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The only reason I’m not ending my life is because of my little boy

41 replies

Anonletters · 06/11/2024 02:03

I’ve been wanting to put into words what has been happening over the past year but have struggled to really know how to word it. All I know right now is that I am heavily suicidal and don’t know what to do anymore.

The last year and 6 months has flown by, and I don’t mean in the sense that 2024 seems to have come and gone, but that I really am struggling to comprehend how it is November 2024 when I have next to no recollection of most of this year up to Summer 2023.

This is a long one and I understand that I might face backlash from this, but putting it into writing I think is the best thing I can do.

I was diagnosed with bipolar disorder 10 years ago and am now 30. However bar episodes it’s something I’ve managed with the right meds. In the same year I had a near death experience due to medical negligence. After it happened I suppressed everything and just put on this big positive face and blocked out what is probably one of the most traumatising things I’ve been through. I’ve always done the same thing with trauma, or make jokes or bat things off because I cannot face it.

Not long after, I developed OCD which got progressively worse over the years and though I haven’t been sectioned I’ve been under the crisis team 6 times due to it.

I got pregnant in 2019 and honestly pregnancy was amazing, my mental health was the best it had ever been, I was looked after by the perinatal mental health team and was told there was an increased risk of PND after birth.

After birth I did develop PND and postnatal OCD which was mainly intrusive thoughts which were so triggering it ruined my experience of motherhood.

Anyway to try to keep a long story short. By the end of 2022 my OCD was really bad and I went back under the crisis team and had my meds reviewed and was started on a med that is less resistant to OCD. And honestly I thought it had changed my life! The thoughts were lessened, I could get through the day without panic attacks. I was enjoying being a mum again though have lived with so much mum guilt for not being the mum I had wanted to be. I am lucky to have the most amazing partner and father to our child who has been my biggest support.

In Summer 2023 things started to spiral out of control but I didn’t know it at the time, if that makes any sense?

I started feeling physically unwell in myself and became convinced something was really wrong and that I was going to die and my son, who is autistic with GDD and is non verbal, would have no mum. I kept panicking about what he would do without me and just had this thing in my head telling me that I needed to find out what was wrong with me so that it could be ‘caught’.

I don’t want the story to go on and on so I’m trying to keep it as short as I can.

Basically, I ended up on the phone to the doctors all the time who eventually stopped giving me appointments (I became hysterical on the phone multiple times), they would ‘randomly’ ask about my mental health while on the phone and I would get upset saying they weren’t believing me. and then I started going to A&E, not just to one but to three in my area. It makes me feel embarrassed and angry at myself because I know this is the NHS, but I truly don’t think I was in my right mind.

It got worse and worse until I was hysterical at A&E, receptionists would say ‘you’re here all the time’, I begged for help multiple times to be told there was nothing wrong, and I just didn’t believe anyone and convinced myself it was medical negligence.

I don’t recall a lot of it and I don’t remember many specific visits or conversations with A&E doctors. I went so often and I was in hysterics most of the time because I truly thought I could die at any point.

The last time was in July of this year. And it only stopped after I got a letter that month from one of the hospitals warning me of my behaviour because I had been absolutely hysterical and not fair on other patients, as well as being told I had attended A&E 38 times in 2024 alone.

I was so confused and had little recollection of this specific event in the letter. It took me three days to remember what had happened - that I had hysterically started crying in the waiting room because I was desperate for help because I thought I was going to die. I hadn’t thought about this at all because from my perspective at that time - and in that headspace - I was just a patient begging for help. In reality I was a hysterical person convinced of something that wasn’t going to happen refusing to listen to anyone.

During this time, because this is already so long: I also became convinced I had been emotionally abused by my mum, and cut off my parents for months due to this. I convinced myself they hated me and no one else could see this.

I’ve got myself into a ridiculously bad financial position where I am in a serious amount of debt and it’s got so bad I’m getting letters and calls daily.

I have been trying to work throughout this (I did have a successful business) but I severely let myself down again and again to the point this started going badly downhill. I’m getting calls and letters and defaults left right and centre and I don’t know how to handle any of it because I’ve just let it get so out of hand.

