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Wife in Crisis

32 replies

RowleyBirkin · 09/09/2018 02:48

This is a hard problem and it's probably unrealistic or unfair to place it in front of anybody. But I'm pretty desperate and out of ideas. My wife has been acutely mental ill for several years. She was always been vulnerable to anxiety and depression, has struggled with food and body image etc; but this is a whole order beyond anything I'd imagined possible. So far the NHS has not been able to make a dent in it, and a private psychotherapist has made some progress in following threads and exploring her childhood, but if anything that seems to just trigger her.

She repeatedly becomes caught up in bouts of intense self-loathing during which a self-critical inner voice tells her she's the most useless and selfish person ever in the history of the universe [that sort of thing but worse: the word "bitch" comes up a lot] and that she should kill herself. It's not an 'other' voice or an audio hallucination; she recognises it as her own mind or part of herself, but during these periods or 'attacks' she has no control over it at all and it berates, bullies and torments her. It demands she kill herself, and she tries to fight it (we have children, teenagers, who she utterly adores) but the relentlessnees of it wears her down until she wants to kill herself just to escape it and the intense inner conflict it creates within her. There's a physical component to it as well, a kind of vicious circle: moments where the self-critical voice seems to really get to her are accompanied by flushes of adrenalin, which she feels intensely in her stomach.

This self-loathing state doesn't come from nowhere but builds up slowly over weeks or a couple of months (but it's getting shorter). At first she thinks she's just having a bad few days, then weeks, then she starts to hide it from me because she feels ashamed. Soon she enters an 'appeasement' phase where e.g. she will start to secretly buy paracetamol and take 3, 4, 5 at a time, or alterntatively do the same with psychiatric drugs. Eventually she'll confess and tell me she's in trouble again, and then we call for help from the NHS. I am getting better at recognising earlier when she's in a downwards spiral but, well, she's a master of evasion and disguise and she kind of grew up like that, of which more below. The appeasement phase seems to have settled these days on her taking small overdoses, but a couple of years ago she was burning herself with hair-straighteners, several times a day. Doing so made the self-critical voice go quiet for a while, as if it was an angry god to whom she had to make sacrifices. At one point she was covered with burns all over her arms and stomach and a nurse had to come in every day to dress the worst bits. I know that sounds extreme. Every time I think or talk about I can hardly believe it happened. But I couldn't take the straighteners away because she might then turn to something worse, and I couldn't stay awake and watch her 24 hours a day.

She's been on high doses or Prozac, no help. It was switched to another anti-depressant called Venlafaxine which we were told is a pre-ssri anti-depressant, and for a while it seemed to be a wonder-cure but after most of a year seeming on the road to improvement these attacks came back. She reports she doesn't feel depressed like she did in the past, just tormented. The only thing that ends the attacks is high doses of old-school anti-psychotics combined with tranquilisers, which turns her into a zombie. She's spent months at a time under a blanket on the sofa alternately dozing and watching Poirot and Lewis. (I work from home which is something of a blessing). She increasingly hates the anti-psychotics because they take away all her emotions and she feels completely empty. So after 3-4 months we slowly reduce them, she seems much better for a while and then the whole cycle starts again.

I'm writing this with the intention of presenting it to all the mental health professionals involved. NHS mental health services are stretched almost to breaking point, staff turnover is constant and they're all fire-fighting and stressed as hell, so the attention and treatment my wife's had has been haphazard and intermittent. So if I frame the problem as concisely as possible and repeatedly wave it in their faces I might get the right person's attention. But thought I'd hedge my bets and try here.

Here's the history. Going along with mumsnet convention I'll call my wife DW.

DW’s maternal grandfather was a tyrannical physical and sexual abuser and alcoholic. We're not sure exactly what went on but the impression I get is of a particularly disturbing and nasty episode of Twin Peaks. It has left a trail of emotional devastation that's ongoing decades after the perpetrator has died.

