Please or to access all these features

Mental health

Mumsnet hasn't checked the qualifications of anyone posting here. If you have medical concerns, please seek medical attention.

Has anyone experienced not being able to swallow - is it anxiety?

83 replies

CakesRus3 · 23/09/2020 09:47

I have always been a little bit uncle eating in front of people. Especially now single and dating. It rakes me a while to feel comfortable with eating out. However, I eventually overcome it. However, recently (past 6 months), I struggle to swallow my food. I have hardly eaten in the last few days as it's really bad. I feel I have lost the national sensation to swallow. It happens even when I'm not particularly nervous/anxious.

OP posts:
CakesRus3 · 24/10/2020 08:37

Hello all, so sorry for the short messages over the past couple of days. What an awful few days it was. No clue whsts in store me today. 41Tootiredtocare24 I actually felt how you did. I actually thought, I can't live like this. Hence the GP appt.
45GoldfishParade Thankyou for sharing some of your coping mechanisms. As soon as I'm able to swallow liquid form comfortable, I shall try this. Solid food is just not doable at the moment. I was able to chew a small amount and swallow after mentally allowing myself to. I will have a look at gluten free meal replacements as soon as I'm a little calmer. All this chocolate isn't good for me. I have lost 14lb in 4 weeks. I need to eat something. Well, done on eating out. I wish I could. The way I eat is far to embarrassing.
41Tootiredtocare24 I haven't told my friends. I'm very embarrassed, thinking they won't understand. However, I go back to work monday and I'm going to be in a room full of people and on the phone lots, so already thinking my mouth will be dry, especially wearing masks now. I will need to hydrate. For some reason I struggle when I have company, even more so. Not sure how to tackle that. For me, it's not the fear of choking. The fluid/content goes down. It's the command to get it down I'm struggling with. I'm a single parent so no partner/husband. I will never date again, its an awful site the way i try to swallow, not attractive. I'm sorry your husband doesn't understand. It must be difficult. Wow 5 dc's. I bet you are super busy. How do you manage to eat/drink if you haven't told anyone? I haven't researched hypnotherapy yet. The GP hasn't mentioned any therapy either. He gave me 2mg diazepam 3x daily. Yesterday it had no impact. I'm thinking I need to up it. I know it's only short term. I think what I'm worrying about is this is never going away. Even the GP said this is very difficult to manage. That is probably making it worse, me being negative. I'm going to try to be positive today.
31Zeebeezee

OP posts:
CakesRus3 · 24/10/2020 08:40

Posted too soon....
I have not tried any other medication. The diazepam is not having an affect. Not sure if I should up it. I know it's only short term.
Yes, let's keep this post going for a little support for eachother. We may feel less alone. It's also great to share what helps.
Hope you all have a lovely day.

OP posts:
Tootiredtocare24 · 24/10/2020 15:38

@Cakesrus3 honestly, don't apologise because you haven't been very active on here for a few days. You are going through a lot and writing replies is not a priority. I'm really gutted to hear that the diazepam isn't working. I know I have repeated it a few times now, but you really need to somehow force a change in the way you are thinking. I promise you, I have been where you are now and this is probably the only option you have because you have hit rock bottom and your perfectly understandable, but but not helpful, way of thinking is adding fuel to the fire. I know you are physically and mentally exhausted, but please try and find a fighting spirit inside of you. Push those negative thoughts away and tell yourself that you won't let this beat you. The more you can reduce that fear, the more chance you have of relaxing enough to let the swallowing action happen. There are a few of us on here who have been exactly where you are now and things have improved enough for us to be able to eat and drink some foods. Start off with something quite soft and chew and chew until eventually it goes down. As soon as your mind can stop focusing on what the food in your mouth is doing, it will happen naturally. I fidget a lot when I eat, esp when I feel like I'm going to be ready to swallow l, as it distracts my mind. I do fear choking, but that is not my issue at all - it's the fact that it doesn't feel like my automatic swallowing reflex is there anymore. It is of course, but somehow my conscious brain has taken over it when it shouldn't be involved in the process. Very occasionally I'll go to swallow something without thinking about it (my swallowing reflex working as it should) and my conscious brain will suddenly realise and try to stop it happening. This all happens in a split second! Your swallowing reflex is still there, but intense anxiety and overthinking is stopping it from working properly. Try to psych yourself up and each time you successfully swallow, celebrate it and let it strengthen the belief that you can improve this situation. I have to go now, but I'll reply to the rest of your message a bit later. Good luck! X

GoldfishParade · 24/10/2020 16:45

@Tootiredtocare24
You've explained it perfectly re swallowing mechanism that's exactly how it feels for me too.

