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How do I help my sibling who’s suffering from mental health and is deteriorating?

7 replies

Anonuser21 · 20/03/2025 12:34

Hi all

Sorry for the long post, but I could really use some advice.

In England, my 26-year-old brother who’s in need of some desperate help but struggling with how to help him.

Background-
He has no job, no partner, dropped out of uni, always lived at home. He has never lived on his own, sat at home doing nothing.

Behaviours-
Doesn’t really leave his room or the house.
He is always in his bed.
When he eats, it’s only a little, and he always wants to take it to his room.
He has very unusual and random routines. Like having tetanus at most random times you can imagine.
Sometimes when he speaks, it’s a mumble and barely comprehensible.
His routine - sleeps, comes downstairs for some food, and goes back upstairs to his room. At times he has to be fetched otherwise he may not even eat.
He doesn’t contribute anything in family home.
Lack of personal hygiene.
He only talks to people in the house, and that’s when and if he feels like it.
He has friends that are concerned about him, when they come to visit him he doesn’t bother coming down to even say Hello.
No motivation or ambition to do anything.
Dropping out of Uni (during COVID) I think played a big part. Something about not applying for Student finance and having to owe University thousands of pounds.
No alcohol / drug / gambling issues that we are aware of.
Everything is spoon-fed to him by his parents from making his food for him, doing his laundry, and he doesn’t ever have to worry about bills or finance, etc.
No sense of independence at all.
Always on his phone, laptop, or Xbox.
When parents are gone on holiday, feels like he deteriorates.
He is very direct, blunt, and acts strangely. I don’t know if this is autism, but it feels like he is somewhat on the spectrum a little bit or most eccentric person we’ve ever come across. For example, it’s difficult to have a normal conversation with him. He doesn’t engage like a “normal person.” You say something, and he’ll say something completely random or off-topic as if he is evading the question or issue entirely. He’ll come out with most random things from nowhere.

We found him some part time work at petrol station. He wasn’t able to work there for more than a week and was told to leave. Manager said he needed help.

We’ve told him ample times that we would support him in ANYTHING he does

In the past, he had a phase when he was really bad. Parents took him on holiday for several weeks and this made a difference. He’d improve greatly, but since then he relapsed back to how he was, I have a feeling his change of environment was the cause. This was an all expense trip paid by our parents. I doubt they’ll be able to afford this again.

His been like this for several years now. Just at home doing absolutely nothing and we fear his gradually getting worse over time.

We’ve tried contacting GP, mental health team and psychologist. The issue is he won’t enagage with anyone. After battle with GP, we’ve had doctor come to the house, first time brother didn’t even come to visit them. The second or third time, brother had a brief chat and said he was fine. The doctors said they cannot really do anything if he is saying he has no issues.

How are you supposed to get professional help when he won’t engage with anyone? We’ve tried so many times talking to him asking him what he needs and what help we can give him but this hasn’t really gone anywhere. This is now causing a lot of stress in family home.

How do I begin to help him when I don’t know what’s going on with him?

What support / referrals and or agencies are in place that I can contact?

Can someone please help, especially if they’ve experienced something similar or have helped someone that was going through something like this?

I would really appreciate any advice.

Thank you for taking time to read this.

OP posts:
VeryNiceDay · 20/03/2025 12:39

Does he have a special interest, even if it is gaming? If you could get a therapist who has experience with autism, they could do weekly zoom calls with him and listen to him talk about his special interest.

StumbleInTheDebris · 20/03/2025 12:41

What is "tetanus" a typo for?

Scutterbug · 20/03/2025 12:43

I didn’t understand the tetanus bit but he sounds depressed. Unfortunately you really are stuck if he won’t engage with anyone. Services are so stretched they don’t have time to coax somebody into admission of issues. He sounds like he needs graded exposure. So tiny steps to change. Starting with doing things around the house for himself. His own washing, clean the kitchen, mow the lawn. Build his day up so he is doing more meaningful things.

BobbyBiscuits · 20/03/2025 12:47

I'm so sorry this is happening. It must be awful for you to see him like that. And not easy for his family.

I can only hope if his family sit him down and tell him calmly they really want him to try and get better, he'll engage with some kind of help. The sad thing is there isn't much out there even for those who want it.

I don't think an ultimatum to kick him out if he doesn't get 'better' would be helpful. Unless they really can't afford to keep him and it's irreperably damaging their family life.

If he were to choose his own counsellor or therapist, as long as they were regulated, maybe that might help?

Is he on the benefits he's entitled to? (The less said about that right now the better sadly)

I hope things improve for you all and wish I had more useful advice x

Eyesopenwideawake · 20/03/2025 12:51

If he's happy (or content) with being babied and not having to provide, care or even think for himself then there's not a lot you can do. The propulsion for change or to seek help HAS to come from him.

Anonuser21 · 20/03/2025 12:53

StumbleInTheDebris · 20/03/2025 12:41

What is "tetanus" a typo for?

That’s definitely a typo. It took me some time to write this post so I can’t remember at this point 😅

OP posts:
Anonuser21 · 20/03/2025 13:01

BobbyBiscuits · 20/03/2025 12:47

I'm so sorry this is happening. It must be awful for you to see him like that. And not easy for his family.

I can only hope if his family sit him down and tell him calmly they really want him to try and get better, he'll engage with some kind of help. The sad thing is there isn't much out there even for those who want it.

I don't think an ultimatum to kick him out if he doesn't get 'better' would be helpful. Unless they really can't afford to keep him and it's irreperably damaging their family life.

If he were to choose his own counsellor or therapist, as long as they were regulated, maybe that might help?

Is he on the benefits he's entitled to? (The less said about that right now the better sadly)

I hope things improve for you all and wish I had more useful advice x

We thought about setting him up in a place by himself. In the end we decided against it thinking it would make his health worse

At this point we can find his treatment, cost won’t be an issue even if it we have to go private clinic or pay for professionals

where do we start??? This is where we struggling.

OP posts:
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