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Just diagnosed with PMDD

16 replies

samebutdiff · 02/12/2024 17:33

I've just been diagnosed with PMDD, I'm 32 with a 2 year old and my symptoms only started after having my DD.

I'm so angry, upset, tearful, anxious and depressed between ovulation and my period starting, as soon as it starts I feel an instant relief which is weird as I suffer with endometriosis and they are heavy and painful.

My GP thinks a combined pill is the way to go with this, has anyone been diagnosed and the pill work for them?

I take Citalopram for depression, 40mg and have been diagnosed with depression and anxiety since I was a teenager.

Can anyone share any experiences with me? I'm really hoping this works as I hate who I am during that stage of my cycle, I can't stand the sight of my poor DH who's nothing but a great husband and father, it's like I can't control my thoughts or words and I'm short, blunt and can be quite rude to him and I hate it, this is not who I am at any other time. It's really ruining my life.

OP posts:
KimMumsnet · 03/12/2024 11:46

Hi, OP. Sorry to hear you're going though this. We can see your thread hasn't received any replies as yet in AIBU, so we're going to move it to our Mental Health board now, and hopefully there'll be someone to share some solidarity with you there.

WanderingLonelyCloud · 03/12/2024 13:02

I haven’t got PMDD but I didn’t want to leave your post unanswered. Hopefully someone with experience will be along soon.

The treatment being suggested is listed on the NHS website and Mind website for PMDD. The Mind website does say it is successful for some people but not all - so you do have to try it and see how it works for you. If antidepressants, CBT and combination pill don’t result in enough of an improvement, then it would be appropriate to have a referral.

Are you managing to get enough sleep?

BallerinaFall · 03/12/2024 13:19

I was finally diagnosed with it 18 months ago - after a failed attempt on my life

I was already on 200mg sertraline, they added Quertiapine 50mg and I now take the rigevidon pill.

As i am not looking to have children, i take it every day without a break.

twice in the past 18 months I've missed a few doses brought on my luteal phase and decimated my life again.

as someone who just feels stable now most the month - i hope you find relief

HangryPeachDuck · 03/12/2024 20:54

I have pmdd. Noticed it much more after having my son but looking back I think I've had it most of my life.
I'm on the mirena coil for it and that definitely has helped me (also on antidepressants & betablockers)

Apparently it's common in women with adhd - something I need to look into as I've got quite a few traits that would line up with that!

Things that help me with pmdd is tracking my cycle - planning to bulk cook/have a big tidy etc.. on my good weeks cause on my bad weeks I have zero motivation.
Giving little reminders to my partner if I can feel myself getting a bit ragey, I'll check my tracker and usually around the same stage of my cycle. I then begrudgingly tell him it's pmdd time whilst my mind tells me he should just know this and why do I have to put all this effort in to try and be normal.
Meditation and mindfulness. Being kinder to myself and thinking what I'd say to a friend if ever I'm feeling annoyed with myself or like I've not achieved what I wanted to.

Its a complete pain in the arse but identifying it is a big step towards learning how to manage it!

Sneakybusiness · 03/12/2024 21:01

I have pmdd. I’m too old to take the pill apparently but take a low dose anti depressant instead. It’s helped a lot.

there are great threads on here about it with women who have a lot of experience dealing with it. I’d really recommend looking at them. I find searching through google much easier than searching in the mumsnet site itself.

samebutdiff · 05/12/2024 08:18

KimMumsnet · 03/12/2024 11:46

Hi, OP. Sorry to hear you're going though this. We can see your thread hasn't received any replies as yet in AIBU, so we're going to move it to our Mental Health board now, and hopefully there'll be someone to share some solidarity with you there.

Thank you! X

OP posts:
samebutdiff · 05/12/2024 08:19

WanderingLonelyCloud · 03/12/2024 13:02

I haven’t got PMDD but I didn’t want to leave your post unanswered. Hopefully someone with experience will be along soon.