@CakesRus3 maybe it will be helpful if you try and pinpoint someone you trust. Is there a person in your life, a family member, a friend, a colleague, an acquaintance even who you feel at all at ease with? The reason I'm asking is because at this stage it might be a good idea for you to open up and tell this trusted person, and practice drinking with them there next to you.

The other thing I wanted to tell you about is what the psychiatrist at the hospital told me, which is that if it became very bad, i could go in as an in patient. My face must have fell because then she reassured me and said not to worry it wasnt like being sectioned, but that it would be a week or two of sleeping and eating/drinking under supervision. I really hope (and dont think) I will get to that stage, but I went to see her when I was beyond the point where you are now. I think it would have reassured me when I was at rock bottom to have been told that, that I would have been helped. So I'm just telling you now.

It's possible that the diazepam just doesnt gel with you. Dont take more than you were prescribed. Go back to the GP and ask to try something different. For what it's worth I'm on alprozalam - actually it was for panic attacks (anyone here experience panic attacks alongside the swallowing issue?). I take it only once a day maybe twice a week, and it's a tiny dose: 0.25mg. Just telling you so you know there are a range of meds out there and not all of them work the same way for everyone.

Tootiredtocare24 · 24/10/2020 18:37

@CakesRus3 I really hope you have read my earlier comment and maybe tried eating some food. You absolutely cannot give in to this and let it win. We are proof that you can get to a more manageable place than you are now. Can you maybe get yourself signed off of work for a few weeks? The thought of drinking at work is clearly troubling you and that added pressure just makes it harder to swallow. I only ever eat or drink at home now. Luckily for me I don't work so that's not an obstacle I have to overcome, but I have lost friends over this because I wasn't honest and in the end I feel like they gave up on me for constantly turning down invitations out. I won't even try and eat out with my brothers because they're so absorbed by their own lives that they don't even notice that I have a problem. I did confide in one of my brothers as he has suffered with anxiety in the past, but even he doesn't understand how I can't override this swallowing issue. He says that he used to have something similar and would always have to have a drink with him when he ate, but he is over it now! I wish it was that simple for me but fluids also pose a problem! My dp knows so doesn't push to eat our places, and my dc just think we don't eat out because it's expensive for so many of us. I am pretty much house bound nowadays and have given up a massive part of my life because of this issue. Regardless, I still feel like I'm in a better position than I have been in the past when I literally couldn't swallow my own saliva. Please believe that things will improve for you, but understand that it is going to take a huge amount of effort on your part. Go bk to your GP and say the medication isn't working. Ask what else can be done. The trouble is that your GP hasn't been through this and doesn't understand it. I don't think they should be making you feel worse by telling you it is hard to overcome. That might be true, but it's not helping you. You need to be told that your current situation can be improved, and that is what we are here for. If you have any questions at all, please just ask away x.

@GoldfishParade I am glad that you can resonate with my descriptions of the problem. It's very hard to try and explain what is going on as it even confuses me! If you don't mind me asking, whereabouts in the UK are you? It sounds like your area has a good amount of support going on. My GP gave me a number for CBT........I looked it up and it's a charity called 'talkworks' but apparently they only deal with anxiety. I feel like this has gone way further than just anxiety so not feeling confident that they can help. It's reassuring to hear that you have been given some better support and you genuinely feel like they can help you if you need it. Towards the end of the summer last year I had my very first panic attack. It was horrendous! From that very moment I lived in fear of having another and I literally couldn't get through the day without becoming massively overwhelmed by absolutely everything. I somehow developed a phobia of walking up the stairs in my house, as it had led to a panic attack, and I felt like I was going crazy. I took propranolol for a few days to reduce the adrenaline symptoms and I read a self-help book called 'Dare' which helped massively. I'm still too scared to get out of breath as it reminds me of a panic attack, and therefore causes a panic attack. I don't know what is going on in my head - it's like my own head has turned against me and is determined to destroy me in some way! If you don't mind me asking, what tends to triggers your panic attacks? Do you have general anxiety as well?

