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Someone please help me

23 replies

PeterSpots · 24/05/2015 20:23

Hello I have have had tingling/pressure in my face & finally seeing a consultant/physio in facial pain. I have had 4 episodes of chronic pain in my life & each time it has been difficult & has weakened me each time. I had coccyx pain for two years but recovered 8 years ago. I'm has now come back after a massage & I can't face it anymore. I don't want to be here anymore. I am so alone & so desperate. I don't want to fight anymore. I just want a to roll up in a ball & cry. I can't do it anymore. How can 1 person take so much pain. It's breaking me. I can't do it anymore. Someone please talk to me

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StuffYouAllInTheCrust · 24/05/2015 21:07

I'm sorry you're going through this, it must be terrible to feel so much constant pain. I have problems with my coccyx that come and go and it gets so uncomfortable sometimes, like sitting on a marble. It's good that you're finally getting to see a specialist for the facial pain, hopefully they can prescribe some form of treatment to reduce the tingling? As for the physio, maybe they can also advise on the coccyx pain. Have you any family or friends you can talk to? Please don't feel alone, there is always someone you can talk to. I don't have much advice just wanted to let you know someone was here.

PeterSpots · 24/05/2015 21:16

Thank you so much. I have had this happen to me before & I actually feel I can't go on. I can't talk to anyone around me as they have seen these things happen before. I don't know why it keeps happening to me. I feel so lonely. My husband just shuts down & I can't put on a front anymore. I just feel like I can take it anymore

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StuffYouAllInTheCrust · 24/05/2015 21:36

Do you think talking to counsellor might help? Things always feel bloody awful when you can't let your feelings out - and that's without any physical pain! I really can't hold things in, I have to let it out or I either explode or sob my heart out! It's bound to make you feel so much worse if there's no-one to let it out to. When is your next appointment with your specialist? Could be worth mentioning to them how low it's making you feel? They must have some experience of this with other patients and may be able to point you in the right direction when it comes to that side of it.

PeterSpots · 24/05/2015 21:39

I'm scared of being dismissed as stressed, which I know I am & yes I'm so sad/anxious/depressed over this but I'm normally a positive person. I was just about managing with the face pain but the coccyx the last 2 weeks has made me feel broken inside. Am I weak?

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FastWindow · 24/05/2015 21:46

Not weak, and stress is not so easily dismissed these days. It's acknowledged as a very real health damaging condition.

I don't know what kind of care/ program you are under so it would seem facetious to say - ' go to your gp on Tuesday' - that may not be what you need. If you need help or medication now, you must call 111.

Continuous pain is a real mental strength sapper. You can only take so much. Get some RL advice please :*

PeterSpots · 24/05/2015 21:52

Thank you. I am taking 10mg of amytriptiline the last couple of nights. When I see the face physio I will get exercise & I am seeing a facial consultant who specialises in pain. I thought I had hope but my coccyx pain had returned after 8 years & I has tipped my over the edge. I feel lonely in the sense people can't make it better & I don't want to hurt them by telling them how desperately sad I am & how I feel like I can't go on

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StuffYouAllInTheCrust · 24/05/2015 21:54

No you're not weak, not at all. Don't be scared to talk to someone for fear of what they might say. The specialist may be a good one to start with as I am sure they will have come across this before, where the pain is so bad some will need some extra help to cope mentally with it too. It's certainly not weak to admit that, just the opposite! You're already to talking to me, don't be scared to open up to the ones who can truly help. Flowers

FastWindow · 24/05/2015 22:04

Ah, I understand a bit better now. My df takes amitryp for bell's.

PeterSpots · 24/05/2015 22:08

Thank you. I feel so stupid because before I had the referral to see the maxilliofacial consultant I was told it was a brain virus so I arranged an appointment with a massage person to relax me & I asked them not to go near my coccyx. I just lay there as they moved around my legs and hips. So I have done this to myself & sent myself over the edge. How stupid. My husband is so angry with me. I feel so so stupid to do this to myself. The face was bad enough & wearing me down

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PeterSpots · 24/05/2015 22:14

Thank you for listening

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PeterSpots · 24/05/2015 22:24

Having the face problem has been hard but I thought there was light at the end of the tunnel. But having the coccyx problem seems so cruel. It was a hard 2 years & it changed me. 8 years later to have it again but I may ease of. I just have lost all my fight. I wish my husband would put his arms round me. When I broke my coccyx he let me down & it took us a long time to recover our relationship.

