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Psychiatrist unsure about diagnosis

41 replies

NightTerrier · 14/09/2017 08:41

I'm just after a bit of advice really as this is bothering me far more than it should.

I recently got a new psychiatrist who is unsure of my current diagnosis of bipolar and keeps mentioning that he thinks my symptoms are more in keeping with a psychotic illness. However, when I ask him what he thinks I do actually have, he keeps saying that labels aren't important and managing the symptoms is what matters.

He took me off mood stabilisers and put me on antipsychotics. However, I was on lamotirigine and that was excellent for preventing depression. Since coming off it I have become really depressed again. So, I don't know why he is unsure of whether it's bipolar.

I just want to get a straight answer out of him. A friend suggested that maybe he's not sure, but why not? He's a consultant psychiatrist and says he's seen people with my symptoms who responded very well to the antipsychotic I'm on, which is aripiprazole.

For the record, I get about 2 episodes a year where I think the goverment are testing microwave weapons on me and I'm the victim of electronic harrassment or I think that Freemasons are telepathically communicating with me and I've been innitiated into a secret society etc. It lasts for about 1 to 3 months. These don't always coincide with hypomania or depression.

I'm having a hard time accepting that it might not be bipolar and that it may be a psychotic illness. I looked up 'psychotic illesses' and they are schizoaffective disorder, schizophrenia and delusional disorder. Undertandably, I'm now really worried. Surely my last psychiatrist would have diagnosed one of these if this was the case.

Anyway, sorry for rambling, but it's just driving me mad and I feel that he needs to be clearer with his diagnosis and reasoning, as that would help me develop a better framework for understanding what is wrong. I understand his point about labels, but he must have an idea of what he suspects the diagnosis is.

OP posts:
tehmina23 · 17/09/2017 18:54

Hi OP - currently I take 22.5mg Aripiprazole for 'depressive disorder with psychosis'.
I find that my psychotic symptoms are much less bother to me on that dose.

Psychosis can accompany both depression & bipolar- one of my friends with bipolar takes 10 mg Aripiprazole for paranoid thoughts.

tehmina23 · 17/09/2017 18:59

Actually I don't see why you can't take both aripiprazole AND lamotrigine - I also have epilepsy & took lamotrigine for that as an add in drug to my levetiracetam, I was taking Aripiprazole at the same time.

When I had really bad psychosis was in 2012 & I didn't understand that I was ill by the way.

NightTerrier · 21/09/2017 16:47

Thanks to everyone who replied. Sorry I haven't replied sooner. It's been an odd time.

I saw my psychiatrist today and I'm back on lamotrigine and he's changed my diagnosis from bipolar to schizophrenia. I'm feeling a bit schocked tbh.

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NightTerrier · 21/09/2017 16:54

Forgot to add that I'm still on Aripiprazole and we discussed raising the dose, but agreed to wait another couple of months to see how things go.

The weird thing is that I don't 'feel schizophrenic', although I can see why other people would say I am being paranoid. I just don't feel that I am or that what I am saying and thinking is particularly unusual.

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Addley · 21/09/2017 18:56

That must've come as a bit of a shock. Hopefully if they can help you get the psychosis under control, you'll start to feel better?

tehmina23 · 21/09/2017 19:04

Glad u got your diagnosis sorted even though it is a shock.

I have not had a great day MH wise.

I couldn't get motivated to get a shower until 3pm, I felt very flat then I went to the chemist to get some of my meds & felt that they were plotting against me. My dad helped me to see that I was being irrational.
I couldn't cook dinner so have just snacked.

NightTerrier · 21/09/2017 19:42

I've been really flat too. I've been making an effort to get out and about and fight the feelings of apathy, but I just can't bring myself to wax my legs today (which really needs to be done). I'll try again tomorrow.

I'm glad your dad could help clear things up. I've been quite paranoid recently, or so people tell me!

Yes, it was a bit of a shock, but hopefully I can manage it better if this diagnosis is correct. Tbh, the flatness, apathy and complete lack of enthusiasm is the most difficult part of it. I've been like it for 2 years now since what I was told at the time was a bipolar episode.