Sending everyone on here lots of love x

GoldfishParade · 24/10/2020 22:59

@Tootiredtocare24
I'm not in the UK anymore, so the system I'm going through will be different to yours. In the UK I notice they seem to be dead set on CBT as a solution to everything. I'm sure CBT can be great, but I cant help but suspect that one of the reasons it's so popular over there is because it's cheap, and it leaves you to basically work on yourself without too much input from the system. I love the concept of the NHS but sometimes it feels like they cut corners to save funds.

I'm so sorry to hear about your panic attacks and the effect they've had on the way you live. Its definitely interesting to note that we both have this crossover between swallowing and the panic attacks. Can I ask whether you have any other MH issues? Because I don't. Theres the swallowing and the panic, but other than that no depression, no lack of confidence, no social or everyday anxiety. It's the strangest thing. It's as if it's all very physical with me - the swallowing feels physical, the panic attacks feel physical, and yet my head is okay. I'm a pretty confident person. I dont understand it.

One thing I noticed (after a lot of reflection I came to the conclusion) is that both my issues are somewhat rooted in a similar thing now. They both seem to relate back to a feeling that my body is vulnerable. Swallowing = I'm scared I will choke, panic attacks = I'm scared I will collapse. It's like I seem to have lost faith in my physical integrity for some reason.

They're also both linked in how they are eased: I can swallow more easily if I have people around me, and I dont have panic attacks when I am around people. It's almost as if people reassure me. If I choke, someone can stop me choking somehow. If I collapse, someone can call an ambulance. Both those things are so unlikely to happen, but somehow my brain has become wired to think like that. I feel a bit insane!

It's gotten to the point now where I cant eat alone, and I dont want to live alone either. In some ways my issues have had the opposite effect compared to you: they have actually brought me out a bit, I know actively seek people out as a comforting presence, whereas before I was a little more antisocial.

Dont know if you have had any success on reflecting on the links in your case, but I would be interested in hearing your thoughts if you have :)

Tonight I managed to eat a tin of mac and cheese (dont judge me 😂). Its soft and saucey which I find helpful, however I was gulping water with every bite. :-/

Tomorrow I have a bit of a nightmare situation: have to go around to my MILs house for dinner. My plan is to fake wisdom tooth ache if anyone comments on my picking. It's awful to have to basically lie like this!!!

Keep talking guys. I think it will do us good. Maybe one day we can all meet up for a swallowphobic dinner in a restaurant somewhere. I'm only half joking - it could actually be quite a laugh. Imagine the waiters face. "Was everything alright for you guys?". I vote tapas!!
Xxx

GoldfishParade · 24/10/2020 22:59

Woah! Sorry for the epic post! It just feels good to share with people who understand. Lots of love to you all x

CakesRus3 · 25/10/2020 08:13

38Tootiredtocare24 thankyou and you are so kind. You said....'As soon as your mind can stop focusing on what the food in your mouth is doing, it will happen naturally.'
I don't know how?! I try reading but so much thought has to go into swallowing, it won't happen naturally. I tried yesterday. I chew and chew, it just won't. It's not happening naturally so I have to think about it to do it. I'm only just managing fluid based foods. I'm trying to stay positive hearing you and others here have been where I am. You are right, and I will try, thankyou for being here. Thankyou all, it's so lonely when you are struggling with this. I'm feeling a little upset this morning because I want to be but it's constantly there with me. I am actually praying every night and I'm not even religious. I would do anything for life to go back to how it was. I actually feel i don't want to wake up to my day. I don't know how this happened. It's so difficult to as you know how your day is going to be. I promise to try.
I'm so sorry to hear about your panic attacks, they're frightening. Reading your post, I wonder if being in a state of panic (like our nervous system is on steroids) most of the time, this is tightening muscles in our throat/tongue? I am just trying to understand it. I have been off work with anxiety due to a few things that led to me freezing. I'm going back Monday. Sending you lots of love. I'm glad you have found support here too.
59GoldfishParade I'm glad you have also found support here. Thankyou for your support also. It means so much. It can feel quite lonely. I'm glad you find things easier when you are with people. I hope to find such comfort one day. Im sorry to hear about your panic attacks. That must be frightening. There has to be a link. I do wonder if its being in a state of anxious thoughts? I do not suffer with any MH problems either. Anxiety is new to me. I have experienced stress through work but not combined with anxiety. I had a panic in asda not so long back. It's frightening. I felt like I was in a constant feeling of overwhelm for weeks. I'm thinking if I should start a medication to calm my nervous system?! I hope you have a lovely day today. I hope I reach a point of eating out, I'd be happy to meet up if this was doable. Until then, let's continue to share our experiences, highs and lows. I'm sorry if mine are all lows at the moment. I hope soon I can bring something positive like you all have for me. Sending lots of love. Thankyou again all.