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FastWindow · 24/05/2015 23:13

Well he sounds like just the prize. Is he minimising your pain, I wonder. You also sounds like you need to stand up and make your voice heard, your opinion on your pain/body counts the most. Irony not intended Smile

FastWindow · 24/05/2015 23:15

Ease of, what did you mean to say there?

PeterSpots · 25/05/2015 10:27

Thank you. I'm hoping the coccyx will ease of because it it was the massage not a lot happened unless it altered the balance but it wasn't a crunching massage but she was messing about with my legs and leg length. I just can't understand why it would start again after all these years. My dh can't cope with me not feeling well. We have had 4 bouts of it in 25 years & I feel so lonely. I have thought about not being here but my dd1 has a2s to get her to uni so I can't ruin those for her but I don't know where I'm going to get the strength from. I hate it. I'm so angry I went to the therapist.

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PeterSpots · 25/05/2015 14:42

My lower back is hurting now. What is happening to me. The tingling in my face is driving me mad. How do I get through.

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StuffYouAllInTheCrust · 26/05/2015 08:04

This is so not you fault! You were trying to help yourself not do the opposite, it's just so unfortunate that it seems to have aggravated something. You sound so broken by it all, please make an appointment with your GP, you have nothing to lose by doing so. Be totally honest with them about how it is making you feel, I'm sure they will do something to help.

PeterSpots · 26/05/2015 15:18

Thank you. My pelvic pain has come back too. I think it is stress. I am seeing consultant tomorrow about my face but I think I need to see my gp (I called today but he's on holiday) as I think I need to consider going on antidepressants. This all started after 2 months of severe stress when I found out my dd2 was self harming. I seem to react with physical pain when I'm stressed. I'm scared

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StuffYouAllInTheCrust · 26/05/2015 16:09

You've got an awful lot going on there it's no surprise you're feeling so low. Please get back on to the GP tomorrow, they'll be able to recommend the best course of action for you. Don't be scared, there are people out there who can, and will want to help you. [flowrers]

StuffYouAllInTheCrust · 26/05/2015 16:10
Flowers
PeterSpots · 27/05/2015 03:21

I can't sleep. I'm burning. I can't believe I'm in the situation. 2 weeks ago it was just the 5 months of a tingling face. Now my coccyx, pelvic pain has come back. I really can't cope. It must all be self inflicted. What have I done. I can't face it. I've waited all this time to see the hospital about my face & my body has fallen apart & no one will take me seriously. I'm thinking of ways to end this misery.

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PeterSpots · 28/05/2015 14:29

Hello I think I'm making myself ill by being so anxious. My pelvic pain has come back & coccyx is I hurting. They've have worked out my face is stress. I've got physio. What am I doing to myself. My arms feel weak now. Can you continually have a panic attack. I don't want to carry on. I don't want to go to the hospital about my pelvic pain. Why can't I deal with this pain. 2 weeks ago it was just my face. I'm panicking. Help. How do I stop. I think I might need anti depressants. I feel like I can't hold on

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StuffYouAllInTheCrust · 28/05/2015 22:02

I'm sorry you're feeling so bad. You really, really need to get on to your GP practice and let them know what's going on and how you're feeling. They will be able to help, they really will. It's great that you've opened up on here as bottling it up is not good but I think you know that the docs are your next stop. Get on the phone tomorrow and see if you can get an urgent appointment. Big hugs.

PeterSpots · 30/05/2015 17:51

Hello thank you for your reply. I have an appointment with my GP on Thursday. I just can't believe 2 weeks ago I was just dealing with the tingling face & now I've got so spasms in my buttocks & my pelvic pain back. If it's all stress how do I get rid of it. I have been told to see the doctor because I am vit d deficient & I'm anaemic. Thank you for answering me x

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