But back to the year going fast thing - I have barely any recollection of the events that have taken place over the last 18 months and I remember things differently to how other people do. My memory is also getting progressively worse in the daily sense, and I am spending most of my nights crying when my partner goes to bed.

I feel like my life has got out of control and I don’t know where to go from here. I am so angry at myself and embarrassed and disappointed and just scared. I feel like I don’t know my own head anymore. There’s even been occasions where I’ve been paranoid about my partner or people wanting to hurt me even though it’s not true.

I have been at the point where I just want to end my life and have had serious thoughts and made serious plans. But I know I cannot do it to my beautiful little boy who even though deserves so much more than me loves me so much. I cannot imagine how he would be, all I can think of is him not being able to say that he misses his mummy or wonders why I’m not there anymore. Even writing that I’m sobbing.

But I am miserable and scared and just so, so burnt out. My head is everywhere, I don’t trust my head, and I truly don’t know what the fuck has happened.

I’ve not had my meds reviewed since the change in 2022. I kept missing appointments and they discharged me. After breaking down to the mental health nurse at my GP (she called me for an annual wellbeing check) they’ve referred me back to the CMHT and I see the psychiatrist on the 11th.

I don’t know why I’m writing this. Even now I haven’t got half of what is in my head out on here because I can’t process it everything is so jumbled.

I just don’t know what has happened to me over the last year and a half, I have barely any memory of 2024 as a whole, I’m ruined financially, and I just feel like I’ve totally lost it.

OP posts:
Anonletters · 06/11/2024 02:05

I also wanted to say that on many occasions when I was sat outside or in the car or in quiet areas I would hear faint baby cries that nobody else could hear.

OP posts:
username7891 · 06/11/2024 02:07

Phone the National Debtline regarding your debts. There may be something you can do about them.

If you're in crisis you can call NHS Direct option 2 and speak to the mental health team.

BetterInColour · 06/11/2024 02:10

Poor you, OP. It sounds like you have had a terrible time. Your behaviour is a result of your illness and not your fault. Keep the appointment on the 11th for sure, and do what the poster above suggests if you feel in crisis tonight. You are not to blame for any of this, you are ill and need much more help than you have been getting.

stormee · 06/11/2024 02:17

38 times at A and E and they didn't review your meds? 😭 There's got to be better medication for you that will help x

Cakeandcoffee93 · 06/11/2024 02:19

Hello,
you sound like me actually, a few years ago, when I was around 23.
i think what “cured me” and made me fix my brain, was reading this book… it’s called panicking about panic. It’s on Amazon actually and it’s incredible. Once I realised I had this bad form of anxiety it helped me stop being so paranoid and now I know when I get a new symptom of it, just to follow the steps in the book.

in the midst of panic attacks; when you are hysterical, remembering them because your so overwhelmed with adrenaline is so hard afterwards.
i also went through a lot with my health and was constantly fatigued, my brain was wired.
the fact is you don’t want to leave your son. I have a daughter to and she’s 5. There’s times when I had horrendous intrusive thoughts when she was a baby. Also I get the baby crying thing… when I’m mega stressed I can hear whispers … it’s weird what your brain can do. I shrug it off now and weirdly it goes away. If I give attention to it and don’t distract myself it gets worse.
Do you think you are having panic attacks that are leading you to go to the hospital? And the crisis teams?
of course you are feeling suicidal, if you feel no one is listening to you. Have you had a range of intricate bloods done? You can get them done privately and your fatigue could be diet related, vitamin deficient etc
or it could be something the doctors aren’t getting, but it would come back on your results.
also, if you have bad fatigue.. I go the gym, sounds grim I know but everytime I feel like I’m needing to nap.. get up and walk through it. If you have to nap after the gym then fine ; but you’ll slowly see your fatigue go. It’s strange but it works too!
forget the past year, forget the times you are trying to remember: its done now. stop analysing and lookkng for answers. get signed up at the gym, focus on a healthy diet and keep your son at the centre of your reasoning for doing this.