OP posts:
Tootiredtocare24 · 26/10/2020 14:24

Good afternoon lovely ladies, I hope you are both ok. Sorry that I didn't manage to reply yesterday.

@GoldfishParade Thank you for your long comment, I do love getting to know more about how other people are managing to live with this and how they think they have ended up in this position.
I have always been someone who cares too much what other people think. I try to be 'perfect' in everything I do & I set myself up for failure because my expectations are too high. I have issues with the way I view my face and body and I go to great lengths to hide away some of my worst 'flaws'. I have read into this and come back with body dismorphia and perfectionism, both MH conditions and linked to anxiety/panic attacks/OCD. I am a massive over-thinker and I always tend to focus on the worst-case scenario. My brain becomes very obsessive over things which is usually not helpful! I wouldn't say I suffered with anxiety, not proper anxiety with symptoms, until August 2019. Before then I'd always worry about things, and I'd feel stressed quite often, but that was just how I rolled and it wasn't a problem. In August I had my first panic attack and that started the vicious circle for me. I didn't initially know what it was, but that feeling of not being able to breath scared the life out of me & I was petrified of it happening again. The following 5 days or so were the worst of my life! The anxiety I experienced is indescribable - I was hyperaware of every sound, every thought and every bodily sensation. I had panic attack after panic attack and I really felt like I had lost my mind and needed to be sectioned. I went to my GP & she prescribed propranolol to lessen the effect of adrenaline and calm me down. I only took it for a couple of days and then I stopped as I was already telling myself that the only reason I wasn't experiencing such high anxiety was because the pills were stopping me, and as soon as I stopped I'd be back to square one. I read a book called DARE (written by Barry Mcdonagh) and the anxiety and panic thing clicked into place. Over the following months the general anxiety started to ease, but I couldn't shift the bodily sensations like a racing heart, breathlessness & dizziness. I went bk to the doctor and asked if I could have a blood test to rule out a medical reason for the symptoms as I felt like my anxious mind needed reassurance. Anyway, it turned out that my iron level was scarily low and the GP wondered how I was even managing to get out of bed each day - I was almost at the stage of needing blood transfusions. I started taking iron, whilst using the the DARE method and slowly things improved. Now I feel pretty good and I don't feel like I suffer with anxiety anymore, other than when I am eating of course & occasionally breathing anxiety which I can push away easily. Even though I have the body image issues, the frustrating need to be perfect and a swallowing OCD/fear, I don't think anyone would guess as I hide it well and come across as a normal, decent, respectable human being! I think the severe anxiety and panic attacks were triggered by my low iron as I have read that it can cause psychological problems when it is as advanced as mine was. I've never suffered with depression either even thought I have been through some pretty crappy times.

I think that you could get yourself past the fear of passing out if you read the DARE book. Lots of people fear passing out, but the chances of it happening are so low that you shouldn't let that thought......and it is nothing more than a fearful thought.....make you think that you can't do something, just in case. Honestly, read the book, maybe more than once as it takes a while to sink in. I don't know what to suggest about not wanting to eat on your own as I guess there is more chance of your fear (choking with no-one around to help) happening in this case. I spend most of my day with just my 2yo dd who can't help me if I choke, so I just had to bite the bullet and make myself try. I actually prefer to eat on my own now as it takes away some of the pressure and at least I won't have an audience if I choke to death!

