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I can’t take anymore

5 replies

mrsparkinson1988 · 23/08/2019 19:08

Everything this year is going wrong and I don’t know how much more I can take? It started December 2018 , I got what they think was viral meningitis this however was never confirmed with a spinal tap but the hospital doctors diagnosed by excluding other things, I had blurred vision, SEVERE head pain 24/7 that brought me to my knees, so so so sick. It took me until April 2019 to feel better, in that time I lost my job due to the illness and look like iv been hit by a truck in comparison to my former self, I just finally started feeling better then at the end of April, I couldn’t breath, pain penetrating my chest, I go to the hospital and I am Diagnosed with pericarditis that caused an effusion (fluid) on the heart and this happened just before I was due to get married! On the day of my wedding I struggled to breath, chest pain piercing through my chest to my back, I could barely walk or talk and after I said the vows I went to bed whilst everyone enjoyed the day I had been planning in my mind since I was a little girl. After the wedding I continued to have debilitating head pain, nausea, blurred vision, joint pain, chest pain, every thing in my body hurting , (still suffering) endless amounts of testing and I test positive for an autoimmune disorder they are thinking it could be rheumatoid arthritis but maybe lupus or vasculitis. I am on the waiting list for further testing as St. George’s but this has a 16 week waiting list! So currently sitting here in pain, with dizziness, nausea and blurred vision and an ear infection thinking it just can’t get worse BUT yes, today it did, I lost my beautiful dog who iv had for 13 years and he was more than a dog to me he was my family and I am devastated, heart broken and just feel like iv been kicked and kicked this year, ontop of the above iv have a 9 year old diagnosed with severe adhd a toddler that won’t sleep through the night a grandad that has now got alzimers so bad he barely recognises me and I feel so low, ill and depressed with the chronic medical condition and now emotional pain, I don’t know how to get up. Every time I think it can’t get worse it does and I get knocked again. I’m now suffering SEVERE panicky attacks and I’m only 30 .

OP posts:
yulet · 23/08/2019 20:09

What a fucking awful time you've had Flowers wish there was some way to help over the internet.

You probably already know about the samaritans if you want to try speaking to someone?

mrsparkinson1988 · 23/08/2019 20:13

Thank you for your reply. I definitely need someone to talk to for sure 😪xxx

OP posts:
Limensoda · 24/08/2019 11:23

I have a similar problem. Got ill in November last year, normal blood tests done, doctor said I was fine. I couldn't get anyone to take me seriously. I ended up with extreme anxiety so doctor treating me for that. Three weeks ago my doctor agreed my original symptoms need looking into and did a different blood test.
RA latex test shows level of 117 and should be less than 8 I think.
Doctor reckons I have Rheumatoid arthritis or similar....but I've had 9 months plus of headaches, pain, heat intolerance, no energy plus the anxiety now too.
I'm waiting for consultant appointment now. I feel desperate for help with these symptoms.

mrsparkinson1988 · 24/08/2019 11:47

Omg we literally have so many of the same problems healthwise!! Do you also have a constant low grade fever? As in I always have a temp, not high enough to be serious but definitely high for me? I can’t tolorate the heat at all now! And I used to sit in the sun all the time. They are leaning towards RA with me too, my level was 105 so similar to yours. Doctors literally look at you like your mad! I had to push for 9 months also and finally now on the way to a diagnosis! The whole thing has been a nightmare and loosing my dog was the icing on the cake to this awful year! I can’t wait for 2020! X

OP posts:
Limensoda · 24/08/2019 12:12

@47mrsparkinson1988

Yes, low grade fever a lot of the time. Constant headache and face stinging, dry mouth, aching muscles, skin going hot and stinging. Sometimes I feel like my sinuses are bad and my eyes are dry.
I've started to feel I will never feel well. They can't cure autoimmune diseases, just manage them.
So sorry you lost your dog. It's too much to deal with isn't it?
Let's hope we both get sorted x

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