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Please can anyone help me on methods to try until we get to see camhs for OCD.

23 replies

Besidethesea82 · 23/06/2021 15:21

Hiya. 3rd time lucky to try and get to see camhs this time we are actually on the waiting list, the other 2 times we didn't get that far. We applied for camhs in year 6 first and now my ds is in year 9. He has had some cbt in year 6/7 which helped abit with generalised anxiety, we have also had a session with an ocd specialist. I honestly think that mediation is needed now as he can't switch off, can't concentrate or enjoy life fully. These are some of the things he is experiencing, if anyone has any ideas I'd love to hear from you.

  • excessive checking on his animals. For example suddenly needed to clean out the guinea pigs at 10 a clock at night or first thing in the morning. He has a fear he isn't looking after them good enough and that he is a bad person.
  • worried all the time that he will do something that will result in having to go to jail. His friend at school gave him a website, when he logged on it, it was full of erotic stories etc,he read one of them and now he is worried about whether the police will turn up. He then starts worrying about what he may have done in the past that he can't remember.
  • He says he feels guilty all the time, feels like he's a bad person and doesn't deserve happiness.
  • he says he has stopped taking risks etc just in case he does Something that will cause him to get into trouble. He won't go near girls at school just in case they brush past him and he gets accused of something.
  • checks the freezer/fridge for the cats, worried he's shut them in.
  • he says he has a feeling of doom first thing in the morning and before bed.

Really need some help 😕 he's such a kind, sensitive young man...

OP posts:
MyDcAreMarvel · 23/06/2021 15:25

This book is good, I hope you don’t have to wait too long for Camhs.

Please can anyone help me on methods to try until we get to see camhs for OCD.
Thewolvesarerunningagain · 23/06/2021 15:39

Hi OP. He definitely needs help and medication may well give him the breathing space from the OCD to help h engage with other techniques. Has his GP refused? The feeling of doom may not sit with the rest of his symptoms though and if he hasn’t had a physical examination in a while it would be a good idea to get him a check up. I know it’s not easy at the moment!

Besidethesea82 · 23/06/2021 16:08

@Thewolvesarerunningagain

Hi OP. He definitely needs help and medication may well give him the breathing space from the OCD to help h engage with other techniques. Has his GP refused? The feeling of doom may not sit with the rest of his symptoms though and if he hasn’t had a physical examination in a while it would be a good idea to get him a check up. I know it’s not easy at the moment!
Thank you. I thought the GP said that medication got children HAS to he done through camhs? I've suffered from ocd all my life too. My dd doesn't so I know its nothing I've done but think there is an hereditary factor. Does anyone know if the GP could prescribe medical? I may have to speak to them again.
OP posts:
mummymathsteacher · 23/06/2021 16:19

I have OCD, so I may not be the best person to advise. One thing I have found helpful in the past is when others help with ritual behaviour (eg. Checking of the pets) so that it takes up less time. Not a good long term strategy, but provides short term relief.

I work on grounding myself. So finding three things I can hear/see/smell etc. I also found the headspace app useful.

Ultimately, it's incredibly difficult to stop having the feelings he is having without professional help. We know we are being irrational, so explaining it doesn't actually help.

Sending you both so much love. It's a horrible disease

TeenMinusTests · 23/06/2021 16:23

Our GP was able to prescribe propranolol to our DD for anxiety, but we had to go to a private clinical psychiatrist (whilst on waiting list for CAMHS) before she could be prescribed antidepressants.

Besidethesea82 · 23/06/2021 16:39

@mummymathsteacher

I have OCD, so I may not be the best person to advise. One thing I have found helpful in the past is when others help with ritual behaviour (eg. Checking of the pets) so that it takes up less time. Not a good long term strategy, but provides short term relief.

I work on grounding myself. So finding three things I can hear/see/smell etc. I also found the headspace app useful.

Ultimately, it's incredibly difficult to stop having the feelings he is having without professional help. We know we are being irrational, so explaining it doesn't actually help.