DW’s mother, my mother-in-law, was the eldest child and is a very damaged, strange and eccentric woman who has never sought any help for her own mental health. Her own two siblings were under mental health treatment and in and out of hospital and institutions all their lives. DW’s mother has a very unstable sense of self, is cold, controlling, intense, narcissistic, hyper-anxious, has a history of sexual indiscretions and a very creative and self-serving sense of truth and reality. Her focus is almost entirely upon maintaining her public persona and appearance: she presents herself as a wonderful creature full of light and love, sort of a mixture of Mary Poppins and Mother Theresa of Calcutta, but on the inside she's a permanent demented tornado of almost superstitious foreboding and anxiety. She is very beautiful and always was. But she's mad as a box of frogs.

DW was the eldest child, and when her younger sibling arrived two years later her mother appears to have been unable to cope and became ruthlessly strict and punitive with DW: mainly emotional abuse involving long periods of coldness and neglect, but also some physical abuse: smacking and slapping. Most of DW’s primal trauma originates from that period of her life. With her therapist she has unearthed feelings from when she was four years old in which she recalled experiencing her parents as terrifying figures, as if (as she interpreted it) they were the Moors Murderers, and also that at that age she regularly wished she was dead.

DW's father is less nutty but was no help. He is in the thrall of his wife's strange, mesmeric hysteria and is only concerned that she doesn't get upset and then make his life hell for a week. We joke that he's like a nazi collaborator. He was a more loving parent but would blame DW for upsetting her mother and would often get into furious tempers and shout and smack and slap.

Neither of DW’s two siblings escaped unscathed, but as the oldest child DW was most severely damaged. As their first child she was idealised, and her appearance and behaviour were expected to be impeccable, as a reflection of her parents’ perfection. If she fell short of the ideal she was punished mercilessly. Consequences - lectures, punishments, emotional neglect - extended for days or sometimes even weeks.

In such a dysfunctional family DW was the scapegoat. When, inevitably due to the weird and controlling behaviour of the mother, internal tensions arose DW, being the most damaged child, would usually be the first to display fear or distress, and the family would then immediately turn on her and attack her and condemn her as the source of the problem - of being hysterical, selfish, attention seeking etc. In that way - or so it seems to me, I read books - the family tension was directed at a safe target while the real problem remained hidden. (This was still happening when we met in our twenties, and when I began stepping in and standing up for her they were absolutely horrified, and they all hated me for years). Throughout her childhood the validity of DW's own feelings of pain, fear and confusion were continually denied. She was told she was hysterical, self-indulgent, selfish, a liar and ‘making it all up’. Her parents shamelessly lied to her, denying obvious truths and painful events that had happened. They repeatedly warned that if she did not behave as they wanted then the family would be destroyed: her mother would go into hospital and she and her siblings into care.

DW has fought bravely and resourcefully all her adult life against the effects of this painful childhood, compensating for her lack of self-esteem by achieving tremendous things in her career - she was at one point at the top of her profession. She wants to be happy, and there were lots of happy times in the past. And, believe it or not but I can only assert it, we're Romantics and we love each other. To me she's a fragile, talented, beautiful, precious wonder. Yet she's always been running to keep ahead of these traumatic feelings, which remain with her as a frozen lump of unprocessed emotional pain and misery, now clamouring to be heard and refusing to take no for an answer. But she CANNOT process them because she was brought up under overwhelming pressure - trained - to suppress and internalise them and turn them onto herself. I've seen many times over the years how, if something triggers painful memories or she feels anger and resentment towards her parents or any compassion for herself, her instinct is to immediately think "I'm BAD", attack herself, doubt herself, condemn and loathe herself. She knows she does this and that rationally (she's well-educated and an excellent thinker and logic-chopper) it makes no sense, but she cannot stop.

She is therefore caught between a rock and a hard place. The traumatic feelings will not be denied, but connecting with them inevitably creates a kind of psychic ‘immunity’ reaction and generates overpowering feelings of self-hatred and shame. The result is a deadlocked inner conflict, from the pain of which the only viable escape is, as she sees it, suicide.