How did you find dinner at the MIL's? Did your wisdom tooth excuse work, or were you not asked? Is you DH supportive of your issues? I used to force myself to go to my dads when we were invited for a Sunday roast, but I found it too stressful and in the end I told him about my swallowing and he hasn't invited us since. I miss out on so much because of this! There's no shame in the mac n cheese btw 😂, it's food, it has some goodness in it and it's practise! I always go for saucy foods as they're a bit easier to manage. Are you okay with liquids then as you mentioned using water to help you get the food down? You've prob already said at some point, but there are too many comments to check back over now.

Wouldn't it be lovely if we could all meet up at some point! We'd prob have to start off with something small like coffee/tea and cake. Could you imagine us in a restaurant..........overstaying our welcome by hours and still having a substantial amount of food leftover at the end 🙈.

@CakesRus3 How did you find yesterday? Do you feel like there has been any improvement at all? Your last comment made me feel like there had maybe been a little bit of an improvement as you said about managing liquidy foods. Keep practising with those, and then maybe try some soft and saucy foods.

I would love to be able to tell you how to distract yourself when you are eating, but the truth is that I haven't found anything that works for me so I can't pass on any helpful advice. What I do, rather than distract myself, is let myself think about the swallowing, but try and reduce the anxiety associated with it. So I'll keep telling myself that I can swallow fine, that there's nothing to be scared of, that I won't choke as there is only a small amount of food etc........just reassuring words going through my head until the swallow happens. Frequently I'll push the chewed food to the back of my tongue and it just sits there at the opening of my throat, feeling like it has gone too far back for me to do anything about it. I know the only way to get rid of it is to swallow, but at that precise moment my swallowing reflex isn't working as it should. I am trying really hard to not let that feeling panic me too much as I know, from all the other times it's happened, that it will go down in the end. When it happens I'm sure I have a look of sheer panic on my face, but no-one seems to notice, even if they are looking at me!
It's all about pushing yourself to keep trying even though it feels hard. You will find that you'll do something which might make swallowing feel a bit easier/smoother, and that will become one of your go-to methods. I mentioned it before, but sometimes I will purposely fidget/move my body position to distract my brain from swallowing. So I might cross my leg over the other leg, or slide my foot on the floor, just quickly, to force my brain to think about something else. Sounds crazy but sometimes it works if I'm really over-thinking a swallow!

How you are feeling atm is completely understandable - it sounds extreme but you are grieving for the life you had before this anxiety. Your life has been turned upside down and right now you don't know if you will ever go back to the life you enjoyed, but you know you desperately want to! Please will you read the DARE book I have mentioned to see if that helps how you see your anxiety and how you are trying to deal with it. A lot of stuff in there makes sense, and there is a method to use when you are experiencing anxious thoughts/sensations and panic attacks. Some of it didn't appeal to me (eg drawing a cartoon character to represent your anxiety) but the diffusing and allowing really helped me. Seeing anxious thoughts and sensations for what they are & realising that the fear of these thoughts and bodily sensations is what keeps anxiety going is the key to overcoming it! You can buy it from amazon for less than a tenner I think.

You are right about your body being in a heightened state at the moment. Your nervous system is sensitized and I imagine it's doesn't take a lot to overwhelm you. Your nervous system can calm down and go back to normal, but it takes time. The DARE book explains all of this, and what you need to do to get it to this stage so try and read it asap. You could try an SSRI for anxiety, but does it ever really get to the root of the anxiety or does it just mask it? It doesn't teach you coping techniques so when you come off of it you'll go back to square one. That's my opinion anyway, but i'm sure it has worked for lots of other people so, if you feel like it would help you, then you should try it. Whatever you decide, be gentle on yourself and know that recovery is possible. It might not be as quick as you would like, but things will definitely get better.

I hope work has gone/is going ok for you today.

