My world is collapsing because of an admin error!

[PeachyClair]

Sorry, I posted this on a SN thread but fell utterly devastated now.

Basically, son 'has' ASpergers. Or we therought he did, we had a letter saying he did and we were awaiting help. Now it seems letter was sent by error: Son might have AS, so no help and all help we have been receiving removced until further notice. And no appointment likely in 2006 (they have assigned them but admit they'll be cancelled) as no staff / changing clinic set up.

Apart from a few weeks when we started him on medication (he learned to avoid the effects) I haven't slept over 5 hours (usually less) bar two weeks holiday in sox years. I am housebound during holidays due to his behaviour. I have two younger sons so cannot take three ds's out alone. No family in Wales at all, parents don't drive and DH's parents split up.

I can't do this any more. Don;t mean I want to sie, but want to wake up and all this is a nightmare.

DS's school even says they have tor emove him from help he gets for time being, as needed a proper diagnosis. He hasn't progressed much at all, is way behind.

Sorry, just needed to wallow a bit.

Sorry, nothing useful to add but had to say how utterly disgusting that is.

Is there no one you can complain/appeal to ??

I'd ask the school have they received additional funding for your son's sns? If so, and they aren't having it taken away from them then why can't they give him additional support?

I'd definitely go back to who deals with referrals etc and kick up a fuss - totally unacceptable situation and not able to be seen until 2007

The school doesn't receive funding for son, that was in progress but has been stopped now.

Tried to complain about waiting times but because we have an appointment in April I can't, however the Secretary told me herself that it WOULD be cancelled as the clinic was due to stop.

Dh being totally unhelpful, shouted at me for not sorting it out. Now trying to find letter, I know it IS here but when we came he refused to let me unpack paperwork so it is buried in hid electrical workshop (where I cannot go) somewhere, probably damp and mouldy

Dh has taken this on with some success, he has Sam an appointment for FEB 26TH!!!!!

So although we have to get dx strated again, we can at least move forwards.

I am badly shaken however. I had agoraphobia until quite recently (now you know why i spend so much time on here...) partly induced by Sam's behaviour away from home, and guess what...can't face going to Uni to study today (no classes, essay due).

Now I have realised how fragile I am over this whole As thing I may ask at Uni to see the college counsellor.

Thanks all.

Definitely ask to see the counsellor - I'm sure to spill out all your feelings to a real life person would really help. And good news about the appt.