Sending you both so much love. It's a horrible disease

It's horrible isn't it..I've suffered a lot in the past with intrusive thoughts, it's horrible. I feel his pain 💔
OP posts:
TheWatersofMarch · 23/06/2021 16:46

My Mum had OCD, checking, counting and hoarding (fear of throwing something important away). She used to be tons better away from home so she used to stay with me a bit. She also found yoga and relaxation techniques helpful. Mindfulness hadn't been invented then! All I think you can tell your lovely boy is that having good mental health is something everyone has to work to achieve, lots of people manage ocd and keep it just about in its box and he will get there in time, it will not always be this difficult. Keep reminding him that he is a good person, that you have confidence in him and that He sounds like a deeply caring young person. Good luck OP Thanks

Graphista · 23/06/2021 17:17

Another sufferer who really isn't qualified to advise as I'm bad myself and cbt has never worked for me.

Just wanted to say he is not alone and neither are you. There are ocd specific message boards/forums via ocd Uk etc might be useful

Hope he gets the support and help he needs ASAP, I wish I had as I'm sure I wouldn't be nearly as bad if I had.

Early intervention is crucial imo so keep pushing for him to get this

Good luck to you both Thanks

RoobyMyrtle · 23/06/2021 17:36

My dd and I found the Katy D'Ath videos in YouTube helpful. We also ended up paying for private treatment as NHS referral was taking too long.

Besidethesea82 · 23/06/2021 21:51

Thank you so much everyone for taking time out to message me. OCD is so misunderstood, it's very cruel. I can't believe we started trying to get help via the GP when he was in year 6 and now end of year 9 and still waiting

OP posts:
baldafrique · 23/06/2021 21:54

Your poor boy :( I had very similar OCD symptoms in childhood too. Break Free from OCD is a book for adults but I think would be fine if hes bright and you can help him with it. Best OCD self help book there is IMO (I work in mental health).

Dayrider · 23/06/2021 22:01

I’d suggest following ocd recovery on Instagram, chap that runs it is called Robert bray and he has suffered with ocd and gives amazing advice. The key is to educate yourselves first on what ocd is and how it works, it’s irrational fears and the only thing you can do to get better is to stop performing the rituals, uncomfortable as it may be, there are some books on the ocd recovery website that id recommend looking at too.
Just to add I do not know or am not affiliated with them but their Instagram and YouTube vids are great

Calmingvibrations · 23/06/2021 22:13

OCD - tools to fight back (book)
What to do when your brain gets stuck (book)
Ocduk.org (website)

When you get an assessment for CAMHS make sure you talk about the impact of these on his life - in terms of time, his mood, what it gets in the way of him doing, relationships at home.
Often when people have difficulties for a long time, it’s easy to forget how bad they are iyswim - as to some degree it seems normal.
I know you can’t stop any of the rituals (you’ll need some help to do that, or info in the books) but try not to ‘let’ him / or for him to try not to pick up any new ones. If he can resist this.
I hope he gets support and things get easier for him and you x

blueshiningsea · 23/06/2021 22:29

Hello, my DS 13 has developed terrible OCD this year so I feel your pain. I spoke to GP and we got CAHMS counselling very quickly for some reason. But it was awful. All on zoom for obvious reasons run by a CAHMS provider called Healios. The counselling based based on running through a PowerPoint presentation and DS didn’t engage at all, he didn’t want to speak about his worries and anxiety over zoom with a stranger. I could see why to be honest. So we binned CAHMS and I paid for a private counsellor (which we couldn’t really afford) which was much better but he still doesn’t really like talking to someone else which I guess is pretty usual for a teenage boy. So not sure really where we go from here 😞

motherofawhirlwind · 23/06/2021 22:44

Just to say DD got propranolol from the GP (age 11) and he did a referral to CAHMS but we went private for speed. CBT hasn't worked for her but other strategies have, I don't know the names though. Headspace Sleep Casts are magic and really help her switch off.

MuchTooTired · 23/06/2021 23:23

Fellow ocd sufferer here (although largely “cured” if that’s a thing!).

I had 6 months cbt. The best advice I can suggest for checking/rituals is to just not do them and live through the utter shit show of feelings. Work up to it if it helps, so wait 5 minutes from the urge to check, get used to the anxiety and then take longer and longer, until eventually you stop as you know you don’t need to do it. Or go cold turkey which weirdly was my preference.

I appreciate it is so easy for me to say, and hell to do. I worked on one ritual at a time until it was gone, and then moved to the next (with a lot of talking therapy and reassurance alongside it).