Sorry for yet another essay, I hope you two like reading! Take care xx

Tootiredtocare24 · 26/10/2020 14:33

My DD is actually 3 years old, not 2 🙄😂 x

Tootiredtocare24 · 26/10/2020 15:58

@GoldfishParade
Sorry, it's me again!! Like I didn't already give you enough to read. Having re-read your last comment, I don't think you necessarily have a fear of passing out which is what I emphasised on. What you are saying is that you feel like you need to constantly have people around you so they can help you if you choke or collapse. Anxiety has caused you to feel like this and now you have a crutch. A crutch is something you need to do, or have, to lessen the anxiety or fear that you feel. You fear being on your own because there would be no-one about to help you, so having people around you (your crutch) eradicates that fear! Definitely read the book as it might help you overcome this particular anxiety and at least then you'll know that you can comfortably be on your own if you need to be x

nixnjj · 26/10/2020 16:02

Please get it checked out. I've been fobbed off for years as its depression/anxiety am now undergoing diagnosis and various niggles now all turn out to be symptoms.

Tootiredtocare24 · 26/10/2020 17:18

@nixnjj
Do you mind me asking what condition you are undergoing diagnosis for? If you are happy to, please share a bit more of your story. Thank you.

lunar1 · 26/10/2020 17:27

I have suffered from this on and off through my life. It is absolutely worse when I'm anxious. I was sent for a videofluoscopy (I can't spell that!) a few years ago and do have a delayed swallow.

I can't eat ever without a drink next to me. I just wanted to add another voice you aren't alone.

nixnjj · 26/10/2020 17:45

I have lesions on my adrenal glands and masses on various other bit. TBH every test is leading to more issues. Im having more bloods done and then off for another scan. It's thought to be cancer but I'm hoping it's some oddness that is easily fixed with a pill.
I've suffered from clinical depression and anxiety forever but had been saying for the last few years that I felt better in my head but physical symptoms continued. Turns out adrenal glands has been pumping out adrenaline and other stuff.

CutToChase · 26/10/2020 19:53

@Tootiredtocare24
Thank you for such an insightful comment, I will reply to you in detail at some point but today was a pretty epic day and I'm knackered.

Just wanted to "log" this (😂) in case I forget.

Yesterday went to eat at in laws as planned. Turns out I didnt need the wisdom tooth excuse at all. I had two glasses of champagne and then I was golden. Eating crisps and snacks, and then we sat down for tagine. It just all went down without me even really thinking about it. Guess the champagne must have helped! My sister in law is an awful cook so I didnt eat much meat - it was really tough and tasteless. But the sauce and vegetables and couscous - I didnt even flinch.

Then came dessert, a raspberry cake thing. Again, just ate it straight down.

I honestly dont know what to think. Sometimes I'm almost as if back to normal like Sunday. Other times I'm sitting there at my kitchen table having to wash down a literally pea with a mouthful of water...

CutToChase · 26/10/2020 19:56

Whoops forgot to switch name (goldfish). I also have a great book to recommend to you will write more tonorrow x

@nixnjj that sounds awful. How long did you spend misdiagnosed? I guess this is why we keep getting sent to do bloods :-/

halloweenagain · 26/10/2020 20:25

I am doing revision for a clinical exam and distracting myself on here instead.
I wondered if you might want to consider conversion disorder, which is often found alongside anxiety.

www.mayoclinic.org/diseases-conditions/conversion-disorder/symptoms-causes/syc-20355197

Tootiredtocare24 · 27/10/2020 10:52

@lunar1
Thank you for sharing your diagnosis. I have read up on a delayed swallow and that does seem to fit with what I feel when the food just sits at the opening of my throat. In a way I'm scared to be diagnosed with something like that as there isn't anything that can be done to help is there? Do you still manage to eat most foods as long as you have a drink to hand? Do you find that the delay happens every time you go to swallow, or is it more random?

@nixnjj
I am so sorry to hear of the ordeal you are going through right now. It must be a really scary and uncertain time for you. If it does turn out to be cancer (fingers crossed it isn't) then I hope it is one they can manage long-term. How old are you? Good luck with your future scans and tests. Please keep up updated on how you are doing.

@GoldfishParade
Wow, it sounds like you made some really good progress on Sunday and actually managed to enjoy yourself! Am so happy for you! It just goes to show that when you can relax enough, things kind of slot back into place. Keep thinking back to Sunday and reminding yourself that your automatic swallowing reflex clearly does work properly and know that you can do it again. I hope you can keep the momentum going and have more and more experiences like that, but do expect bad days still and don't beat yourself up over them. If I've had a particularly troubling day swallowing wise, I go to bed and remind myself that tomorrow is a new day. I wake up and start again, leaving yesterday's experience in the past!

