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Opinions on Amisulpride?

8 replies

dontrunwithscissors · 23/01/2015 13:24

I'm currently taking Quetiapine (along with Lamotrigine and Agomelatine) for Bipolar II. The Quetiapine works incredibly well and keeps me 99% well so long as I'm at a high enough dose (350mg+). I suffer almost entirely with lows and have had very few highs since all of this started 5 years ago.

I've put more information below, but if you want to skip it, my question is how have you found Amilsulpride? I'm worried about weight gain on it (although have been very careful with my diet and not gained any weight on Quetaipine), and also worried about raising prolactin levels and the link with osteoparosis. Any feedback would be great.

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The reason I'm wanting to change from Quetiapine is that it causes really bad joint and muscle pain/stiffness. At the dosage that I need to take to stay well, it stops me from exercising, I have difficulty walking for more than 5 minutes and sometimes have to crawl up the stairs. Basically, it's having a massive impact on my quality of life. Before Christmas I had one last go at bringing the dose down so the pain is at a manageable level (down to 250mg). I had a massive relapse, took an overdose, and was admitted to the psych ward.

I've had blood tests to check for other cases (all clear), I've seen a rheumatologist who said I have no physical causes for the pain, I've been to the pain clinic and was told I'm on the best combination of painkillers (but they only take the pain away partially), I've seen a physiotherapist who said she couldn't offer any help, I've tried procyclidine, but it gives me very blurred vision and also only really helps when I'm on lower doses of Quetiapine. I've tried loads of medication and my pdoc now says that the only options are Risperidone or Carbamazepine. My CPN mentioned Amilsulpride as a possibility and, from what I've read, it sounds like it might suit me.

Both my pdoc and CPN think I should just put up with the pain as previous trials of alternative medications have ended up in hospital/suicide attempts. I also can't afford to have to take anymore time off work if things go wrong again. Also, my pdoc believes that no other medication will keep the lows away as effectively as Quetiapine.

However, I feel trapped. I live like I'm 80 years old. I rarely get a break from the pain. Some days, my arms ache so much from simple things like writing or holding the steering wheel. And (TMI), it stops me from having sex as I'm in too much pain. I'm so fed up. I'm petrified of trying another medication change, but the thought of just accepting this pain as the price of mental stability seems unbearable.

OP posts:
Bipolar12345 · 28/03/2020 08:24

Good Morning all,
Could anyone with experience of a change from Quitapine to Amisulpride give the results?
My wife is on the highest dose of 800mg of Quetiapine and I see her going back into psychosis.
I suggested Amisulpride before to her Dr but he said we had to try this one more time at the higher dose.

Regards
Rich

Bipolar12345 · 28/03/2020 08:26

Not only the threat of Psychosis but the joint pain is too bad.
I have read about the prolactin but is it as bad a the above?

regards
Rich

kingis · 28/03/2020 10:15

I tried amisulpride and I started to produce milk like I did when I was breast feeding. That started within two weeks after starting amisulpride.

Bipolar12345 · 29/03/2020 07:43

Thanks for the reply Kingis.
Was it good for the psychosis? and other side effects?

Is there something like procyclidine for the prolactin

Regards
Rich

kingis · 29/03/2020 08:51

I felt better on it so it was petty it raised prolactin.

Dominosflyfish · 30/03/2020 00:25

I used to take Amilsupride, never experienced any lactation or weight gain. When weaning off of it i started to experience mild auditory hallucinations. I was then put on quitiapene a year or so afterwards which helped with my mood however initiated uncontrollable weight gain.

Bipolar12345 · 30/03/2020 07:31

Thanks Dominosflyfish,
The problem with Quetiapine is the side effects. Especially when high doses are used.
So why substitute Quitapine for Amisulpride when the side effects were less of a problem?

regards
Rich

Dominosflyfish · 30/03/2020 07:59

There was s time difference between being on them. Was on amilsupride first then stopped due to circumstantial change and moved home, different psychiatrist trying something different i guess?

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