Individual funding for trauma therapy

[Mhquest]

I’ve been assessed by Khiron clinics as needing 1-4 months of treatment residential to begin with 24/7 for severe trauma and mental health issues. I’m waiting on a care plan to send to my gp but I’m wondering if this is a remote possibility in terms of funding. Circs are fairly dire and family in crisis and outcome has been very difficult. Has anyone had experience of this kind of funding and how best to help myself?

Who assessed you, one of their clinicians? I want to be honest but I seriously doubt you can get nhs funding for a private clinic from diagnosis by an in house assessment as they are a for profit organisation who has it in their best interests to suggest expensive treatment. You can get private facilities funded by the nhs but you will need to be referred by the nhs to them. In patient treatment is very rare, even in crisis I know from personal experience they tend to discharge to the community with daily visits.

I hope you get the help you need but the care plan is what they will be going by rather than a private provider assessment.

I don't even mind what and where but I've been begging for help for a year and lost the ability to keep fighting and chasing and following it up with everything going on. No one wants to know or help and it has led me to rock bottom. Not coping at all. Triggered by everything and at total loss. GP referred so many times, rang crisis, SS no help. SAFE stopped responding. I have no more energy to keep trying. I need joined up help and have a private GP letter and waiting on report.

Clinical psychologist assessed

I would rather not be inpatient but I need consistent support that doesn't mean me trying to join the dots as I can't anymore

You can't come to the NHS with a 'diagnosis' from a profit seeking private clinic as evidence they should fund such treatment. If that was the case then anyone who wanted private treatment would be granted it at the NHS's expense. Not going to happen whatsoever.
You need to be assessed by an NHS psychiatrist. Press for that via your GP.
If you want that private treatment you'll need to pay for it yourself I'm afraid.

My GP said it months and months ago. And so have two other medics. My private psychiatrist whom I've never met hasn't put it in a doc even tho it's ducking obvious. All my symptoms are clear. And everyone agrees.

I agree that it is an extremely unlikely that the NHS will fund your private treatment as the NHS MH services are so overstretched that only the most severe cases can be treated.
If you don’t have PMI then you will either have to pay for the treatment yourself or take your chances with the dire NHS unfortunately.
It is so terrible that people like you are being left to suffer in such distress.

I don't know what else to do. Every referral comes back asking me for 101 forms and letters and I don't have the energy to do any of it. I just don't reply and so more time passes and I just get worse and no one to help. I can't eat much anymore I can't chew. It's too much eating whole food. Just trying to act normal for my children is an effort. I feel so low and tired and losing faith in myself to make good decisions or even if I'm well enough to be around my children. My husband (separated) is here but there's no one to talk to or help me. Or offer me any kind of emotional support. I just want a hug and to not feel so frightened.

So sorry you are going through such a difficult time OP. If things are getting worse then reach out to the crisis team again.
Also, keep posting on here as there are lots of kind folk who can offer help and support.

I called them a month or more ago and spoke to someone for an hour and was supposed to have a home visit which I never got or heard anything about. Just a decline I think. I can't keep going over and over what has happened it's too much. Every time I have to explain my situation again is another push further down and it leaves me worse

Evening.
We're just bobbing on here to say that we're so sorry to hear you're going through this, OP.
We hope you don't mind, but when these threads are flagged to us we like to link to our web-guides, which we hope may be helpful. If you'd like to, please do feel free to take a look at our https://www.mumsnet.com/i/mental-health-webguide page.
Very best wishes from all at MNHQ

This sounds really difficult. I have severe MH issues so know how hard it is. Has your gp referred you to community mental health? That would be a start as you would hopefully get a bit of support and access to a psychiatrist. Then they can come up with a care plan but be aware that everything takes a long, long time. I’ve been in hospital many times, often sectioned, and I have to say that inpatient stays are very difficult.

Maybe ring back and explain that you were promised a home visit a month ago and that things have got even worse since then?
I understand that it is incredibly hard to advocate for yourself when you feel so low but unfortunately you will get overlooked if you don’t contact them. That isn’t a reflection on your level of need but on the shortage of MH resources.
It is disgusting how poor the NHS MH services are atm.

I don't want to be inpatient I think being separated from my children would send me into a worse anxious state than I am now. I just want help. I've been referred three times

https://www.pohwer.net/pages/category/in-your-area

Could an advocacy service help you with all the forms?

Are you able to pay for a course of EMDR yourself if you feel that inpatient treatment isn’t needed? That would obviously be a lot cheaper than an inpatient stay and can be a really effective treatment for trauma.

I'll try to call someone on Monday. Even navigating the gp online shit makes my brain hurt and I can't do it. I've missed smear tests and gynae applications I need to go to. I can't change my bed linen and my room is a tip. I keep on top of my children's needs and that's about as much as I can do. I'm frightened in the house and I'm frightened when I go out. I'm too ashamed to talk to people when so many people are avoiding me because I'm visibly unwell. I don't know how to be. Everything feels very unsafe.

I did Edmr two years ago when I first separated and it made me a lot worse. I listened to a ptsd podcast earlier and it triggered me and feeling huge waves of guilt and pain.

It's not entirely impossible to get funding , I was told in was an option. Have you applied for pip ? That could give you extra cash to help pay for therapy. Feel free to message me , I don't want to share too much on here as it's outing. I've been in a similar situation and Im a few years down the line now.

I sympathise. I suffer severe anxiety and don’t leave my home, it’s a very lonely place to be. You can call 111 and select the MH option for support? Might be worth doing. Also you can text SHOUT or call or email the Samaritans. They’ve been really supportive to me. Are you on any medication?

I'm on meds for adhd but came off SSRI recently and that's almost certainly not helping but when I tried to take it on one day I thought I was going to die from panic attacks constantly. I'm too scared to do anything else. I need something I know. Had a pip form ages ago. Looked at it and did nothing else. Same LWCRA or whatever it is. Can't hold a conversation let alone a form. Talking on phone about it all is agony and not worth it when I'll have to redo it and the mental gymnastics is just beyond me. But I'm going to have to

Haven't bothered with helplines they just send you more links to look at. I can't do it

You could go to citizens advice to get help to fill out the form and for someone to be with you for your assessment. It's not a very nice process but if you can get it can make a big difference

Anyone you ask for help just asks you for millions of hurdles or sends you infinite links. It's like the least reasonable or possible thing for someone who is not holding it together to do. I need someone to sit next to me and talk to me and no one will do that in our fucking remote control universe

I had trouble with the forms but I just sent in copies of all my consultants letters and crisis team reviews as evidence and was granted PIP on the basis of that. My phone assessment was only 15 minutes so I think they do take into account that the process is difficult when struggling with MH issues.