Thanks again both of you!

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NolongerAnxiousCarer · 22/09/2017 21:16

Thats the thing with psychosis, when you are poorly, you have no idea that you are. As well as the positive symptoms of psychosis such as halucinations, delusions and disorganised thoughts there are also negative symptoms such as flat mood, lack of motivation and emotional blunting.

The important thing is that you are getting the right treatment and support now.

NightTerrier · 24/09/2017 09:34

Thanks, NolongerAnxiousCarer.

I've only recently found out about negative symptoms and I've been struggling with these for over 2 years. As far as positive symptoms go, I'm OK. I'm just convinced that some group is harrassing me with microwave weapons. People say it's illness, but I can feel the energies and I'm convinced that my partner and friend are sleeping with each other, although I can't find any solid evidence of this.

My psychiatrist is waiting 2 months and said that if these thoughts don't go away, we can up the dosage of aripiprazole. The thing is, that I don't think these are just thoughts.

OP posts:
tehmina23 · 24/09/2017 10:01

The thoughts do stop bothering you when you are in a higher dose of Aripiprazole, but for me it did take a few months.

I was put on a high dose straight away when I had a psychosis episode & the side effect was that I had really bad restless legs which was uncomfortable but I put up with it & it stopped after about 2-3 months.

I do have a strange movement in my left hand all the time since starting the drug but again I put up with it and with the tiredness in order to stay well.

Also you shouldn't drink alcohol when on a high dose of Aripiprazole.

NightTerrier · 24/09/2017 18:54

Thanks, tehmina23.

I already feel tired on the dose I'm on, although that could be the negative symptoms.

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NolongerAnxiousCarer · 24/09/2017 22:38

DH was put straight on a high dose of olanzapine which helped a lot instantly (so much so he was taking 3 times the max dose initially because it made him feel so much better Confused) but it still took a few months for things to completely settle. It did knock him out the first few weeks, and he still sleeps a lot but he doesn't get the unpleasant thoughts and is able to lead a normal life.

NightTerrier · 25/09/2017 08:38

I was on olanzapine 2 years ago during what was assumed to be a bipolar epiosode at the time. It knocked me out completely. The main problem was that I put on about 3 stone within as many months.

I have to admit that I do feel better on the Aripiprazole and can see that I was very paranoid before I started taking it.

I've been reading about schizophrenia and have to admit that my syptoms fit that diagnosis a lot better than bipolar. The psychiatrist said I could keep my diagnosis as bipolar if I wanted to as schizophrenia is quite a stigmatising diagnosis, but I don't care either way. It's not as though I have to tell everyone that I'm a paranoid schizophrenic! Part of me believes my psychiatrist, but the other part has a hard time accepting that I'm ill. At least I don't have to go into hospital though.

Thanks for all the great support on here. I'm glad your husband is doing well on his meds and is able to lead a normal life.

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NolongerAnxiousCarer · 25/09/2017 10:16

Yes weight gain is a problem with the olanzapine.

Really glad that you are starting to feel better. Realising that you have been paranoid is a big step forward. I feel like the reason that bipolar is seen as less stigmatised than schizophrenia is that people with bipolar have started to reclaim it and educate people about what it really is in a way that hasn't happened with schizophrenia yet. I do wonder if the reluctance to diagnose people with it is actually feeding into the stigma. Theres a brilliant book by Professor Elyn Saks called 'the centre can not hold; a journey through madness ' its her autobiography and she describes living with schizophrenia. There are parts that are hard reading though, particularly her experience of hospitalisation in america (made me so thankful we live in the UK ). Overall though its a positive story of how much she achieved dispite her diagnosis.

NolongerAnxiousCarer · 25/09/2017 10:18

And of course you only have to tell the people you wantbto tell.

NightTerrier · 25/09/2017 15:04

Does your husband suffer from negative symptoms? If he does, does he take meds for that and how does he manage them?

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