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What's the point of coming off sertraline

7 replies

peebles32 · 12/09/2023 10:05

What's the point?
I have been on sertraline for 12 years and have decided I want to come off them. I don't know why. Just feel like I should. I want to feel 'me' without them. I have forgotten who I am.

I have managed to cut down to 50mg from 100mg over the past few months. I have had medical advice and doing this alongside GP's guidance.
Felt a little irritable, really tired and felt hot all the time.
Will taper to 25 in another month or so.
Just wondered if what is the point of coming off. Will I feel any different? Will I lose all the weight I put on?
It's easier to stay on them but would love to hear how people felt when they finally managed to get off them.

OP posts:
popandchoc · 12/09/2023 14:00

I’ve just come off completely after tapering off for last few months . Feeling rubbish at moment but have gained a load of weight so hoping will be easier to lose that .

doughnutforsakeme · 12/09/2023 15:31

I've been on sertraline for about 8 years and was stable on 50 mgs. I tried to come off it 2 years ago, as I'd been feeling fine for a couple of years and was advised that it was standard practice to try to wean off after 18 months or so of stability. I tapered my dose with doctors help and got as far as 12.5 mgs but due to agitation and poor sleep, my DH thought I was relapsing and I went back up again. I now know this was just standard withdrawal so I'm back on the tapering off train again, as I just can't live with the weight gain. It just won't shift with calorie counting and exercise. So yeah, that was my reason. I wanted to try and shed the weight and I also wanted to be me again, as opposed to a version of me. I'm now on day 14 after my very last dose of 12.5 mgs and mentally I'm ok, but the dizziness is kicking my arse. I'm determined to keep going though, as I'm clearly someone who suffers side effects, wither starting it or stopping it, even with a slow taper. I really don't want to suffer through this again.
Because I'm still in withdrawal, I can't quite comment yet on what it feels like to be sertraline-free. I have noticed one thing though. I now get choked up watching Call the Midwife and find my eyes filling up. Crying at sad or poweful moments on TV is something I haven't done in years! That feels wholesome and fresh and normal.

Good luck if you go ahead with the taper.

peebles32 · 12/09/2023 16:08

popandchoc · 12/09/2023 14:00

I’ve just come off completely after tapering off for last few months . Feeling rubbish at moment but have gained a load of weight so hoping will be easier to lose that .

It's bloody hard coming off and feels like it is easier to stay on it

OP posts:
peebles32 · 12/09/2023 16:12

doughnutforsakeme · 12/09/2023 15:31

I've been on sertraline for about 8 years and was stable on 50 mgs. I tried to come off it 2 years ago, as I'd been feeling fine for a couple of years and was advised that it was standard practice to try to wean off after 18 months or so of stability. I tapered my dose with doctors help and got as far as 12.5 mgs but due to agitation and poor sleep, my DH thought I was relapsing and I went back up again. I now know this was just standard withdrawal so I'm back on the tapering off train again, as I just can't live with the weight gain. It just won't shift with calorie counting and exercise. So yeah, that was my reason. I wanted to try and shed the weight and I also wanted to be me again, as opposed to a version of me. I'm now on day 14 after my very last dose of 12.5 mgs and mentally I'm ok, but the dizziness is kicking my arse. I'm determined to keep going though, as I'm clearly someone who suffers side effects, wither starting it or stopping it, even with a slow taper. I really don't want to suffer through this again.
Because I'm still in withdrawal, I can't quite comment yet on what it feels like to be sertraline-free. I have noticed one thing though. I now get choked up watching Call the Midwife and find my eyes filling up. Crying at sad or poweful moments on TV is something I haven't done in years! That feels wholesome and fresh and normal.

Good luck if you go ahead with the taper.

It's shit. I have just joined a Facebook group about how hard it is to come off. I have headaches, tiredness and feel rubbish. Part of me thinks I should just get on with it as long term it will be worth it.
I had to come off it cold turkey during my pregnancy 8 years ago and wish I had never gone back on it.
I am determined though to do it. I am
Also going through the menopause and may not be the best time. When is? Something else will crop up and I will have to deal with that.
I know cold turkey is not the way to go but part of me thinks it is over and done with in a few weeks.
I never make the connection with sertraline and weight gain but it seems to be the case for some people.

OP posts:
doughnutforsakeme · 12/09/2023 18:32

peebles32 · 12/09/2023 16:12

It's shit. I have just joined a Facebook group about how hard it is to come off. I have headaches, tiredness and feel rubbish. Part of me thinks I should just get on with it as long term it will be worth it.
I had to come off it cold turkey during my pregnancy 8 years ago and wish I had never gone back on it.
I am determined though to do it. I am
Also going through the menopause and may not be the best time. When is? Something else will crop up and I will have to deal with that.
I know cold turkey is not the way to go but part of me thinks it is over and done with in a few weeks.
I never make the connection with sertraline and weight gain but it seems to be the case for some people.

I agree with you 100% that it is bloody awful getting off it. I feel like I did really well, tapering from a relatively small dose of 50 mgs down to a quarter tablet, (so approx 12.5 mgs) over 2 months. I then started to take 12.5 mgs on alternate days and the dizziness, lethargy and GI disturbance started after a week, so I thought, sod it. I can't do this for another couple of months and just stopped - thinking that 3 weeks of hell might be preferable to feeling like a burst spacehopper for months. That was two weeks ago and it feels like the dizziness is probably peaking right now, as it's the worst it's been. I didn't want to risk driving today, it was that unpredictable in its onset. I've done a bit of googling and consensus is that withdrawal syndrome means an average of 2-3 weeks of hell. I have one more week of that left, potentially.

The dizziness and some mild GI issues are my only symptoms today. This time last week, I would have cheerfully re-started it, just to get some respite from the itching, tinnitus and sweating, (altho some of that might have been the heatwave). Interestingly, it's mainly been physical side effects, as emotionally I've only been a bit impatient and easily irritated.

With regards to timing for you, I started sertraline when I was perimenopausal, with just about every hormonal symptom you can have, and that sort of continued throughout. It may have helped me deal with the emotional elements, but I was still mostly a wee ball of rage a lot of the time, so maybe not! 😬. Were you to choose to avoid the evil withdrawal on top of dealing with menopause, you could potentially be committing yourself to another year or two on it, (at least). I'm interested to see what I'm like without it. I'm interested to see if I'll successfully lose weight and I'm interested to see how "unleaded" me sleeps.

popandchoc · 12/09/2023 18:40

As much as I don’t like to hear about anytime else suffering it is good to know the dizziness / headaches sound quite normal .

MistyTrains2 · 12/09/2023 21:24

I was on it - taper as slowly as you need. I bought a micro cutter on ebay. I found taking magnesium helped. Benefit wise....I would say slowly find your way back to doing things you love and enjoy, don't question where they are leading, just do (healthy) things you enjoy, you will find your way.

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