Anonletters · 06/11/2024 02:20

@stormee No. I guess they just thought I was an attention seeker. They would ask what meds I’m on and I would tell them and they’d write it down. Then once sent home I wouldn’t hear anything and didn’t know how serious it was until I saw the number and received the letter. I’m so ashamed

OP posts:
Toomanyemails · 06/11/2024 02:20

This sounds so difficult OP but you've already shown so much strength just in wanting to get through it for yourself and for your little boy.

Follow the practical advice from the first poster. There is support for people whose debts are due to health issues.

Anonletters · 06/11/2024 02:21

Thank you @BetterInColour I appreciate your support. But I do blame myself because it’s the NHS.

OP posts:
BetterInColour · 06/11/2024 02:25

@Anonletters do not blame yourself. You were having multiple mental health crises and in A and E they should have called the psychiatrist to do a review and then referred you back to the GP/mental health crisis team/psychiatrist to fix your meds.

This is fixable with meds and psychiatric review and MH support in the community. Even the debts can be fixed with help from charities/Christians against poverty so you need to get stable with your MH to let you sort that out.

You were deeply traumatised by what happened and this has led you to a pattern of behaviour that is distressing for you and them.

Tonight, try to get some sleep and go to the appointment on the 11th and follow the advice to ring NHS direct above if you feel in crisis again today or tomorrow.

TofuTart · 06/11/2024 02:35

I don’t know why I’m writing this. Even now I haven’t got half of what is in my head out on here because I can’t process it everything is so jumbled

You're writing this because you care, because you feel, because you want to get better even if you don't feel emotionally like you want to get better... you know there's something more deep down.
Don't give up, these feelings pass and there are brighter days ahead.

BigManLittleDignity · 06/11/2024 03:01

Please don’t blame yourself. You have been let down by the NHS who should have been helping you. You were unwell and didn’t get the help you need.

Did you find it helpful to post it and get it out? Sometimes talking / posting online can be very cathartic.

If there is anyone in your life who is supportive, please talk to them. Having “real life” support is important as is having an outlet online - for many people.

There are various phone lines if you need to talk,
especially if you feel imminently suicidal. I know not everyone finds the Samaritans helpful but I think they offer a kind, listening ear if that’s what you might find useful.

Please be open and honest at your appointment but also try to be assertive to get the help you both deserve and need. Good luck and please be kind to yourself.

Firstimpressions · 06/11/2024 03:16

Dh & I decided to stay up to watch the elections.Thankfully we have a business so we're our own boss so no need for an early start later.

I've just read this OP. You are incredibly brave & given everything you have had thrown at you it's no wonder you feel the way you do. When you've had a 'bad' year it feels like there is one thing after the other going wrong in your life & it's hard to believe there are brighter days ahead.

It was only 3 years ago I lost my mother, my father & my mother-in-law all within 18 months & all who I loved dearly. It felt like one funeral after the other 2 of which I had to arrange. Then a few months later I got a call to say my extremely close brother dropped dead after suffering a heart attack in his early 50s. I thought my world had ended. Slowly but surely I've come to terms with the sudden losses & I now count my blessings for every day I'm alive. I went through a phase I was certain the same would happen to me as happened to my brother convincing myself I was about to drop dead & leave my DH alone & devistate my family. There were other things that happened which I won't specify but let's say it was collectively the worst phase of my life so far.

I think what I'm trying to say is you are never alone in feeling the way you do. I have never been suicidal in fact I was the opposite & just felt terrified I was about to die & leave everyone who loved & cared for me.Trauma affects everyone differently & you are perfectly justified in feeling the way you do. Nobody should judge you for your feelings but that's all they are, feelings & feelings do pass eventually even if you think it's taking forever.

I wish I could find the words to help you OP other than to say having a wonderful & supportive husband & a precious child is worth living for even when you feel you can't take any more in life. Please try your best to believe your life will get better when you receive the correct medication & support. You will get better but as my Grandmother used to say you have to believe it.

CookieofTheEmpire · 06/11/2024 03:19

OP... as far as I can see, after 38 times in A&E hysterical you should have placed under section for your own safety health and wellbeing! I really hope you can find some help
and peace very soon!

