Please or to access all these features

Mental health

Mumsnet hasn't checked the qualifications of anyone posting here. If you have medical concerns, please seek medical attention.

Worried for my friend, does anyone have knowledge or experience of ECT?

5 replies

misty75 · 26/04/2012 19:49

If this is a distressing subject for anyone, I apologise. I am worried about my dear friend, who has suffered with depression for years. She has had several episodes of severe depression, and even when she is 'ok', which can be for months or a couple of years, has to stay on antidepressants to prevent relapse. Between episodes of severe depression, she still suffers low mood a lot of the time.

She has had various antidepressants and is now on her 7th course of treatment. She is suffering an episode of severe depression now, and has seen the Crisis Team and her psychiatrist.

She has been told that if she changes meds in her current state, that she will need a week off work to stabilise. I've offered to stay with her for the week if she does that. She also asked about ECT, and has been told that she is eligible to have it, because she has had depression for so long and tried so many meds.

She says that she is reluctant to change meds because of needing time off work. She says that she is 'excited' at the idea of ECT, and that she has a fantasy that she will fall asleep and wake up cured. She knows and admits that is a fantasy: she is very intelligent, a successful professional with a vast amount of knowledge about health.

The impression I get is, that she is understandably sick and tired of all the meds and the mental torment that she suffers even with the meds. She wants a solution and has decided that even a risky one is worth a try.

I know it's not about me, but it scares me, for her sake. The information that my friend gave me about it, the info on Mind and NHS websites, scares me because of the risks involved.

I'm concerned that she has been allowed to make this decision while in crisis. She has now told me she is starting the ECT a week tomorrow.

Does anyone have any information or experience of this? And even if not, thank you for letting me offload.

OP posts:
fedupandtired · 26/04/2012 21:00

No personal experience but I do know it's come a long way from the horror stories of years ago.

It's not something which is offered willy nilly and if she's been offered it then it will be because they've tried everything else with little success. Yes there are risks but there are also very real risks if depression isn't properly treated.

For a lot of people it's quite literally a life saver. Doesn't sound like your friend has a lot of other options.

littlebabynothing · 26/04/2012 21:09

Hi - what risks in particular are you concerned about? The main risk I can think of would be related to the anaesthetics used. Most of the other side effects can be reduced (although not wiped out obviously) by unilateral electrode placement. Most side effects (most common being memory loss) will fade in the weeks following ECT. It is not given lightly, and despite the immediate gut feeling the idea of ECT usually produces in people I have known it to transform lives.

I say this as someone who doesn't feel entirely comfortable with the idea of ECT, but as I say, in cases where treatment hasn't really helped that much it can work.

misty75 · 27/04/2012 16:51

Thanks, fedupandtired and littlebabynothing - I'm glad you've seen it transform lives for the better - for your kind replies.

I guess the risks I'm most concerned about are permanent memory problems, personality change, damage to intelligence - I'm not saying these things are very likely to happen but even if they are only small risks it terrifies me. I don't want to lose the person I know and love, and I know if she lost the ability to do her job that would be a devastating loss to her.

I understand she is desperate to end the awful cycle of depression that has plagued her for years, I just wish she would give a change of meds another go before opting for ect, but it is her decision and I'll support her whatever. Part of me is desperate to try and talk her out of it, but I don't want to be unsupportive and cause her even more stress. I don't know what to do, other than be there for her. I really hope that if she does do it, it will really help her and not cause her any problems.

Thanks.

OP posts:
moggiek · 28/04/2012 23:10

Hi misty

I have personal experience of ECT - 2 treatments a week for 6 weeks, which in the early 80s was the maximum allowed. It, literally, saved my life.

Its been 33 years, two more DSs, a DGS and a successful professional career since, and I've never stopped feeling grateful.

Just be there for her. If her experience is anything like mine, she won't feel better immediately, but after a few weeks will start to feel as though there is light at the end of the tunnel ....

missjulie · 25/06/2012 00:09

Hello moggiek, just sent you a pm.

misty75, how is your friend doing? I am so glad i found this thread! I too have a friend who is contemplating this! x

New posts on this thread. Refresh page