Hi Catflaps. Glad you found my post helpful. It's a bit difficult sometimes reaching out to strangers on a laptop isn't it, but I think it is realy important that we can support each other, and MN is brill for this. As I have probably said before, you have to have experienced this awful awful illness to understand it, and then it's only partial understanding because everyone's experience of anx/dep is different I think.
I honestly think that going cold turkey on your meds was not a good idea at all and you will undoubtedly have been suffering from withdrawal symptoms which has almost certainly made things worse for you. I wonder why you went cold turkey? Were you feeling better or just a notion that you didn't like taking them?
You ask about my hospital admissions. I had never suffered any MH problems until 1995 when my dearest and closest friend died of ovarian cancer (and no catflap you DON'T have that!)at age 46. We were as close as any sisters, lived near to each other, at school together, teenage yrs together, brought our children up together and worked together. She actually died in Sept 94 and I struggled through till the following Jan (95) and tbh wasn't that bad, of course I cried a lot and missed her but it wsn't until Jan that I started getting symptoms of anx/dep (which I had no idea about as never had them before) I truly thought I was going mad, I was so dizzy I could barely walk and was crying crying crying most of the time, and suicidial thoughts galore. I kept going to the GP but only told him I was dizzy! Anyway a severe episode of depression built up very quickly (in about 3 weeks) and finally my DP took me to GP and told him what was going on and I cried and cried and said I felt like I was disintegrating. He asked if I would go into hospital and I said yes (I would have gone anywhere). Had appt with very nice gentle cons psychiatrist that afternoon and she said I needed to be in hospital. She started me on ADs immediately (the old fashioned tryclic ones) imipramine 150mg and after the first terrible, frightening week when I did nothing but cry I started gradually to pick up a little (as in bits of light appearing in the darkness for an hour or so each day) Thing was no-one else in the ward seemed as bad as I was but there were people in there with psychotic illnesses and other sorts that I knew nothing about, all I knew was they weren't crying like me! Anyway the psych was very caring and told me this was a very nasty illness and I had to take time to get well again and stay on the ward and continue to recover. She never pushed me and said I must not do anything that was an ordeal, and slowly I started going home for the day and then overnight and was eventually discharged (the 3 months included the coming and going from hospital) which is how it work on psych wards. You aren't just discharged like in a gen hospital.
I continued taking the meds for 14 years and was fine, back at work, and never had any thoughts of it returning. Had a bit of counselling about my friend's death but not much and over time the memory faded and I was ok.
Then I started seeing a psychologist as I wanted to come off the meds and each time I had tried, just reducing 25 or 50 mg I had ended up with acute withdrawal symptoms which gave me the same symptoms as the illness, crying, scared, empty etc etc. I also tried coming off with GP supervision and the same thing happened. I then heard about this psychologist who was an expert in helping people come off long term use of meds, so I went to see her. She told me that I must be in control of the plan to reduce and must do it very gradually. At the time I was on 100 mg (I used to forget to take the mid day one while I was busy at work) and was fine on the 100mg. The psychologist said I could safely reduce 25 mg but I was too scared and said I only wanted to reduce 10mg and she said that was fine. SO I reduced 10 mg per month and it took 10 months for me to be off them. I finally finished the meds in July 09 and in Jan 2010 I had another severe episode of anx/dep and would you believe I didn't recognise it this time.
I had had a gut bacterial infection (bit like salmonella) and NO you don't have that either! and was laid low for weeks, Christmas came and went in a haze of feeling physically ill and lifeless and anxious. However the symptoms got worse over the next 3 months and by this time I knew it was anx/dep but didn't want to go back on meds because it had taken me so long to get off them, so struggled on and went back to the psychologist but that didn't help at all and by Easter I was rock bottom and on Sat before Easter Sunday (last yr) my friend took me to A & E as I was in such a state and I saw the crisis team (which was a dr and a CPN) and they said they would refer me to psychiatrist and sent me off with diazepam. By Tuesday after Easter I had stopped eating and drinking, wouldn't getout of bed, was terrified of anything and everything and a conslt psych came out to see me (not a very nice man)asked me lots of Qs while I cried and shook etc etc and said I just wanted to die (which I did) and he said I needed to be in hospital. I went into Older Peoples Ward as I was 66 then (and ward was for over 65's) and most people were in their 80s but I couldn't have cared less I was so ill. However they had closed one of the dementia wards, so patients with this awful illness were being admitted and that was very worrying as they did bizarre things and one man used to come and glare at me right in the face and call me horrible names. I knew he couldn't help it but it scared me all the same. Some of the nurses were ok but some seemed like they couldn't care less to be honest, and no one comforted me when I was upset, but fortunately I had a loving DP and some good women friends who visited me.
I was put backon the imipramine and it did kick in again reasonably quickly but I had some truly terrible days in there. However eventually I started to improve, but this time the psych was trying to rush me out of hospital and the nurses said he rarely admitted anyone as he thought care at home was better. I was very intimidated by him and it was all so different from the first time. Anyway I was discharged after 3 months but didn't really feel that good. However since then I have been fine at times (went for 6 weeks feeling fine shortly after coming out) and thought it was all over but NO, ever since then, I have had many blips/setbacks/bad patches (the medics use all those terms) and it is completely unpredictable. I can go to bed feeling fine and wake feeling like shite. The blips last anything between 3/4 days to 15 days (that was the longest) they vary in intensity too, sometimes they only last part of the day, sometimes all day. Am just comingout of a short (5 days) but dreadful blip (worse one I can recall for ages) so that's it really, sorry it was such a long answer.
I have been seeing a lovely CPN regularly but she is leaving and so she will transfer me to a colleague (but she was so lovely) and the consl psych is coming to see me on Monday and will probably officially discharge me, as I have been on his books since last April. I will tell him about the blips and ask if upping meds will help but don't think they will.
I am going to end this post CatFlap because my laptop has a nasty habit of suddenly losing all the text but will send part 2 in a min!