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Disputing eupd diagnoses due to asd

4 replies

mindgoinground12 · 06/05/2020 20:06

Hello,
Hope your all coping as well as you can in this diffcuilt time. DS 20 is not and has had a bit of breakdown and is in a mental helath unit. When he was last in they wrote he may have eupd traits which we immediately disputed as he has a asd and ptsd diagnoses. These are incredibly overlapping. On discharge and this admission they've written it as his main diagnoses. He has come across stigma and been called an attention seeker etc. I have always had some thoughts about this diagnoses as it seems to be a bit of a throw a away for those who have gone through very traumatic times and those who have the diagnoses are not treated right. But that's not the issue I have with DS with it, they have almost completely discredited his asd a diagnoses he's had since he was 7. Won't look at his hospital passports and just say he's a 'borderline' when talking to his consultant they say it's not today's discussion, evrey time, he meets the criteria and they can discuss later. I've looked at the dsm and nice guideline and it seems to say asd and eupd shouldn't be diagnosed togther and that eupd should be diagnosed when no other mental disorder covers. He has a ptsd diagnoses. If an eupd diagnoses could help my son give it to him. But he feels over labbled and not listened to.
Any advice please about getting this removed ? Or getting into conversation. Thank you !

OP posts:
PlanDeRaccordement · 06/05/2020 20:19

I would ask them why they think he has EUPD. Keep an open mind. Btw, you can have PTSD and EUPD, they are co morbid.

I’d approach it not trying immediately to refute it, but to demand DBT or other therapy for his “EUPD” and if he truly doesn’t have it, they’ll realise it’s not EUPD in the course of the therapy.

Think about what therapy he has had in the past? Has he had CBT? Has it helped him? (CBT doesn’t work on EUPD). The thing with ASD is that there isn’t much help. If he has the EUPD diagnosis he can access more help from psychologists. They are prioritised because their suicide risk is so high. Help for his PTSD too for example.

They might have been trying to help him access more care. During therapy, a psychiatrist/psychologist team will reassess his EUPD diagnosis if he truly doesn’t fit it. You just need to get him under the care of a MHT.

mindgoinground12 · 06/05/2020 20:23

Thanks for your response! Very helpful
He's been in a lot of CAMHS wards so had all the thearpy! A lot of sensory stuff which helped. He did CBT which helped and he did trauma focused cbt which was a great help. He's done dbt he hated it. And emdr which one day we will go back to

They think he has it because of self harm and his emotions. But his intense emporiums only come about when he's got a sensory overload.

OP posts:
Grumpbum123 · 06/05/2020 20:31

I have CPTSD with emotional dysregulation. I had the diagnosis of EUPD tried to be put on me however I wrote out the DSM 5 and proved I didn’t with the support also of a psychologist who told me any trauma tips EUPD and therefore CPTSD was my diagnosis. I’m in DBT which has been in some ways helpful

PlanDeRaccordement · 07/05/2020 14:00

Interesting you mention the sensory overload.
You can ask for them to do cognitive testing. These are tests that check for processing, sensory issues, memory, executive functioning etc. If they give him these tests, the ASD will definitely be picked up on and confirmed.
The primary purpose though is so that they can design a course of therapy that will work with his brain, rather than a one size fits all generic CBT. Since he’s been through lots of therapy already with mixed results, perhaps asking for these tests to then be used to design therapy especially for him might be a good next step.

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