ASD diagnosis and getting worse

[Em94]

Not sure if this is the right forum for this really but looking for some advice from anyone who knows where I could turn.
im 32 and was diagnosed with ASD when I was 22 following a breakdown during university, I was admitted to a few mental health units over a 12 month period and one amazing nurse suggested I may be autistic due to how I present.
this was a shock to me but following diagnosis and the therapy following I am 100% on the spectrum.
I thought the diagnosis would help me to ensure I got the support I needed but over the past ten years I seem to be a cycle of poor MH relating to the workplace mostly.. I fully changed my career after university and for a while this worked well.
but I seem to be in a cycle of doing well and then just not coping at all but still keep going and going until I’m at the point of a breakdown and I can’t manage daily living.
basically I don’t know how to get help with this, I’m struggling to get Job interviews when I declare my ASD. I’ve never had an interview when it was declared beforehand but have got them for most jobs applied for without declaring.
my issue is that this is meaning I’m not getting the support I need from my workplace which is affecting my whole life because my mental health ends up so low.
I’m not entitled to PIP as they’ve said I manage to work and don’t have support but I’m not coping and honestly I’m scared how bad my MH has to get before anyone helps me.
I’ve had doctors tell me I’m not autistic, who tell me I’m making this worse for myself.
I feel at an absolute loss of where to turn or who will help me

Just adding to bump x

I'm so sorry I don't have any advice or experience, but I wanted to give this another bump as I am sure there will be others here who can help.

Do you have a sense of what reasonable adjustments you need at work to help you?

When you say you sometimes declare your ASD in a job application, do you mean you do this on the equalities monitoring form or in your personal statement/cover letter?

First, this sounds a bit like autistic burnout to me. I learned a lot from a website made by an autistic psychologist called Alice Nichols who goes into this in more detail as well as strategies which may help to recover and live in a way which doesn't create this cycle.

ive never felt I needed huge adjustments at work but I work in a support role and deal with a lot of substance misuse - I have always worked with this type of clientele and my role would be classed as lone working.
I’ve recently been given a building to manage where the clients have LD and where I have to work along side another company, it’s like joint support. It’s a hugeee change for me as I’ve never worked alongside another team in this way and have never supported LD. my expertise is substance misuse and mental health.

another sample would be workload, this has doubled in the past 12 months meaning annual leave is hard to book, there has been a new rule implemented of 2 people per week for annual leave. I questioned this as in my opinion this change is due to an increase in work load with no extra pay. So two negatives there.

im definitely being seen as being difficult and argumentative at the moment but this isn’t the case, i need communication and change to happen fairly.
im really finding it hard to put into words what i need in terms of support without coming across like im trying to cause issues.

I’ve never declared it before but due to this cycle happening a few times over the past 10 years I decided now was the time I should, I declare this in the sections it asks if you have a disability.
Ive had not one interview since doing this but ive never ever had issues with getting an interview before. It just seems to be too big of a coinsidence

Thankyou I will look into this, I am definetly in a cycle where every four years I just fall apart.
it all seems to revolve around work but obviously this then trickles into my day to day life.
before I know it I can’t function

I am similar (Autism and ADHD) in that I have cycles of doing amazing and then just getting to burn out. I’ve had to be quite strict with myself this time around and really keep a handle on my caseload, the balance of types of work and not allowing my ADHD side to run me to the ground in terms of excessive work and then Autism side hyper fixation and then fatigue. I have to make a really conscious effort to be steady steady, it feels unnatural sometimes but is working. For example today I really want to just get loads of CPD and admin done and if I follow instinct I’ll do it to 11/12 at night and maybe not even stop. I’ve planned to be very strict and shut my laptop off at 5. Not allowed to turn it back on.
just an example from my life, no ideas just validation that finding a balance can be very hard when prone to burnout

This sounds very similar to me, I was told at my autism assessment that they thought I had adhd too and they was kind of playing against each other.

i think this might be why I don’t outwardly present as autistic as I’m very loud and chatty. But this massively burns me out, I am that drained when I get home that I can’t shower, eat or talk.