Daschund · 06/11/2024 03:29

Don't be sorry, you're ill. x

Domino20 · 06/11/2024 03:31

Anonletters · 06/11/2024 02:20

@stormee No. I guess they just thought I was an attention seeker. They would ask what meds I’m on and I would tell them and they’d write it down. Then once sent home I wouldn’t hear anything and didn’t know how serious it was until I saw the number and received the letter. I’m so ashamed

It's not on you to feel ashamed. It's absolutely unacceptable that your behaviour around repeated attendance at A&E didn't trigger extensive intervention and support for your mental health. You have been hugely let down.

Firstimpressions · 06/11/2024 03:33

CookieofTheEmpire · 06/11/2024 03:19

OP... as far as I can see, after 38 times in A&E hysterical you should have placed under section for your own safety health and wellbeing! I really hope you can find some help
and peace very soon!

Perhaps the OP in this instance could discuss the possibility of admission to an inpatient facility for some intensive care, therapy & general support. It's only a suggestion but is this something you would consider OP if you were given the opportunity.

SummertoAutumntoWinter · 06/11/2024 03:57

You poor thing. You have been massively failed. It sounds like it should have been picked up that this was mental health related and you given support but instead you were sent a warning about time wasting.

I hope it goes well with psychiatry.

You can apply to your creditors for 'breathing space'. Please call them and do that.

EvvyLannis · 06/11/2024 04:15

You aren’t well OP and it’s not your fault. Hang in there. Would your partner help you put together a letter to your GP? And put together a plan to sort out the money?
It can all be dealt with. It’s really not your fault.

Zapx · 06/11/2024 04:28

Please don’t feel ashamed, you are ill, that’s all. And no one should feel ashamed of being ill.

Can I recommend https://capuk.org/ they are really great at helping people with debt and recommended by Martin Lewis.

Help is out there OP, and you’re so brave. It’s great you have an appointment on the 11th as you’ll be able to have a proper conversation about medication. Please be very honest about how you’ve been feeling, I feel like they must be able to do a better job with the medication than your current situation. All the best with your LO.

Home

3 in 10 children in the UK live in poverty*

https://capuk.org

Aimtodobetter · 06/11/2024 05:28

I am so sorry you've had such a terrible time recently and haven't been able to get the help you need yet - but please keep seeking it. Eventually you will be able to get the right sort of help - mental health is really complicated sometimes but I have friends who have been able to work through it and thank god for their children who get the benefit of their loving mother around. I'm sure for all those friends there were times they weren't their best selves even with their own children as they struggled in the dark days (even without mental health issues being a mother doesn't mean you are perfect) - but I can tell you that their kids adore them and have amazing relationships with them now. Hang on in there.

Touty · 06/11/2024 06:01

You said that your mental health was good when you were pregnant. Is there a chance that your mental health problems could be linked to hormones and your menstruation cycle? Do you feel that things are much worse around your cycle? Could this be severe PMS or even PMDD?

Cloouudnine · 06/11/2024 06:03

Do you have some help with your little boy? He is very young and vulnerable. Could you stay with family until your meds are working and you have found a plan to sort out the debt. The debt alone would make me feel desperate without all the other problems, so get help with that as a priority.

Anonletters · 06/11/2024 06:07

@Cloouudnine yes, my partner is a stay at home dad & we have nursery + my parents & sister!

OP posts:
Laptoppie · 06/11/2024 06:10

It's because you're poorly OP, its sad that the hospitals didn't pick up on the fact that whilst you don't have a physical illness they can treat, it's evident your mental health was spiralling. That's why I don't get people feeling bad for the NHS, it fails us all of the time.

Hope the appointment on the 11th goes well, make sure to be honest about your very worst days as well as how you feel on the day.

Cornishcockleshells · 06/11/2024 06:27

Op you are struggling terribly, and should have had much better care.

I assume you are now back in touch with your parents? Try and gather as much support as possible.

You have your appointment on the 11th, it’s only a few days away. Hold tight. Tell them you can hear baby cries when you are alone. This is very important information as it sounds like psychosis to me, They will be able to successfully treat you op, you shouldn’t have to live like this, but it sounds like you now have an appointment and you will hopefully be given more help.

Call 116123 any time, they are there day and night,