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Scared about more surgery

7 replies

orangeflutie · 15/12/2010 18:45

I've just been to the hospital today for a follow up appointment, as in October I had an ultrasound and a 6cm ovarian cyst was discovered.

I had one removed in April this year privately and was told it would be advisable for me to have an ultrasound six months on to check for any more.

Anyway I spoke to the gynaecologist today and she has said that it is the same cyst that was removed in April and that it has reformed. She said I will need surgery. I was expecting this but not for her to tell me it might not just be a laproscopy but could be a laporotomy (a much bigger incision), and also my left ovary may have to be removed.

Right now I feel really upset and I think I'm going to take a while to come to terms with this news. Luckily I've had my DC, but I still feel quite shocked. She also did an internal exam which I'm fairly used to by now but I think she could've been a bit gentler. It hurt and now I'm not sure I want her doing this surgery.

The trouble is I probably don't have much choice as it will be on the NHS. I no longer have private medical insurance.

Please help I feel really shaky:( I'm currently on ADs and was feeling much more optimistic about things and this has really set me back.

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madmouse · 15/12/2010 18:49

Oh Orangflutie not much practical advice (apart from the fact that you do have a choice on the NHS if there are more hospitals near you)

But do want to send you a big big hug xx

orangeflutie · 15/12/2010 19:38

Thank you madmouse. There aren't many people in RL I feel I can share this with. DH is away until Sunday. I did manage to have a chat on the phone with him earlier which helped a little, but I just can't stop thinking about it all. I haven't been able to eat properly today due to worry.

I was due to see my GP tomorrow but on Monday was told she'd not be in on Thursday so will have to wait until Monday:( This can't be helped but I really need to offload and get some more advice. I may need to get a second opinion. I felt in safe hands with my previous gynae but I didn't get that feeling about the one I saw today.

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meala · 15/12/2010 19:44

Hi there
I had an op for this last year. Cyst and ovary were removed as there was too much damage from the cyst. I was told that it has no effect on fertility etc as the other ovary compensates entirely. It did take a good few weeks to recover from laparotomy but it does get better - and no more pain from cysts.

orangeflutie · 15/12/2010 19:52

From what I've read a laparotomy is major surgery. I'm scared about it and how I will feel and even look afterwards. How long I will be in hospital and the longer recovery time. I have three dds to look after and no family support nearby.

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marriednotmulled · 15/12/2010 20:15

Hiya.

Can appreciate how scared you are but I have to believe that they don't make these decisions lightly.

My dsis had a laparotomy some years ago when having endometriosis treatment. Her scar looks very like my caesarian scar and has faded in a similar fashion.

Am waiting for a date for similar surgery myself and they have said they will try to do it laparascopically and keep me in for 2 days. If not, it will be a laparotomy and a hospital stay of around 5 days. They won't know until they start digging though which is not very helpful from a planning POV.

How old are your DDs? If they are very small then would you (or social services) be able to arrange a short term home help? Maybe friends too.

meala · 15/12/2010 20:43

I had a 3cm scar like a caesarean scar. I was in hospital for 4 days and was signed off work for 7 weeks. It was advised not to lift anything heavy for a while which was the bit i found most difficult with kids but they get used to doing other things. We removed the cot side so i didn't need to lift in and out etc.

Hopefully they'll be able to do it keyhole for you :-)

orangeflutie · 15/12/2010 22:23

Thanks for sharing your positive experiences.

I think I definitely need to ask more questions about the surgery. One of my worries is my lack of confidence and maybe trust in the gynaecologist I saw today. I'm not sure if she would bother trying keyhole first. It's a feeling I have and it bothers me.

I may be being oversensitive but today I felt more like a number not a person.

I'm used to working with vulnerable people and I make sure I treat them with respect and dignity and today I certainly felt vulnerable and that there was not time for my worries to be addressed.

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