My mum has schizophrenia and clearly learning difficulties and autism woulD not surprise me. I have 3 children with asd and ld.
She believes she is independent but in a way she isn’t. We don’t live close by she can shop and can do her cooking etc.
however she can’t work out her money/can’t work out direct debits/no understanding of benefits. No friends at all and no support.
I tried getting her support last year in form a social worker she tells them she is fine and makes out that she helps me! (She don’t).
She moved in feb to another place owned by the same landlord. I didn’t realise she didn’t understand housing benefit (years ago she got support). I kept reminding her and she told me it was done. Few weeks ago she calls saying she is now paying everyone council tax as it’s gone up. Of course it’s because she hasn’t changed over the benefits. Now she needs uc.
Trying to get anyone to help her with it, she can’t open text messages or read them, can’t can’t see missed calls only dial out, no way could she use the internet. (This seems to be a big shock to people that people like this exist!). Obviously uc is all based on this. Tried to get her support from a charity but going there and it being busy caused her massive anxiety and she left because she couldn’t find the person who was going to be helping her. I can’t get in contact with her now and always feel the worse like something has happened and I can’t take it any more. I tried to get her moved closer through the council (I can’t move her to private as she is paranoid and will say I’m trying to steal her money etc).
after hours of phone calls I managed to get her on a waiting list for ot. (Really difficult but she needed this as evidence to say she needed to move near me and her place can’t meet her needs). What did she tell them, that she wants to be near me and help out. I bet she does but sadly she can’t. I feel so frustrated 😭. It’s literally her level of understanding. Most people would understand that they need to tell
the ot what they struggle with etc but she doesn’t. She doesn’t seem to understand any of this her benefits etc. I have had to get her to set up a direct debit and I had to
wrote it all down so she could take it
to the bank and hand it Over as she didn’t understand what it was (this is for rent). Surely there must be help
there issue is she would never ever admit to having learning needs as she thinks she is so clever 🤦🏼♀️, it’s everyone else.