Thanks, Crisps yes, that is really helpful, thank you.
The selfishness of putting yourself above others is incomprehensible to me, but I think my counsellor is right, to not have any idea about my own needs as a person is a bit odd.
I've been thinking about the basics - I think I'm a bit stuck at "safety needs" at Maslow's hierarchy. I lived with the threat of my child dying for years, and I coped with that really well by focusing on what he needed. I never panicked, I was always able to concentrate on him, but once he was better I had a period of about two years of peculiar anxiety. I didn't feel anxious at all, I didn't have intrusive thoughts or rumination and I didn't think my mood was low - but I'd not sleep for three days, was physically unable to settle, and startled if I heard beeping (I think that was because of the interminable beeps in HDU), and that was linked to some really very unpleasant flashbacks. GP sent me to psychiatry who said I wasn't anxious but that this is a common response to long term trauma in parents of very poorly children - you don't have time to be anxious when he isunpredictably poorly, but, once he is better then your body feels the threat
My husband is probably autistic. He was unable to manage anything hospital related - so I did it all alone. Assumptions were made about me ( I was married, able to self advocate, clean, calm, sober, organised ) because I presented as a person who had a good support network - but, I did not at all. Eventually that came to a head because I made a serious error of judgement and delayed taking my son to hospital, simply because I was trying to juggle too many balls while running on adrenaline.
I did my job, He is now well and has not got any negative memories of being unwell, which amazes me. Kids are so resilient, he only recalls getting lego and the clown doctors and time with me.
I'm no psychologist, but, I wonder if maybe having 15 years of fear, of being stuck at MAslow's safety affected my bond with my husband. He let me down, if I'm honest I'm really angry with him that he opted out of the hard stuff. I "get" that, if he's autistic, he just can't - but, the responsible thing to do would be to be assessed and he refuses to do that. So, I wonder if my self esteem is unattainable because I am in a marriage which is damaged because I'm still a bit on high alert for my son? My daughter is less of a worry, she has a diagnosis and is responding to medication and, a year on, is less vulnerable. It's been hard, but shorter lived and her trajectory of recovery is more predictable. Plus, it's going well while my son threw curve ball after curve ball.
- I wasn’t someone I had thought about often, if at all! My thoughts and feelings rarely featured in my life, it was always about everyone else.
- this makes a lot of sense. I'll have a look at the Johari Window, thank you.