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PIP Not Renewed

55 replies

Rockhopper81 · 28/02/2024 11:52

Not sure if someone can offer any advice or just support whilst I try and sort this.

I was originally awarded PIP - standard rate for daily living and mobility components - in January 2018. I am autistic, and have depression and anxiety as well. I was told at the assessment that they recommended review would be at least 5 years because 'autism doesn't go away'.

I had a letter last year saying the award was extended by a year because of Covid backlogs, so I had my review (via telephone) at the beginning of the month.

I've received a letter today saying my award has been ended from February 20th, as my needs have changed (they haven't).

I'm in a bit of a state right now - I get disability premium on my ESA (single person) because I was awarded PIP, so my ESA will now go down too. To say this has added to my difficulties would be an understatement.

I know I need to ask for a mandatory reconsideration first. I don't have 'medical professional letters' to add in - adult support for ASD isn't great at best, plus I would be considered 'high functioning' (hate that term), so wouldn't have a worker anyway.

I'm petrified it's all going to go wrong and I'm going to end up completely in the shite here. The assessor was pleasant enough, but she had a thick overseas accent, so I struggled to understand her at times (although the letter says I was fine with understanding). It also states I didn't need support from a third party, but my mum was there and the call was on speakerphone - which I said - and my mum was helping, but trying not to be heard (she didn't want to appear rude).

I'm hoping someone can offer some light at the end of the tunnel that I can get this sorted - I'm panicking at the moment.

OP posts:
Scutterbug · 14/11/2024 21:25

That’s great news. I’m awaiting my PIP renewal. I am so worried I won’t get it this time.

Smokeysgirl · 18/11/2024 22:36

That's great news, well done for being brave and getting the original decision overturned, it can't have been easy for you. Hope you can relax a bit now!

LadyKenya · 18/11/2024 22:59

Good for you for persevering. They probably hope that people will just not bother, or have the energy to challenge a decision.

SabreIsMyFave · 18/11/2024 23:03

Rockhopper81 · 14/11/2024 20:02

Just to update this thread - I finally had my tribunal and was successful, standard rate daily living and mobility, like I had before, awarded for 5 years.

It's been a long 9 months, but got there in the end. It's been a really stressful process, and I honestly think there's not a lot of consideration given to how it all affects people applying, but it fortunately 'went my way' in the end.

Thanks again for all the support on this thread. Smile

Jennifer Aniston Friends GIF by TV Land Classic

Woo hoo! Nice one @Rockhopper81 💖 I am soooo pleased for you.

Also absolutely furious that you had to go through all this shit.

At least you can relax a bit now, and enjoy Christmas! 😘

SabreIsMyFave · 18/11/2024 23:03

Scutterbug · 14/11/2024 21:25

That’s great news. I’m awaiting my PIP renewal. I am so worried I won’t get it this time.

Fingers crossed for you. 😘:

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