Slowly dying

[Sortmylifeout52]

That's how I feel.
Aged 52, post menopausal and feel horrific.

I have a fibroid which I think is causing me no end of bother right now. I'm in physical pain 24/7. No pain killers work.

HRT doesn't seem to work for me at all. I don't think I absorb well. Have tried every type and combination going.

I'm trying to keep going at work, but I really don't care about the place as I'm in so much pain.

I started bleeding a couple of weeks ago. Gynae faster tracked me and did a womb lining biopsy, requested bloods and an MRI of this damm fibroid. She also prescribed norethistone for bleeding. Can they make you feel grim?

I want a Hysterectomy and am wracking my brains to work out how I can afford to have one privately.

It feels as though death would be preferable. Just had enough.

Having had a hysterectomy due to fibroids 12 years ago I can tell you it's the (second) best thing I've ever done - first was laser eye surgery.

How much is a private hysterectomy in the UK? Mine was in Portugal as I live here; probably much cheaper and better care.

Between 10 and 12K in the UK.

Wow - it's about €5k here. All consultants speak good English.

Norethistone is a synthetic progesterone and I have heard bad things about it for years. Yes, it's probably making you feel terrible mentally. How long is the NHS wait for a hysterectomy?

You situation sounds hellish, I'm so sorry that the health service is not there for you when you are suffering so badly.

@AInightingale thanks.
Ive taken myself off that norethistone. I felt positively grim over the weekend, almost felt like throwing the towel in and thinking of ways to do it!

Trying to stay positive. The NHS were great when I had my breast cancer 14 years ago. But, with this, I'm struggling a lot.

Hopefully the waiting list won't be too long for a hysterectomy on the NHS. But if is, I will have do fork out the cash I guess.

That's good. If you are still on HRT, most of it contains it (the combined type which you would be on presumably) so you must be getting a hell of a dose that is outweighing any of the uplifting effects of oestrogen.

Yes, I'm on oestrogen patches and have a coil. What happened was, that due to bleeding, I was referred onto the two week pathway to be seen.

Gynae prescribed norethistone x 3 daily ( 15mg!!) to stop bleeding. I was feeling suicidal after day 3.

Have since stopped norethistone
Mood is better. Bleeding is caused by the fibroid so not worried.

Just want a hysterectomy now.

God I remember when I was younger getting prescribed a different birth control pill. Can't remember the name, but within the week, I woke at night three times with these nearly overwhelming suicidal urges. I threw them away after that and within a couple of days I felt okay again. Hormonal drugs can do awful things to us mentally. I hope you get the surgery you need soon, OP.

Just want to let you know I've read your post. Peri, fibroids, flooding, massive clots, pain, meds to stop bleeding that give you the shits, feeling uncommunicative and dangerously low mood - thar's me right now. Literally past 30mins on repeat. It's just plain horrible. Sat up in bed waiting for my insides to gush out again.

Thanks.
Ironically I asked if there were any side effects with this drug. She said " Breast tenderness " As I only have one natural breast, I didn't think anything of it.

However, as you say, the effects mentally, can be brutal!

Oh god @Angelik I'm so sorry you are having a crappy time too.

How the hell the medical profession expect us to continue functioning, is beyond me.

Fibroid issues are brutal. The associated bleeding is horrid. I have the twisting, gnawing, stabbing pain in my left side. Oh and the bastard fibroid is squishing my bowel = constipation!! WTAF is this about??

Sending gently virtual hugs and empathy .

Is your bleeding causing you to become anaemic? If it is, you should be able to get a hysterectomy on the nhs.
I am 51 and have fibroids and polyps and am on the waiting list for a hysterectomy. I have had three iron infusions over the past three years, and last years also included a blood transfusion. The last infusion actually made me feel really awful for several days after and even despite doing the second one much slower, I still felt awful for a few days.

Still sat in same position. Going to brave moving now. The constant pain and discomfort is draining. I can see my giant fibroid from the outside. I'm on smaller side physically and fibroid is "size of a baby's head" so it sticks out! Sending you virtual hugs too. I've been offered hysterectomy. Just got to wait. I'm only 47 but feel like I've aged 10 years past year.

Going to watch "sort your life out" and think about scrapping this life and starting again. I won't. I'll just reorganise the cutlery drawer or some equally pointless shit.

How are you today @Angelik
Did you get any sleep?

I'm in pain. Just trying to get dressed to go to work. Awful.

@Sortmylifeout52 started taking tranexamic acid again to slow the bleeding. This will give me the runs in a few days. I've been very self conscious all day that i've flooded (been in office). Can't even go swimming which is only sport I can do.

Has your pain subsided? How has your day been?

@Angelik I've never taken transexamic acid, but having the runs isn't great either.

Sorry the office was tough with the flooding, you absolutely shouldn't be in this position, it's not fair.

I've been on the naproxen and feel sick now. Pain a little better.

You need to start complaining to your GP and consultant.

I had a hysterectomy about 8 years ago and it took a few months of constant misdiagnosis and being fobbed off before I finally had the operation and got my life back.

For that to happen I had to get my GP to write to the hospital that the pain/bleeding/anemia were really affecting my life (ability to work, mental health) and I made a complaint to the hospital about the first consultant I had because he tried one useless 'treatment' after another and just wanted to discharge me/get me off his list.

After the complaint I saw another consultant who immediately agreed that a hysterectomy was the only solution for the issues I had (adenomyosis) because the condition had got so bad by that stage....