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Why did nobody tell me about propranolol until recently?!

3 replies

folkybythesea · 13/11/2021 18:09

I've suffer with my mental health, specifically health anxiety, social anxiety and agoraphobia, for 25 years. I am 40, so that's well over half my life.

I'm neurodiverse, which means a lot of traditional therapies don't work with me. CBT, for example, didn't work at all - I've had four courses of it throughout my life. Psychotherapy didn't turn up any hidden demons from my past, the simple fact is that I was born different, and living in a world dominated by neurotypical people is very very stressful to me.

I've taken: venlafaxine, sertraline, citalopram, Prozac, mirtazapine, Amitriptyline, Valium, sodium valproate and pregabalin. Probably more. All prescribed at different points and am now pretty much stuck on Venlafaxine, because it's so hard to wean off of. I have just got off mirtazapine, as it wasn't having any effect and has made me dangerously obese.

A few weeks ago a new GP at my surgery prescribed me some propranolol, initially to get me through the mirtazapine withdrawal, but potentially to help with ongoing anxiety. Oh my GOD. This stuff actually works. I take a tablet before a potentially stressful situation eg the supermarket, and I might have the thought 'I don't like this, this is scary' but my body doesn't react to that. My heart doesn't race. My bowels don't contract. My head doesn't spin and my ears don't ring. So I have another thought and carry on until I hit the checkouts. Job done.

I'm elated and can see a certain degree of freedom in my future now, but I'm a bit angry - why has it taken so long to be given effective treatment for my anxiety? I've spent the last two years crippled by anxiety, it nearly cost me my marriage. I could have been given these meds years ago.

OP posts:
HelloKittySkittles · 13/11/2021 18:31

Don’t be angry, it may not have been the best thing for you at the time or it may be that it wasn’t suitable with other medication you were on.

Do you take it knowing it could give you life long tinnitus?

I failed to read the side effects I just took it, like you, happy to be free of the pounding heart and rising terror I was feeling. Like you, I thought it was life changing. Once I had been taking it for a while I also found it made me sweat. A LOT.

I’m talking sweat running down my face and dripping off my chin and having to order dress shield to stick in the armpits of my clothes. In the end the sweating caused me such terrible anxiety I did reverse titration to come off the propranolol. The tinnitus remained.

7 years on and I restated a prescription of propranolol in the middle of last year but I only take a low dose as and when I desperately, desperately need it. There are times, such as when I’m mopping the sweat off my face or my tinnitus has got louder, that I wish I hadn’t taken the dose.

I’m glad you are having such great results with it & I hope you aren’t troubled by any of the things I’ve suffered with from taking it. Hopefully it continues to be life changing and keeps enabling you to get out and about and get the best out of life. Flowers

folkybythesea · 13/11/2021 18:45

I suffer with intermittent tinnitus anyway and have not noticed any change in this, but I will keep an eye (ear?) on it.

OP posts:
Iloveallofthem · 13/11/2021 19:42

Great it works for you. That's fab 💕
For me, it makes me very dizzy and faint. I hate the stuff because it doesn't stop the mind, only slows down the physical symptoms.

I am pleased for you Op .

Hugs 💕

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