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Anyone else waiting for NHS ADHD outcome?

14 replies

CatDogBirdPig · 29/01/2025 18:58

Is anyone else (im)patiently waiting for the results of their ADHD assessments and wants to share their thoughts / handhold?

Or have you been through the process and been told you didn't have it?

It's going to be a long four weeks for this overactive brain.

OP posts:
MsGoodenough · 29/01/2025 20:54

I'm waiting for my referral. Years probably until any outcome! I hope yours comes soon.

princessAlo · 29/01/2025 20:56

CatDogBirdPig · 29/01/2025 18:58

Is anyone else (im)patiently waiting for the results of their ADHD assessments and wants to share their thoughts / handhold?

Or have you been through the process and been told you didn't have it?

It's going to be a long four weeks for this overactive brain.

I got a referral to be obsessed exactly a year and a month ago now. I got a letter saying hello you have been referred. And I have heard fuck all since haven't even got an appointment or anything ! Anyone else have to wait this long ?

FiloPasty · 29/01/2025 21:00

I’m in Surrey been waiting 5 years and it looks like the waiting list is 8!

Octaviathethird · 29/01/2025 21:22

I filled in my referral and was accepted to the list 3 years ago, haven't heard anything! At the time they said the wait would be 2 years. Currently filling in the referral form for my dd5, we've been told that'll be 2.5 years if they accept the referral. This is in Somerset. Can't really afford to go private and they are very anti private round here. My dad, in Worcestershire, is being fast tracked through a "pick your own provider" policy, it's only been a few months so far for him and he's quite a way through the process. We all obviously need to move to Worcestershire!

MsTada · 29/01/2025 21:32

Octaviathethird · 29/01/2025 21:22

I filled in my referral and was accepted to the list 3 years ago, haven't heard anything! At the time they said the wait would be 2 years. Currently filling in the referral form for my dd5, we've been told that'll be 2.5 years if they accept the referral. This is in Somerset. Can't really afford to go private and they are very anti private round here. My dad, in Worcestershire, is being fast tracked through a "pick your own provider" policy, it's only been a few months so far for him and he's quite a way through the process. We all obviously need to move to Worcestershire!

This sounds like Right To Choose, which is applicable throughout England - not just in Worcestershire! This website has some useful information: https://adhduk.co.uk/right-to-choose/

Goldengamer · 29/01/2025 21:37

Referred by my GP 18 months ago after years of counselling for anxiety and depression , the psychologist picked up on it . Then my daughter being late diagnosed at 27 . We are so similar too. Not heard a dicky bird

AuADHD · 29/01/2025 21:39

It's worth asking your GP to refer you under the Right to Choose where they refer you to a private provider but financed by the NHS. I think it's only in England though. I'd been on the autism waiting list for over 3 years and kept being told it would be another 15 months. I went back to my GP with the completed questionnaires from the Right to Choose website and from getting my hello we've received your referral letter to appointment is 3 months. That's for both autism and ADHD. I get the outcome for the ADHD a week or so after the appointment and have a telephone appointment booked in for that. They booked them in at the same time. I'm very worried they'll tell me I don't have either and then I'll be back wondering what is wrong with me and why I'm not "normal". When I looked into both autism and ADHD my life suddenly made sense. 40 odd years of feeling like I'm failing at being a daughter, a sister, a friend, a niece, a mother, a granddaughter. Always different and not understood.

I hope you all get some answers and although there's no cure, I hope you find strategies to help because it's hard being an outlier in a society that's not geared up for people like us.

Overthebow · 29/01/2025 21:40

I’ve just had my diagnoses. Had an ASD diagnosis a few years ago and now been diagnosed ADHD too.

Riversidegirl · 29/01/2025 21:47

MsTada · 29/01/2025 21:32

This sounds like Right To Choose, which is applicable throughout England - not just in Worcestershire! This website has some useful information: https://adhduk.co.uk/right-to-choose/

I was just going to post simillar. I wonder if anyone has been successful using this?

legalseagull · 29/01/2025 21:49

Just after Christmas a referral was made for DD via right to choose. She has an assessment booked for next week! I couldn't believe it.

MsGoodenough · 29/01/2025 21:53

I've been referred to Psychiatry UK via Right to Choose but waiting list still a year.

peachystormy · 29/01/2025 22:29

Can't even get a referral it's a joke!! (Been seen privately and had it confirmed) GP knows this and still won't do anything

Octaviathethird · 30/01/2025 00:40

MsTada · 29/01/2025 21:32

This sounds like Right To Choose, which is applicable throughout England - not just in Worcestershire! This website has some useful information: https://adhduk.co.uk/right-to-choose/

Thank you, I will look into it.

CatDogBirdPig · 30/01/2025 07:23

I had been on the waiting list for 3 years before my appointment came through, I first had to complete self and observer assessments, then got a two hr zoom appointment and 2 months after that my 2.5 hr face fo face appointment which ran over so another hr on a call.
I hate waiting now for the results.

Good luck to all those still on waiting lists I hope you don't have to wait too long!

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