Psychotherapy once or twice a week seems potentially positive, but it is not enough. The unstable, incendiary nature of the problem - intense trauma wrapped in a protective shell of imposed self-loathing that prevents its expression - means that she does not get the sustained support required to enable her break through the barrier. All it does is take her close enough to trigger the spiral of suicidal thoughts, and then ‘...and I’ll see you next week’.

It seems to me that What DW desperately needs is a safe place where she can be firmly and persistently guided through this deadlock and express and come to terms with these ancient traumatic memories and feelings. It needs to be a place where she cannot resort to self-harm during what will, inevitably, be a very painful process. But it would discharge this terrible tension, which could transform her life. Yet on the other hand some say that residential units can be 'contagious' and spending all your time with a group of people with similar problems can validate and stimulate yours. But this is all by-the-bye because the NHS doesn't seem to have of offer such a thing, and going private is absurdly expensive, far beyond our now shrunken savings. But I feel I must. do. something.

This has all been hellish, and most of all it's not good for the children. But anyway it's late now. Sorry this is so long. I'm wondering, has anyone else encountered or experienced this sort of thing? If so how was it resolved? Am I missing something obvious, or are there any other options I haven't considered? Should I even post this..??

Thanks

PS: Ironically I get on quite well with the mother-in-law. We had a few sharp disagreements early on but now we manage pretty well. If you weren't brought up by her or married to her she has no power over you and you see through her scary hypnotic weirdness like it's a magic trick. Her saving grace is that she's brilliant with babies and little ones, especially if they're ill and they've both been reasonably decent grandparents. I feel sorry for her ultimately, as she's a victim too. Inside she's about seven years old. But nevertheless she is primarily responsible for this mess.

OP posts:
SleepWarrior · 09/09/2018 04:23

Wow, what a lot she's been through. It sounds heartbreaking to watch. No real advice, mainly just commenting to keep it active so others will see.

One thought though: It sounds like your wife still has quite a lot to do with her parents? With the extent of her suffering and mental illness, and the fact that it all points back to them as the cause, I would wonder whether that's wise...

renouncefifty · 09/09/2018 04:33

Summers in Rangoon ?

Blondie1984 · 09/09/2018 04:36

Has inpatient treatment ever been discussed?

penisbeakers · 09/09/2018 05:33

Having read this, and seeing towards the end that you're talking about residential mental health institutions, in this instance realistically it's likely the only solution. Yes, it will be extremely hard, it pulls everything out by the roots and leaves everything exposed and raw, but to be completely honest, she is never going to be able to heal without this being processed in a space where they're equipped to handle it. Things are already extremely raw for her.

Unless I missed it, are you in a position to be able to afford residential help for her privately? You've talked about private psychotherapy sessions, but this is going to need repeated daily hands on treatment if she's ever to recover.

HairyAntoinette · 09/09/2018 06:23

You sound wonderfully supportive throughout your wife's torment and my heart goes out to her.

Has a professional ever talked about a personality disorder? Her story (in my eyes) has multiple markers for BPD (borderline personality disorder). Mine is very well managed with a mood stabiliser called lamotrigine - which seems to be a wonder drug for BPD - of course it doesn't work for everyone. Anti-psychotics just made me sleep and eat sweets - anti-depressants didn't touch the sides.

Much luck to you all.

RedRaggedRun · 09/09/2018 07:33

I've not read all of your post but you sound amazing and what a star for standing by your wife through such severe issues.