Rituals in many ways were easier for me to deal with, intrusive thoughts and the fear I’d hurt someone/upset them/offended them was much harder. Talking the worries through on a loop until I realised I am not bad helped alongside realising finally (and repeating to myself) that I am not responsible for other people’s feelings massively helped.

For intrusive thoughts, visualising them as my holding them as a hankie blowing in the wind, acknowledging them as weird then imagining letting go and they flutter off in the breeze away from me until they’re gone is how I cope with them now.

I honestly believed that if I said something bad without touching wood or my other rituals (saluting magpies etc), ie magical thinking. My therapist got me to say bad things and realise that i have no control over the universe. My saying for example ‘my house could be burgled’ and not saying touch wood does not mean that it will be robbed. Bad things happen, but I have zero control over most of it.

My therapist described ocd as like a motorway. My rituals and stuff were the motorway, and the ‘normal’ way was an overgrown dirt track road. The aim of the cbt was to get me to the point where my motorway was a life free of ocd, and the rituals etc were the dirt track. That really helped me to visualise it, and I think really helped me to suffer all the anxiety because I wanted the clear motorway and to live my life without ocd.

I told those closest to me that I had a massive problem, and could not cope with life. Looking back, I’d always had it but someone I adored died suddenly out of the blue, and I’d not been able to keep her safe. This was the catalyst that tipped me over the edge, as I felt like I had to say things and do things to keep people safe, but it escalated until it didn’t matter how much I did things, it didn’t make me feel better. I’m really lucky that I had so much support and was praised for the most minute progress - that really gave me such a boost that I was beating it so I’d definitely suggest praise for every tiny bit of progress, even if it’s just 5 seconds delay before fulfilling the urge and ritual.

I declined medication and put myself through utter hell without it. If that’s an option from the GP I’d really recommend it (finally gave in and had ads for pnd and anxiety, it was a game changers and can’t believe I didn’t take them for ocd).

Oooh, and anything that concentrates the mind to stop the whirring. I found adult colouring books so helpful, along with playing games on my phone. That and leisurely walks with the dogs, where I could talk to myself, cry if I needed to but tucker myself out as well.

I really do wish you all the very best for your DS, it must be awful watching your baby go through it 💐

HandforthParishCouncilClerk · 23/06/2021 23:45

I have OCD. It mainly takes the form of intrusive/irrational thoughts and over planning rather than compulsive behaviours, but things that help me are: with things like the guinea pigs, if he had a care chart that marked out what needed doing and when, he’d be able to know he was doing it ‘right’ and it takes out the worry he isn’t looking after them properly.

With the urge to check things eg the freezer (for me, it’s checking on my DS), whilst it’s nearly impossible not to do it, I try and take a minute first to ‘ground’ myself. Rather than answer the panic straight away, I take a few deep breaths, do the ‘hear, see, touch, smell’ thing others have mentioned, and recite a poem or song lyrics in my head to block out the paranoid, anxious thoughts whilst I collect myself. Only then am I allowed to go and check.

Basically, it’s not about stopping the OCD behaviours, it’s about taking away the panic from those behaviours, and this in turn strips them of their power over time.

thekewgirl · 24/06/2021 09:40

@Besidethesea82 - year 9 is about 13 yrs old? I am in Scotland so we have different year names. My 13 yr old middle son developed OCD during the last 18 months but he has contamination OCD. Anything connected to school or going out generally is viewed as being contaminated so he needs to wash everything multiple times. The amount of phone chargers we have gone through has been intense!

It definitely runs in my family. I had issues when younger and my cousin has suffered terribly and couldn't go out to work for over 10 years as she was obsessed with intrusive thoughts.

Thanks for the Instagram suggestion above! CBT isn't really working as he is only making baby steps and not tackling the big stuff. I encourage and say he is doing great but he doesn't move on further. Like a few other posters I am stuck about where to go next and I hate seeing his teenage years a bundle of anxiety. He just sits in his room in his pyjamas as that feels safe.

Would love if anyone can mention good support forums. I don't think I do the best I can for him

StarlingsDarlings · 24/06/2021 09:57

Sorry to hear about your son OP and the other children going through life with this horrible disorder. It makes me so cross that you’ve been waiting for help for so long. Help was available quickly a few years ago, before the NHS was stripped with cuts to its services.

