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Fiancee freaking out about MRI Scan, Wants me there

9 replies

VipersKiss · 16/04/2025 13:08

He is autistic, also claustrophobic, there's no open scanner available in his county and where I live they won't take referrals from outside the county, he wants me in with him, I've looked this up and I can only find 'only in exceptional circumstances' I understand why this is but he'll panic big time even if tranquillised if I'm not in there with him . What I'm asking has anyone been in the scanner room with a loved one and how they got permission.?

OP posts:
TomatoSandwiches · 16/04/2025 13:28

You mean in the machine itself? There would be no room for you and even if there was it would be more claustrophobic.
They put children to sleep under GA for MRI or CT scans not sure if they would for your partner, no harm in asking.

Seachanger · 16/04/2025 16:43

Autism is classed as a disability.
So if he is autistic and has claustrophobia I would have thought if he discussed his fears with the health professionals who are going to do the scan the onus should be on them to take every step they could to make this procedure as least frightening for him as possible.

Apillthatmakesyousayalltherightstuff · 16/04/2025 16:48

The unit I had mine in had enough room to have someone in, so he should ask. The 2 guys working it were kind and reassuring too.

TheLadyMaud · 16/04/2025 18:44

I don't see why not unless you fail the safety screening for some reason ( metal in your body). Parents are allowed in with children, and HCAs with patients who need them. I would try and contact them in advance to get it through so they can make any adjustments necessary, eg t iming and duration of slot. Theyd rather get a successful, useful scan of diagnostic quality then not.

Fedupwiththecuts · 16/04/2025 18:46

I was allowed in the room but not too near the machine. It's so noisy that my dc couldn't hear any reassurance anyway. However, when they came out for an injection they could see me so I gave a thumbs up.
I would definitely be asking for sedation or something. It's really important that you're still.

SapphireOpal · 16/04/2025 18:52

I have been in the room with my autistic husband for a medical procedure that was likely to cause him distress in a similar way, and this was allowed due to his disability. However I have had an MRI scan and I wouldn't have been able to hear if my husband was in the room or not. I'd think his autism would put this as an exceptional circumstance, but I'm not sure he'll actually find it more reassuring having you there anyway - it's very noisy, he won't be able to see you etc.

Are you sure there's no way he can be referred to an open scanner due to the autism - that's what I'd be investigating if my husband ever needed one as I'm sure he wouldn't cope? What do they do if very large patients need an MRI in your county if they can't access an open scanner?

TheLadyMaud · 17/04/2025 19:55

SapphireOpal · 16/04/2025 18:52

I have been in the room with my autistic husband for a medical procedure that was likely to cause him distress in a similar way, and this was allowed due to his disability. However I have had an MRI scan and I wouldn't have been able to hear if my husband was in the room or not. I'd think his autism would put this as an exceptional circumstance, but I'm not sure he'll actually find it more reassuring having you there anyway - it's very noisy, he won't be able to see you etc.

Are you sure there's no way he can be referred to an open scanner due to the autism - that's what I'd be investigating if my husband ever needed one as I'm sure he wouldn't cope? What do they do if very large patients need an MRI in your county if they can't access an open scanner?

If his head is being scanned, the head coil has a mirror above it so that the patient can see out, so if could position yourself within their sight.
Other wise, you may be able to hold a hand, or if the arms are within the scanner, lay a hand on an ankle or foot.

Gundogday · 17/04/2025 19:58

i’ve had a couple. Neither tones dh was on the room with me. Once he was in the booth, and the other time in the waiting room.

Try the calm app. Also, with must mris you are allowed to listen to music.

Isitisit · 17/04/2025 19:59

My husband was allowed in with me when I had an MRI a few weeks before giving birth. I had polyhydramnios (excess amniotic fluid) so struggled to breathe on my back. The letter usually has a number you can call to discuss any issues, I inagine if he does they will let you come in for the reasons you’ve outlined.

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