I also recommend an intensive residential stay at a mental health centre, they are lovely places. She really needs to work her past out in her own mind and resolve issues before moving forward happily.

maxthemartian · 09/09/2018 07:54

If she was coping better years ago and now isn't, is she peri peri menopausal by any chance? That can exacerbate things horribly.

youaremyrain · 09/09/2018 08:34

I think that traditional methods (eg psychotherapy) May be retraumatising your wife. She may benefit from trauma release exercises such as Havening or EMDR

This book, "How the body keeps the score" by Bessel van Dee kolk explains more about trauma and the body
https://www.researchgate.net/publication/13844895TheeBodyKeepsstheScoreeMemoryanddtheEvolvinggPsychobiologyoffPosttraumatic_Stress

See also Peter Levine and somatic experiencing

traumahealing.org/about-us/

erinaceus · 09/09/2018 08:52

One thing that leaps out to me from this is - do you have any support for yourself? It is terribly difficult to witness someone you care about go through something like this and it takes a massive toll.

RowleyBirkin · 09/09/2018 19:03

Thanks for thoughtful and kind replies!

SleepWarrior She stopped seeing her parents late last year after the previous crisis. I'd hoped that would give her space to deal with things but although she felt better about not having to see them (but also guilty - she was half-convinced her cutting them off would kill them and was kind of amazed it didn't!) it clearly wasn't enough. This crisis started because she had told herself she would be all better in the summer again, but when the summer came she did not want to see them, and that I should/I don't want to conflict triggered the whole thing again :-(

Blondie1984 The current diagnosis is "BPD with emotional intensity disorder from childhood trauma", but BP is treated by "care in the community" (such as it is) round here, so they can't allocate funds for inpatient treatment. She has had three hospital crisis stays of between 3-6 weeks.

penisbeakers Can't afford private treatment. The Priory is £980 per night(!), and the therapy during the day is an extra few hundred quid. Apparently 75% of the people in The Priory are funded by the NHS but I don't know what the criteria is - NOT borderline personality disorder apparently, or at least not in my neck of the woods.

HairyAntoinette [Great usernames! Have you met penisbeakers? :-D ] I'm not sure she is BPD. I've looked through various online guides and her mother ticks virtually ALL the boxes, but not DW. She doesn't suffer from mood swings or fear of abandonment or risky behaviours etc etc.

maxthemartian Menopause might be a factor, though she was tested about 18 months ago and it was a negative. But she's 50 so it must be happening..? Her periods are all over the place at the moment and also increasingly painful, but then she is so intensely agitated all the time... They always bring on an extra load of anxiety and depression but she never seems to connect the two.

I think also the fact that the children are so much more independent now has taken a big role away from her, given her time on her hands and made her vulnerable. I'm convinced that if someone abandoned a baby on our doorstep she would immediately forget about all of this :-) Which would be good but I'm too old for all those sleepless nights again!

youaremyrain I will research your suggestions, thanks.

erinaceus It is shocking how mental illness isolates you. Some people just steer well clear as if it is contagious. Other friends have been good but they're all spread round the country so not much use for practical help, and after the 6th or 7th crisis you get bored hearing yourself telling them about it. My parents are 200 miles away and too old to really help except to listen, and DW's parents are obviously a major part of the problem. My wife has one very good friend nearby who has been a tremendous help.

OP posts:
madvixen · 09/09/2018 19:19

RowleyBirkin, I cannot offer any suggestions but I wanted to say that you sound like an amazing husband and a tower of strength for your wife. Do you have people to support you and who you can talk to? I don't have experience with BP but I recall feeling very isolated when hubby was under daily treatment for a mental health issue and it was so vital that I had people I could talk to about my feelings as well. It's really important that you look after yourself as well.

LapinR0se · 09/09/2018 19:24

The Capio in London is very good. I don’t know how much they charge but they may have reduced rates in certain circumstances.
Also their psychiatrists and therapists are top notch in case she cannot stay, or afford to stay, but wants to access some of the expertise.

RowleyBirkin · 09/09/2018 19:39

Thank you madvixen Flowers I'm ok, I have friends I can escape to for a night to get drunk and rant and wave my arms about Smile. But it has been a long hard slog so far, Jesus...

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RowleyBirkin · 09/09/2018 19:44

LapinR0se That's coming up as the Nightingale Hospital on google, it's £714 a day residential, excluding therapy. We could afford two weeks of that :-( I do have relatives I could beg for help from, that's something I'm reluctant to do but it's looking more and more likely.