Anyway, I can't wait to hear more from you. Definitely do pass on the book recommendation please - knowledge is power and all that! X

@Zeebeezee
How are you getting on? In your last comment you mentioned whether propranolol could help with our swallowing issue. I took it briefly last year to help with panic attacks, but it didn't improve my swallowing at all. Propranolol works on adrenaline and lessens some of the effects it has on the body, like a rapid heartbeat, tremors, sweating etc. I was only on a low does so a higher dose may be more effective. I completely agree about Christmas - the thought of trying to manage that huge roast fills me with dread 😩. I'm glad that valium seems to work for you.

@CakesRus3
Hope you are ok. Am thinking of you! x

Tootiredtocare24 · 02/11/2020 09:26

Has it gone really quiet on here or am I not seeing comments for some reason? I hope everyone is ok.

@CakesRus3

@GoldfishParade

CakesRus3 · 02/11/2020 11:26

Good Morning 26Tootiredtocare24, thankyou for your messages and advice. I am back at work so it's been a little busy this end. I looked at the book on Amazon. I'm a little bit short on cash at the moment with Christmas coming up but have looked up so much on the net about treating anxiety. I'm a mental health nurse so know a certain amount about anxiety, cause and treatment, however I have looked at it in a very different light since experiencing it. Especially how it impacts physically and how debilitating it can be. Im always interested in learning more, so thankyou for the recommendation. As soon as i can afford it, i will definitely buy it. The diazepam did not help with the swallowing, however, I can swallow fluids now (so maybe it did). The GP thought it would be more beneficial, as it wasn't they are now investigating further. I have calmed down, no anxiety present, however still struggling with swallowing food. Meal times are quite exhausting mentally. I dread them. It's like an episode of anxiety that I have experienced has done something to me physically. What else could it possibly be? I didn't fear swallowing. It just happened. They don't seem to think there is a blockage. Anyway, we shall see. I'm trying to be positive and think, this will go away one day. It's the strangest thing.
I hope you are well? I hope you are all well.
How have you been managing? You mentioned you don't eat out anymore, do you miss it? I'm sorry if you have already said but do you eat in front of people? I haven't been eating at work. I say I'm not hungry but people are making a bit of a fuss. I can't even drink my fluids in the same room as anyone. People were commenting on my weight loss and I just said I had given up the wine (I actually have). I don't know how to manage it at work.

OP posts:
Tootiredtocare24 · 02/11/2020 13:53

Hi @CakesRus3, it's good to hear from you! Sorry if I made you feel like you had to reply straight away - I was just curious about where everyone had gone so suddenly and I thought I might not have been seeing comments for some unknown reason.

It's really good to hear that you have been managing fluids better and I hope you can now see that it is possible for this situation to improve. It just takes time and perseverance! Did your GP say what tests they will do? Getting a definitive answer on whether this is just anxiety related, or potentially something more serious, is a good idea as it'll remove that niggling doubt. It's good that you are continuing to try and eat food, but if it is causing you too much stress then maybe consider meal replacement shakes for a little while. Perhaps you could have something like porridge (fine stuff) or weetabix for breakfast, soup for lunch, a meal replacement shake for your evening meal and maybe another shake throughout the day. At least then you'll get the nutrition you need without trying to force yourself to tackle a proper meal. If the tests you have support the theory that this is anxiety related, then you can really try and push forward with the eating. I still dread all mealtimes even though my situation isn't as bad as it has been in the past.

I am okay thanks, although I am going through a slight 'set-back' at the mo. I think it started on Weds last week when I was drinking a cup of tea in bed, and I just couldn't swallow a mouthful which had already gone too far back to spit out. Straight away it panicked me and it has now caused issues with swallowing tea whenever I'm drinking it in bed! It's frustrating because me and my OH escape upstairs in the evening (when the little ones are in bed and the teenagers are occupying the living room) to watch TV with a cup of tea and chocolate. I keep persevering with trying to drink it (even though it massively elevates my stress level), but I haven't managed to finish a cup since Weds. Funny thing is that I can still drink okay when I'm downstairs, it's just in bed that I can't! So strange how our brains work!

