact that information upset me was proof of PD.

Was used against me in family court by my abusive ex and the judge ordered a Psyc evaluation. The Psyc got as close as he could to saying he doesn’t believe I’m BPD by saying he observed none of the relevant behaviours and saw no risk to my children. Psyc said to me but refused to go on record that it sounds like I had PTSD and got through that alone as PTSD can reduce/resolve as I e experienced but EUPD is lifelong and should be observable and impacting my life which wasn’t the case with me. Apparently there is a process to get it ‘updated’ on your records to say it was a misdiagnosis but it cannot be removed. But you have to prove the negative and as a pp pointed out it is possible to have both autism and EUPD and that against the impossibility of proving a negative had me give up. There is actually research on EUPD in autistics- we do have it at higher instances than NT because we tend to be abused and suffer more trauma/ or maybe that’s explainable by the documented misdiagnosis of autism as PDs in women

Thanks for your reply, I have no trauma profile at all though. Strong relationships that are very healthy. Never been abused, bullied, mistreated. No history of promiscuity or impulsive behaviour.

You should be able to see all your clinical notes if you do a Subject Access Request OP: you need to formally request this in writing and they usually have 35 working days (I think) to provide them. You can look on the website of the nhs trust details of how to go about this. From this, you will be able to see any assessments and all the notes they have written from sessions. They should give you everything and only redact third party info. However if that doesn’t yield any helpful information then you can do two things. Firstly you can write a letter to the consultant psychiatrist asking for a review of your diagnosis and clarity on how you meet each of the relevant diagnostic criteria for EUPD (from either ICD-11 or DSM-5). If this does not yield a helpful reply, your third option is a written formal complaint to the service manager of the mental health service . They will have to formally investigate this within a certain timescale and may involve an independent manager to investigate. Hopefully one of these avenues will be helpful to you. Good luck!

It's a horrible diagnosis op and I agree with other posters, it's completely impossible to remove. From now on in, give it no heed and focus entirely on getting better, behave as if it were never given. You know you best. It's slapped on to mostly women who have not responded to treatment and therefore, seen as ' difficult ' in some way. It's victim blaming at best and gross misogyny at worse. How professionals can turn the patient in to the problem and not their trauma or nd or adverse life experiences is anyone's guess. I'm waiting for the day when someone successfully sues the nhs for gross negligence in labelling distressed women with a diagnosis that does more harm than good, as then the floodgates will open and finally this vile inappropriate diagnosis will be put to bed. Can you afford to go private and swerve nhs treatment?

Several GPs said they think I have BPD years ago.

Was actually autistic/ADHD with OCD.

Thankfully they never put BPD on my file

Thanks everyone. Am being dis harmed from the MH team due to our difference of opinion. Going it alone from now on!

Sorry to hear that OP. Presumably you will still be able to access support via your GP when required as they must have some duty of care to you?

GP wont do much as said I’m too complex and need a psychiatrist but I didn’t have one under the mental health team anyway.

You seem to be managing ok without the medication so that’s a positive

Exactly. As long as I do what the voices tell me to do, I am fine, it keeps them happy.
I can’t leave the house or drive as they tell me to harm people so I stay indoors.

That’s interesting, I didn’t know there was a link between asd and hallucinations, I will give that a read!