Have been offline for a bit due to internet probs and family stuff.
Dp has been in hospital for 8 weeks and shows no sign of getting home anytime soon.He is still having drugs for his newly diagnosed autoimmune condition,is on 3 different intranenous antibiotics,intravenous anti fungals and shedloads of steroids.He now weighs half a kilo less than I do,a paltry 54 kg and is all skin and bone.Just getting washed exhausts him.
Dd has had her speech therapy assessment and they have suggested doing Makaton with her.The SALT seems to feel that this is the best sort of communication we will get at the moment.DD does have words though,"ca" cat "caa" car "ga" gone "gor" door "dadadada" daddy "goh" dog.Surely this can be built upon even if as dd has low muscle tone.Physio wise I have been given exercises to do to encourage her into a crawling position.This morning after the tenth time of her pitching forward onto her face poor little mite,I just sat there and cried.She can shuffle on her bottom but has no idea about crawling/standing/gettting onto knees and this is what I am trying to do.
I have now been off work for 8 weeks as dp is hospitalised.(cannot afford nursery fees,he is self employed hence no money coming in except my sick pay.Waiting for incapacity benefit).I am now on prozac but it is actually making me feel worse,I think.
The only thing keeping me sane is ds who has been a little star.Poor little guy he is only 3 and has had to endure trekking bacwards and forwards to various hospitals and therapy appointments
I just want to cry and cry.
There.Rant over.Thanks for listening.