The first step in CBT for me was to plan out a hierarchy of my fears and compulsions. Beginning with the lower rungs of the ladder, they were tackled by essentially forcing myself not to do them. So only washing my hands once instead of a dozen times. It was about logically combating the myths that OCD feeds you. I.e. what do I fear will happen if I don’t wash my hands? What is the likely percentage that will actually happen?

At some point, or maybe even from the beginning, medication may be recommended. It’s definitely not recommended to go along and join in with his rituals, but as a sufferer, this has been one of the most difficult things to cope with.

Dogoodfeelgood · 24/06/2021 11:08

Probably not directly helpful for your DS but might be helpful for you and for supporting him is the book Brain Lock by Jeffrey Shwartz. I have had OCD since I was a child and reading that book about 90% cured me. I definitely still feel anxious urges but the way that book explains what’s actually going on at a brain level really helped me to distance myself from the OCD and take control of my brain. I would highly recommend reading it if you suffer from OCD.

Besidethesea82 · 24/06/2021 12:19

Thanks so much for all the messages. I will read them all and reply at some stage, just off to work
Thanks so much everyone. Really comforting to have so many replies. You are all amazing xx

OP posts:
stopworrying2 · 25/06/2021 12:05

I too suffer from OCD I think it would be categorised as responsibility ocd. It horrific and i was just about to add a thread on to this board when I saw this this snd read through. OP I really feel for your DS and i really hope he gets some help soon
My ocd overwhelms me and and just takes me to a point where I can’t escape the thoughts in my head. As I write this I’m out with my dog sitting on a Bench with tears streaming down my face. I battle with the feeling that my actions could harm someone whether that is poisoning them through contamination of food prepared for them or by not folllowing current covid guidelines to the absolute letter, it can spiral from one small thought that no one else would think about at all and then suddenly I’m overwhelmed in a spin and my thinking becomes irrational, I question every action from the smallest thing of forgetting to wash hands when coming in to every big decision I make . I constantly seek reassurance and even when I get if it doesn’t help I just ask someone else, they must think I’m mad. My Dh snd Ds try to help but they’re just like it’s fine move on but as fellow ocd sufferers know you can’t, they just don’t get that I don’t want to be like this either ! . The not escaping this whirring mind is exhausting and prohibits being carefree which I used to be.
I’m having CBT and love talking to my counsellor but although I understand the strategies I somehow can’t seem to get them to work for me. Yoga, calm and headspace help to escape but as soon as they’re over it’s back to square one and the whirring mind. Wondering whether to consider meds now ? Bit scared they’ll make me feel flat. I’m menopausal too which doesn’t help

Besidethesea82 · 25/06/2021 13:39

@stopworrying2

I too suffer from OCD I think it would be categorised as responsibility ocd. It horrific and i was just about to add a thread on to this board when I saw this this snd read through. OP I really feel for your DS and i really hope he gets some help soon My ocd overwhelms me and and just takes me to a point where I can’t escape the thoughts in my head. As I write this I’m out with my dog sitting on a Bench with tears streaming down my face. I battle with the feeling that my actions could harm someone whether that is poisoning them through contamination of food prepared for them or by not folllowing current covid guidelines to the absolute letter, it can spiral from one small thought that no one else would think about at all and then suddenly I’m overwhelmed in a spin and my thinking becomes irrational, I question every action from the smallest thing of forgetting to wash hands when coming in to every big decision I make . I constantly seek reassurance and even when I get if it doesn’t help I just ask someone else, they must think I’m mad. My Dh snd Ds try to help but they’re just like it’s fine move on but as fellow ocd sufferers know you can’t, they just don’t get that I don’t want to be like this either ! . The not escaping this whirring mind is exhausting and prohibits being carefree which I used to be. I’m having CBT and love talking to my counsellor but although I understand the strategies I somehow can’t seem to get them to work for me. Yoga, calm and headspace help to escape but as soon as they’re over it’s back to square one and the whirring mind. Wondering whether to consider meds now ? Bit scared they’ll make me feel flat. I’m menopausal too which doesn’t help
Hi. I have also suffered like this all my life, I feel guilty that my son has inherited it from me. Your thoughts are soooo similar to mine. I'd love to talk to you via PM if you fancy it? I can totally get what you feel xx
OP posts:
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