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Mental health

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Original poster

I am fed yup with it, when isit going to end?

19 replies

misdee · 28/05/2006 20:55

just dont know where it all started and where its going to end really.

eczema and heart problems are ruling my life. i dont know what is worse at time, seeing my dh on a LVAD or seeing my children desperatly tearuing at their sore painful skin, and in tears because of it.

I am fed up of health care professionals, of being told i am over-anxious, being told to chill out, being told to communicate better our needs, being told i need to do xxx and zzzz before xdate so that xxx will be sorted. I have piles of forms to fill in, stuff to sort out, people to call. I am completely snowed under.

OP posts:

Original poster

misdee · 28/05/2006 21:44

dd1 just got up cos she is itchy.

oh i hate this. its breaking my heart to see them suffer so much.

OP posts:

spacedonkey · 28/05/2006 21:47

((( misdee )))

I don't know what to say, except no wonder you are feeling snowed under! You are doing brilliantly to cope with such a difficult situation, but do you get enough support, that's what I'm wondering?

xxx

bunny3 · 28/05/2006 21:48

can sympathise on the eczema front. Ds has been tormented by it for 6 years now. He also has other problems and I feel it is all so f*cking unfair. Yes, heartbreaking, definately.

Original poster

misdee · 28/05/2006 21:50

tbh, no i dont get much meotional support. because quite simply after all is done in the day i dont have time to sit down with a preofessional about how i am coping. days start at 7am, kids at school for 8.45-9-15, dash to harefield, dash home, pick up kids, make their tea etc, put them to bed, then try and catch up at home.

OP posts:

noddyholder · 28/05/2006 21:54

Misdee you poor thing I have been in that tunnel and come through it but I know at its peak I thought it would never end.Is there anything I can do to help?Do you fancy a free holiday in Brighton?I am serious if you fancy a cheap summer holiday let me know xxxx

gothicmama · 28/05/2006 21:55

write a list of what you need to do - can you copy info form one form to another- have apiece of paper /pen with you and if something happens which is aneed write it down , when you have a list of needs priotise them and then presentthem to a professional hth

Original poster

misdee · 28/05/2006 21:57

i'd love one noddy, but do you fancy being vad trained as well? are you within an hour of harefield?

my life is f*cked.

i m so peed off that dd3 now has eczema, i did everything right with her, she has an egg allergy as well. hayfever is through the f-ing roof here, dd2 is nightcoughing now. we are keeping piriton in business i think.

OP posts:

noddyholder · 28/05/2006 21:59

I could come and help you for a few days I am serious Let me know.My dp is at home for 10 days and I could go.Could you not tell someone you just can't cope with Peter at home with all the other problems you have to deal with.You need help.What about asking social services to get you some practical help?

noddyholder · 28/05/2006 22:00

I am in Brighton Misdee so great for the kids and you could get some rest too Think about it if you need a break

Original poster

misdee · 28/05/2006 22:02

social services are providing us with carers. funding still hasnr bwwn approved (been almost 2months now).

am hoping to get dd3 eczema under control as quickly as possible. it took almost 3years to get dd1 under reasonable control, i dont want that to happen again.

OP posts:

gothicmama · 28/05/2006 22:03

if youneed help talking to ssd let me know or with form filling

Original poster

misdee · 28/05/2006 22:07

peters sw is dealing with them. she is calling the pcp/pct (i cantr remember which) every day to find out about funding.

peter is coming for an overnight stay at the weekend. am dreading it but also happy.

we've come so far in the last year, he was dying this time last year. but i still cant let myself hope. i dreamt he died last night, iam so scared of transplant, what if we;ve done all of this for it just to fall apart and he doesnt pull through?

OP posts:

foundintranslation · 28/05/2006 22:07

If it was doable, I'd help you long-distance with any of the practical stuff misdee, make phone calls for you, etc.
Did you say on another thread you need a T-shirt for dd1? What kind?

Original poster

misdee · 28/05/2006 22:09

its an eczema mitten t-shirt. i didnt get the older 2 theirs till they were bigger, so dont have one to pass down to dd3.

OP posts:

gothicmama · 28/05/2006 22:17

misdee has peter's sw offered you a carers assessment to look at your needs etc. If not ask for one and also look at claimin carers allowance

foundintranslation · 28/05/2006 22:21

can you email me? sparkly has my address. (it's very identifying so I won't post it)

Original poster

misdee · 28/05/2006 22:22

i'll CAT you.

OP posts:

noddyholder · 28/05/2006 22:25

Misdee can you email me too Thanksxx

mixedemotions123 · 29/05/2006 04:35

misdee, I really feel for you. Don't lose hope, you are the cement holding everything else together. I know that doesn't make it any easier as the pressure must be unbearable, but you will get through it all I am sure. Even Strong people have to have a scream now and then. Really hope you feel a bit better today, and wish you and your family all the love and luck poss.

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