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erinaceus · 09/09/2018 19:57

Does you wife have a point of contact within your local community mental health team or similar with whom she could discuss more intensive treatment options? Residential treatment might not be funded locally but there are a few nationally-funded services (funded centrally, which means that the local NHS team do not have to come up with the funds). Your wife might not be suitable and/or the people you have been in contact with locally might not be aware. There is a list here, the services are the ones at the top listed as funded by NHS England:

personalitydisorder.org.uk/services/

Another thing is, does your wife have a sense of what she wants going forward? You have given us your take on the problem and her perspective might be different. For yourself, you mentioned leaning on friends, do you have any professional support like a group for carers or a therapist for yourself?

Sending Flowers, these things are awful to go through, they can be got through but it is not a quick fix IME.

Youaremysunshine2017 · 09/09/2018 20:03

Hi there, has she had the opportunity to build up a meaningful relationship with any professional she's worked with? Also, has she been offered DBT? I'm not clear from your post if she works or fills her time? Has she ever practiced mindfulness? Sorry for all the questions!

RowleyBirkin · 09/09/2018 23:46

erinaceus
I'm insisting on a care coordinator as they don't always assign one. There are two tiers, the main community care team and a crisis team for emergencies who will visit every day. The main team are a shambles to be honest, almost like a fake service. Mental health cuts have made their jobs almost unsustainable. They're completely under resourced, overworked and demoralised and have a very high staff turnover with lots of agency staff filling in. We've avoided them for the last year because they were so crap and because we really thought for a while that they had a plan and were going to help, but now we liaise directly with our GP who does the prescribing. They're too busy firefighting and have no time to think long about any one case. Mainly it just amounts to a nice lady who pops round for a chat once a week and says 'Oh well keep taking the pills'.
There's been some terrible mistakes. The one psychiatrist who prescribes for all the mental health teams in the area once told DW to stop taking the Quetiapine (your bog-standard modern antipsychotic) that she was then on - just stop all at once. A few weeks later she started feeling oddly agitated and extremely restless, in a new and maddening way she hadn't before. This went on for several more weeks getting slowly worse until it occurred to me to google "quetiapine", and ALL the advice including the DSM was to come off it extremely slowly - there were many accounts of horrendous side-effects. We still had some in the box of drugs I keep and I gave her half her previous dose and the weird feeling went away. Then she slowly reduced it over the next 6 months or so. I complained about that and got an apology but no excuse or explanation. The psychiatrist had just fucked up. Wouldn't be at all surprised if whoever it is isn't also completely stressed and depressed and drinks themselves into oblivion every night.

I don't think DW can see past this problem at the moment. She has no real objectivity. When I show her the letter (as per my op) to the teams basically laying out the state of things as I see them to encourage someone to take an overview of the situation and make a decision, she will probably just feel ashamed because she's 'a fraud and pathetic and making it all up and causing everyone around her so much trouble etc etc'.
It's so unjust that the people who are victims often feel so guilty and ashamed. It's almost like a direct transfer or offloading of the abuser's self-loathing onto the abusee. What interest me, what I'm hopeful about, is what she will be like if she finds a way through it, at last understands that none of it was her fault and is able to feel good about herself and have some compassion for herself. Like normal people! This has always been with her, a dark heavy burning lump, and without it there's nothing she couldn't do :-)
When she's feeling well she makes plans, and she did a course last year to retrain for a new career at something I think she'd be surpassingly good at. She's very enterprising.

OP posts:
RowleyBirkin · 09/09/2018 23:57

Youaremysunshine2017 She's did a group DBT course for 4 -5 months about two years ago, didn't really make any difference. We've been told that the "full service" is a rigorous one-on-one weekly therapy session that often lasts two years. But as I've said, she's now so fragile and easily triggered that a week between sessions is just too long.