I think your swallowing issues came about because of stress and anxiety. When we have adrenaline pumping around inside us, we are in a heightened state and we are super aware of what is going on with our body. Apparently it's very common for anxious/stressed people to start focusing on, and trying to control, automatic bodily processes, like breathing & swallowing. I think that this has happened to us, but ours has gone a step further and somehow our conscious brain has felt the need to take over swallowing. Even if we don't consciously feel anxious, our subconscious mind is still reacting to the previous fear we had and is releasing adrenaline when we eat. The adrenaline will be putting us into a heightened state and making us far too aware of what is going on inside our mouth and throat, therefore interfering with the swallowing process further.

Have you found that work is providing you with a distraction? Have your colleagues mentioned your weight loss in a concerned way, or are they practically congratulating you for losing so much so fast? If only they knew the real anguish behind the loss! Could you maybe tell them that you are feeling a bit stressed and anxious at the moment and you have lost your appetite. I lose my appetite when I'm going through a tough time. Or do you feel like you could just tell them the truth? It would take the pressure off of you and they might be supportive. I know I hide it from people, but I wouldn't say it has done me any favours as I avoid going anywhere that might involve needing to eat or drink. I do miss going out for coffees, or meals, or even just to family occasions at their houses, but for me, the guilt I feel for what my DC miss out on overrides my sadness at my non-existent social life. I eat in front of my OH and DC only, but I still don't like doing it.

Cling onto that hope that things will get better because they can and will! Even after all these years I still cling onto the hope that someday I will eat and drink normally and have my life back again.

No need to rush into replying. I know that mumsnet is working properly so I'll be more patient in future x

HitchikersGuide · 02/11/2020 21:51

This could be written by someone I know... Literally exactly the same things. Turned out to be anxiety. Or at least, when she was put on anti anxiety medication, it got better and when she came off it, it got worse again. She had always had problems eating in front of people just as you describe, and was always happier if it wasn't a 'proper' meal so tea and some chocolate would be OK but a Sunday roast wasn't for example. Then she started thinking she couldn't breathe and would also keep clearing her throat.,like a polite cough. She was in and out of hospital for about 2 years. She was absolutely adamant that she had a lung problem but as nothing could be found and she had been on anti depressant meds I think the doc just decided in desperation to go down the mental health route instead. To this day she is still saying she doesn't believe that it is anxiety but to those of us around her it was so clear. She's still not right but at least hasnt been back in hospital for a while (she used to go to A&E) and I think her problems now really stem from her disbelief that it could be anxiety which means sometimes she doesn't want to take meds. I might obviously be completely wrong as I have no medical knowledge whatsoever but I just had to say something when I saw your post. Good luck

Itsmeeloise · 02/11/2020 22:14

OP this sounds really bad. I had a few months where I couldn't swallow "automatically". I was ok with food and drink as I could make the effort to swallow. But at night, I'd get saliva pooling in my throat and would have to sit up in order to swallow.

Was diagnosed with B12 deficiency ( also had breathing problems and a bunch of other seemingly random symptoms) and the swallowing problem was resolved almost as soon as I started treatment.

Could be worth checking what blood tests your GP ran and if it included b12?

GoldfishParade · 19/11/2020 05:28

Hello all, how is everyone getting on? Dropped off the thread for a while as I had a huge workload to deal with these past few weeks.

I finally went to get my bloods done and....

They were perfect. There wasnt a single thing off about them. In fact my GP was well impressed, considering I dont eat much meat she was expecting to see that that and the swallowing showed at least some low iron levels but nope. I told her I put that down to the shakes!

So it's not physical. I was doing quite well with my swallowing and then I had a really tense day in which there was loads of shit to deal with at work, plus then my sister called in the evening and there was lots of ranting at me about something that put me on edge.

Then when I sat down to dinner that night I couldn't eat my food I was so tense. So clearly it's about tension for me.

How are you all managing? OP have things improved a little? How are the meds working for you?

I was a bit upset because my GP didnt renew my anxiety meds, instead she prescribed me some herbal stuff Sad Bit worried about how I will cope but i guess it's for the best and she doesnt want me to develop dependency.

Thinking of you guys x