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are there any options for help with meds etc?

9 replies

ButterpieandCheese · 28/04/2011 00:33

Me and Dh are having a few issues atm. I don't think it will lead to us splitting up, but it has got me thinking.

I rely on him to spot when I am heading for relapse, make sure I have taken my meds (I would forget more than I remember without him), keep track if I have had any of the "as needed" ones, and look after me when I do relapse.

If I was single, what would happen? If I relapsed, I couldn't look after the kids by myself, and even without relapse I would be very unlikely to remember medication, and would probably struggle to notice signs of relapse. Also, when ill I have very little idea of what day it is, so would struggle to remember when i had taken things, even if I was holding it together on a day to day basis. I would also struggle to motivate myself to get out of the house when ill. I manage, just about, to look after the kids, but I doubt I could do it by myself long term, without a magic cure.

I get middle rate care DLA, and suffer from bipolar/psychosis, although the majority of the time I function pretty much normally.

Is there support out there? I get my care co-ordinator out here once a week, but that wouldn't be enough.

I suppose knowing that we didn't HAVE to stay together would help us stay together happily, if that makes sense...

OP posts:
MotherMucca · 28/04/2011 02:32

Butterpie, can you talk to your care co-ordinator about your concerns re: relapse? I would be concerned for you to remain in an unhealthy (reading between the lines) relationship, for the sake of your partner 'monitoring' your mental health.

I don't want to offer any specific advice to you, as I obviously don't know your individual circumstances and treatment plans.

Speak to your care co-ordinator/nurse/SW if you can.

Crawling · 28/04/2011 10:55

It depends on what meds you are on bt some (Anti pyschs for one) can be injected in a monthly (sometimes longer) dose meaning you just have to go and remember once a month, could that be something that would work?

forkful · 28/04/2011 21:39

Butterpie have you got an ipod/iphone or normal mobile phone that you could set alarms for your meds? That's what I do when I have to alternate paracetamol and ibuprofen for various pain conditions I sometimes get.

Or how about a 7 day table organiser with alarm.

If you are seeing someone weekly then you could get them to help you set it up each week.

I have seen your thread in AIBU and I think that you need to push the HCPs to help you stabilize. When you talk about having little idea what day it is - that's at odds with your posting style on MN IYSWIM?

Does your DH always attend appointments with you or are you able to talk to HCPs without him being there?

You say you see care coordinator weekly but how often do you see the GP/hospital out patients?

Could you talk us through a "normal" day and in what way your DH supports you. Maybe some MNers can come up with other strategies for you to help yourself.

Butterpiecrimearea · 28/04/2011 22:27

I hear the alarm go off, think "oh yes, I should take my pill" then immediately forget. I've always had very poor short term memory and grasp of time - I get extra time etc in exams for it - it's good in a way because it gives my brain more exercise as I have to work a lot out as we go - I'm pretty good at covering up. I find it quite hard to separate out what is dyspraxia or whatever and what is mental illness (and what is just me being someone with a bit of an odd personality - I freely admit that I am quite odd!)

A day isn't really all that useful, as most of the time he is just keeping an eye to check I'm not relapsing, and things bubble along. When I'm well, which can be for months in a row, I'm utterly fine However, I get bad pretty quickly

Also my "bad" times are really variable It could be that I am anxious, and so get in a massive tizzy about tiny things, and so I need sombody to calm me down and encourage me to leave the house, lend a hand with the kids and so on I can deal with the kids the vast majority of the time, but long term things start to slip if I don't get support

Sometimes I get depressed, so I find it physically hard to move, eat, drink, change my clothes, get out of the house and so on, so he basically nags me into doing these things (this is when we argue most, as I, being depressed, hate being told what to do, and he gets angry because he thinks I'm not trying)

Those two states are not too bad though, as I am pretty aware of them

It gets dangerous when I start going high, as it starts pretty innocently, with me being more energetic and motivated, my thoughts get scattered, but then my thoughts are always scattered, then I start to get ideas that I somehow have the secrets of life, I spend money in a silly way, I get a really high sex drive, my heart beats faster, I sleep less and less, I get really loud and extrovery, then sometimes I start up with the hallucinations, and that's it, I'm seriously ill. Usually it doesn't go that far though, as DH will spot it, and tell me what he suspects, and if that doesn't help, he can encourage me to take the tranquillisers or sleeping pills, if that doesn't work, he can ring up the mental health team, or crisi team, or NHS dirct, or 999.

I also occaisionally get hallcinations, intrusive thoughts, delusions and so on in the other "bad states", but they are more likely when I'm high, mainly because when high, I am more likely to think I don't need help, to drink much more, and to get in risky situations. I suppose I have always slipped away from reality quite a bit, but it's harmless normally - I think most people have daydreams where they think they are real, or lose the odd minute or think about things they don't want to think about, or have little quirks, I just seem to get a lot of them, lol.

Thing is, I can be seriously ill, but 75% of the time I am utterly fine, it's just that I forget to take my pills The problem is, that often I won't call the professionals myself when I start getting ill, and a lot of the support I need is quite low level - ie just keeping an eye out. DH has been really good at that. He gets told by the doctors to hide my pills sometimes. What would happen if he wasn't there? The police have dropped me off into his care a few times. Once he refused and I ended up in hospital when I would have been allowed home otherwise (he refused partially on purpose to get me more help, and it worked)

Meh. That all sounds a lot bleaker than it is. I am honestly ok most of the time, and the times when I'm not ok are usually pretty mild - on the scale of a mild to moderate PND or something. It is just every now and again that suddenly goes worse.

I tell the HCPs about me not being able to keep track of the days and they just laugh and say "ooh, don't we all!" I have a watch now that tells me the day and date and time, which is great, so I can hide that quite well.

MotherMucca · 28/04/2011 22:45

WTF are your HCP's doing, laughing? Maybe they don't realise that you need more robust support.

What was said at your last CPA meeting?

Butterpiecrimearea · 28/04/2011 22:49

Whats a CPA meeting?

Butterpiecrimearea · 28/04/2011 22:52

I think the problem, in a way, is that I am "normal" most of the time, so I think people think I am making it up a bit when I say that the night before I had a panic attack or whavtever, or they think I am exaggerating or something.

Also, when I get uncomfortable talking about something (and I hate saying this stuff out loud) I change the subject on to normal things, so to them I suppose I am saying these things in the middle of a conversation about the weather or whatever. So they probably sound like I am saying that I am a bit ditzy sometimes.

Butterpiecrimearea · 29/04/2011 00:20

Oh, I think I have that! I know I get a copy of a care plan every now and again, after the doctor has been to see me. Not every time though.

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