Hi everyone, I hope you're all well. It feels somewhat reassuring to know that there are other people out there who have the same swallowing issues as me. Obviously it's not good that other people are suffering in the same way, but before this post I had never spoken to anyone else who knows, first-hand, how real and debilitating this 'condition' is. Is makes me feel a little less alone!
@CakesRus3 I was hoping that you might reply to my last comment and say that something had clicked and you had gone back to eating and drinking normally! Well done for sitting down with your dc's and attempting to eat a roast dinner - you should feel proud of yourself for trying because it is hard! I have reduced my portion sizes dramatically, but still put too much food on my plate so it doesn't get my kids asking questions. The annoying thing is that I want to eat all of what is on my plate, but I just can't! Have you told your friends about what is going on or do you just sit there trying to drink and hope they don't notice? You may get to the stage where you think it's not even worth attempting to go out and socialise anymore, but try not to fall into that trap like I did. Just the thought of trying to eat or drink outside of my house scares the life out of me now because I've not done it for a long time. I'm only 35 and I feel like I'm not really 'living' life anymore! Do you have a partner/husband? I have a long term partner who knows about my swallowing, but he doesn't understand it because he's never experienced it. He eats so fast......as do most of my children (I have 5, crazy I know!) and that makes me feel worse as they've finished before I've really started.
Have you researched hypnotherapy for this type of issue? My brother suggested I try it as he'd had success with it for general anxiety, but at the moment I just can't afford it. I'm also worried it won't work for me as visualisation is a fundamental part of hypnotherapy and I can't visualise images in my head. Apparently it's a real thing where some people just can't do it, and of course I would be one of those people! You should definitely give it a go if it is an option for you. Imagine if it worked, it would change your life! In the meantime, have you thought about trying some of those meal replacement drinks that GoldFishPalace recommended or are they not suitable because of your celiac disease? There will be gluten-free options out there if you wanted to give them a go?
I was just wondering, when you eat do you have all kinds of negative, fearful thoughts going through your head? Things like 'I'm not going to be able to swallow this, I'm going to choke/cough/splutter, I'm never going to eat normally again?'. I find that when I think like that, it makes it harder to swallow and when I do manage to swallow it's not a full swallow which means food sits in my throat temporarily and panics me. Now I always tell myself that I CAN swallow. I tell myself that I won't choke as I have only eaten a small amount of food and chewed it well and that if food gets stuck it will only be temporary. I was at a stage back along where I talked negatively to myself and I was just adding unnecessary 'conscious' fear to the process. Obviously our subconscious mind has already associated swallowing with fear because of our previous experiences, but you can 'feed it' new, more helpful information that swallowing isn't something to be scared of. Try really hard to change your way of thinking (even if you don't necessarily believe your new 'positive' thoughts) as it does have the power to improve the situation a little bit. Whilst chewing food, or holding a drink in your mouth, repeat over and over in your head 'I can swallow, I can swallow' until it happens. I was at a stage once when I couldn't even swallow my saliva, but I have come so far since then! Obviously I'm not even close to being recovered, & I don't think I can further improve the situation without outside help, but I am able to eat some proper food which makes a big difference. Keep me updated on how you get on x
@Dottyandbet Wow, 20 years! That is a long time to be living with this issue. I'm glad to hear that things have improved slightly for you now and I hope everyone here can get to that stage at some point. The thing that keeps the vicious circle going is the fear! Our brains are designed to protect us from things which it perceives to be dangerous, and somehow for us, swallowing has become 'dangerous'. Unlike other fears and phobias which you can just avoid, swallowing is something that we can't get away from. If we could just break the fear somehow then theoretically the problem should go away! It sounds like you have managed to do that somewhat which is amazing!
@Tish008 You are very right - this is anxiety based! For me, that anxiety has gone a step further and it is now a full-blown fear. I have become so hyperaware of the swallowing process that I cannot distract myself from the act no matter how hard I try. My GP said it is now an OCD and they are very difficult to overcome. For me, every part of eating and drinking just feels wrong! I feel like I have forgotten how to do it normally and naturally without obsessively thinking about every single step. When the food should make it's way to the back of my tongue ready for the swallowing reflex to 'take it down', it just doesn't. I'm overly sensitive to the feeling of food at the back of my tongue/sitting at the opening of my throat and I must do something I'm not aware of with my tongue to stop the food going there. Even when I force the food back, it still feels like the swallowing process doesn't happen automatically like it should! I know it's all down to me overthinking it, but I'm too far gone to be able to distract myself unfortunately.
So sorry for the essay again, I've never been one for keeping it short and sweet but I do hope that some of what I say helps others, or at least makes them feel like they're not alone because they can resonate with what I'm saying x