She hasn't worked full time for nearly five years but has temped intermittently at a much lower level that before.

I'm big on mindfulness and she's also done mindfulness classes the MH team run. For a while a few years ago I got her to meditate with me every day. But in her current state (she is in hospital at the moment) her thoughts just run away with her - it's like trying to put out a forest fire with a water-pistol. I think it could play a big role in the future though.

OP posts:
Haireverywhere · 10/09/2018 00:15

Be careful not to out yourself on here OP.

I think you are a lovely caring guy and unfortunately have no advice other than getting support yourself. It's unlikely she'll meet criteria for an inpatient bed unless she is actively suicidal so if you can't afford private inpatient treatment then outpatient psychotherapy is it.

Have you ever met with her psychologist and discussed prognosis?

RowleyBirkin · 10/09/2018 00:23

*erinaceus" Sorry also meant to respond to this:

Residential treatment might not be funded locally but there are a few nationally-funded services (funded centrally, which means that the local NHS team do not have to come up with the funds). Your wife might not be suitable and/or the people you have been in contact with locally might not be aware. There is a list here, the services are the ones at the top listed as funded by NHS England:

That's really interesting! I've seen that page before but didn't realise the significance. That's four residential places, three of them women-only.
It says "Referral is normally by CMHT or Tier 3 PD service." I assume the Tier 3 PD gang are the crisis team. So I could ask either of them to refer.

Oh wait it's come back to me when I read it before Sad The first in the list, Cassel Hospital, says the bare minimum length of stay is 5 months. At least one of the others was a three month assessment period(!) then x more months. I'm dismayed at the idea of her being away for that long. That seems like forever, it'll feel like I've lost her. Those places aren't just 20-30 mins away down the road like now. It's hard if the only way I can help her is to let go of her altogether.

But I should be realistic and talk to them, and talk to the local teams. Got to be worth a try. It might, in combination with my 'listen idiots, here's what you need to do' letter, work out! Thank you Flowers

OP posts:
RowleyBirkin · 10/09/2018 00:40

Haireverywhere Ok. She is in hospital currently, been there a couple of weeks, coming out in a few days. When she is at her worst she begs me to do take her to hospital as it is the only place she feels safe, but I have to virtually run a campaign - really make a nuisance of myself and get into everyone's faces repeatedly stating the risk - to get her admitted, because there are hardly any beds. I was told that sometime recently there was only one spare psychiatric bed in the whole of England. Every day there are big conf calls where the various teams and consultants have to decide who will go home and who will go in.

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erinaceus · 10/09/2018 19:19

Tier 3 are specialist services - here is an explanation of the Tiers in mental health care (page 3).

If she is an inpatient at the moment, she will have a Consultant Psychiatrist who is responsible for her care, even though she might not meet them in person terribly often. If you are able to, I would see if you can meet with this person prior to her discharge and enquire about the possibility of putting a plan in place that is more robust that the support you have received to date, who is responsible for different aspects of her care, who might be able to support you with enquiries into other treatment options, and what follow-up you can expect.

As her carer, you have a right to have your own needs assessed as well, and this might be helpful for you.

Haireverywhere · 10/09/2018 20:35

OK I'm with you.

If I was you I would say no to discharge until there was a follow up plan in place with regular home visits from a community mental health nurse in between outpatient psychotherapy. I'd appeal to her care co-ordinator that the current approach hasn't worked else she wouldn't keep seeking re-admission.

RowleyBirkin · 11/09/2018 21:26

Thank you everyone for helpful input and support! DW is home now, somewhat stabilised, under the crisis team until they handover to the community team, at which point there will be a discharge meeting which I shall attend. I have a good idea of the process and possibilities now and have started the campaign to get residential treatment for her.

Presents all round :-)
Cake Flowers Gin Cake Flowers Gin Cake Flowers Gin

OP posts:
Youaremysunshine2017 · 11/09/2018 21:44

I wish you all the best. Keep popping back to keep us posted. FlowersCake to you and your wife! X