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Medication changes

19 replies

lovemyboys25 · 13/05/2018 07:06

My DH is really suffering. He has bad psychosis & has had for a number of weeks since a mess up in his meds from leaving hosp Angry
It's been 8 weeks now since they have doubled the dose (slowly) & then increased again this week, then all they say is wait 2-3wks to see if new doses works!
Is this normal? He's so distressed by this unkind voice in his head constantly putting him down & telling him to hurt himself &/or others.

I'm just fed up & worried he's not getting sufficient help so would love to know others experiences.

OP posts:
GourmetGold · 13/05/2018 12:10

Do you mean the psychosis is being caused by medication & then made worse as they increase the dose?

lovemyboys25 · 13/05/2018 13:52

No the medication is meant to help the psychosis they are antipsychotics. Just they don't seem to be helping

OP posts:
Hecticlifeanddrowning8 · 13/05/2018 13:58

Stick with it! There will be a dose that stops the voices despite the side effects (which will fade in time) .

lovemyboys25 · 13/05/2018 14:47

Just it's been 8 weeks with no change, is this normal?
This has been us on & off for almost 9months

OP posts:
GourmetGold · 13/05/2018 16:14

Oh no that doesn't sound good, sorry. I know nothing about psychosis, apart from my partner having a brief episode after taking a medication that he reacted to & heard of someone who developed it from taking ADs
Hopefully someone knowledgeable sees your post.

lovemyboys25 · 13/05/2018 16:33

Unfortunately this is a long term psychosis relating to his MH

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Bhj · 13/05/2018 20:08

Hi. Sorry to hear about you and your husbands situation. What anti psychotic is he taking at the moment? Each of the anti psychotics I’ve been on I’ve been told to give them up to 3 months to work before they’d try
Something else. But 3 months feels like a lifetime when you’re living with
Psychosis. It’s important to have good mental health support. Does your dh have a cpn that he’s in regular contact with? I’m under the early intervention team in
Psychosis. I also have cbt twice a week.

lovemyboys25 · 13/05/2018 20:52

Hi Bhatt
Support has been difficult this current psychosis is due to a meds mess up! So basically caused by a sudden stop.
He changed from Olazapine to Amisulpride over last 8wks it's gone from 400 to 900 with no change. He's getting very worn down bless him.
We've been offered no therapy they just say wait til he's stable every time we have gotten almost stable this has happened again.
Hoping it will work as I am running out of hope

He's also struggling& upset. No intimacy as a result of the meds ☹️

OP posts:
lovemyboys25 · 13/05/2018 21:03

But yes sorry we are getting reasonable support now.
He won't leave the house & doesn't like being left alone etc so it's been tough.

OP posts:
Hecticlifeanddrowning8 · 14/05/2018 06:47

It is normal to take this long especially if he has come off his meds recently. They won't offer therapy unfortunately as that could destabilise him further.

lovemyboys25 · 14/05/2018 07:46

Confused will they ever offer therapy?! He's never been offered in the 5 years since being ill

OP posts:
TuTru · 14/05/2018 07:48

Keep on asking for help xx

Bhj · 14/05/2018 14:25

Unfortunately they’re not very forthcoming with therapy. I’m only just having it now but my first episode of
Psychosis was 4 years ago. Tell his mental health team if you think he could benefit from cbt. They wouldn’t let me have it before because I was 100% sure what was happening to me wasn’t mental illness but because I can now say there’s a’1% chance I’m Ill then they can work with me.

lovemyboys25 · 14/05/2018 17:45

:( had abit of a moan to them today but have to wait for tomorrow for more help. DH now refusing to take meds cause of the side effects :( will try at bedtime. its exhausting.

OP posts:
Bhj · 14/05/2018 18:58

It’s difficult to see someone you love suffering but you must remember to look after yourself too. You say your dh doesn’t like you to go out and leave him. I was the same with my dp but I’ve learnt he has to have fun and have a life. I still don’t like it when he goes out but I don’t tell him that. If he refuses to take his meds then nothings going to change and you’d be well within your rights to say unless he tries to help himself there’s nothing you can do to change the situation.

lovemyboys25 · 14/05/2018 20:43

He doesn't mind me popping out etc or friends coming over it's I worry a lot i i go out plus if I go to work I'm away for like 11hrs which is along time for anyone to be alone

OP posts:
Bhj · 15/05/2018 16:46

Hi did
You get any more help today?

lovemyboys25 · 15/05/2018 17:08

Yes support worker came round for a pep talk Grin he's also really lovely & gets onwell with DH
So he's going to support us more
They do understand it's just the waiting game is hard
Thanks for asking

OP posts:
Bhj · 15/05/2018 17:48

Glad your going to get more support and it’s good he gets along with his support worker, it makes all the difference.

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