The treatment being suggested is listed on the NHS website and Mind website for PMDD. The Mind website does say it is successful for some people but not all - so you do have to try it and see how it works for you. If antidepressants, CBT and combination pill don’t result in enough of an improvement, then it would be appropriate to have a referral.

Are you managing to get enough sleep?

Thanks so much, I only sleep because I'm medicated with sleeping meds due to severe sleep paralysis x

OP posts:
samebutdiff · 05/12/2024 08:20

BallerinaFall · 03/12/2024 13:19

I was finally diagnosed with it 18 months ago - after a failed attempt on my life

I was already on 200mg sertraline, they added Quertiapine 50mg and I now take the rigevidon pill.

As i am not looking to have children, i take it every day without a break.

twice in the past 18 months I've missed a few doses brought on my luteal phase and decimated my life again.

as someone who just feels stable now most the month - i hope you find relief

I'm so sorry to hear that you've been through that, I also attempted to take my own life twice in my early 20s. I'm so happy to hear that you are mostly stable now, thank you for sharing your experience x

OP posts:
samebutdiff · 05/12/2024 08:22

HangryPeachDuck · 03/12/2024 20:54

I have pmdd. Noticed it much more after having my son but looking back I think I've had it most of my life.
I'm on the mirena coil for it and that definitely has helped me (also on antidepressants & betablockers)

Apparently it's common in women with adhd - something I need to look into as I've got quite a few traits that would line up with that!

Things that help me with pmdd is tracking my cycle - planning to bulk cook/have a big tidy etc.. on my good weeks cause on my bad weeks I have zero motivation.
Giving little reminders to my partner if I can feel myself getting a bit ragey, I'll check my tracker and usually around the same stage of my cycle. I then begrudgingly tell him it's pmdd time whilst my mind tells me he should just know this and why do I have to put all this effort in to try and be normal.
Meditation and mindfulness. Being kinder to myself and thinking what I'd say to a friend if ever I'm feeling annoyed with myself or like I've not achieved what I wanted to.

Its a complete pain in the arse but identifying it is a big step towards learning how to manage it!

Thanks so much for your tips, I think meal prepping etc would really help me out and I didn't think of that.

Funny that you mention ADHD, I've thought for a long time that I may have it but the inattentive type, I'm never on a "high" with bundles of energy, but I struggle to organise day to day life, something as simple as planning to meet friends at soft play can play havoc with my thoughts and anxiety. I know the waiting lists are huge on the NHS right now and I would have to save for a couple of years to go private. ADHD also runs in my family, my sister and brother have it, as well as an uncle, my cousin and 2 of her daughters.

Thank you x

OP posts:
samebutdiff · 05/12/2024 08:23

Sneakybusiness · 03/12/2024 21:01

I have pmdd. I’m too old to take the pill apparently but take a low dose anti depressant instead. It’s helped a lot.

there are great threads on here about it with women who have a lot of experience dealing with it. I’d really recommend looking at them. I find searching through google much easier than searching in the mumsnet site itself.

Thank you! I always google whatever subject I want then "Mumsnet" on the end instead of trying to search on here lol x

OP posts:
sociallydistained · 05/12/2024 08:24

I think I have the OP and am particularly struggling right now. I have a 2 year old too and little help and I just feel he deserves so much better than me 😭
Your post might be the sign I needed to go to the GP

BallerinaFall · 05/12/2024 21:55

I am also neurodiverse audhd and there is a study I found saying that perimenppause or after birth etc cam often affect everything - its called when my autism broke

It's interesting even if you don't have autism as it's about pmdd/hormones etc

Windy1234 · 05/12/2024 22:09

No advise but the latest series of MAFS uk has a girl suffering with this and raises awareness of it

Touty · 05/12/2024 22:15

I had this but I’m post menopause now. The combined pill made things a lot worse for me due to progesterone intolerance.

Austinj · 09/12/2024 07:08

I've just been diagnosed too and I feel so overwhelmed I kind of thought I'd be relieved when I knew but I don't. One thing my doctor has referred me for is talking therapies so that may be something to consider too

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