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Re My Mum - I urgently need help!!!

25 replies

alisara · 01/10/2010 00:35

I hope someone out there can help me.

My mother has a long history of depression and I "think" manic depression all the signs are there.

She self-medicates (was in the medical profession and in late fifties - she stopped work approx 10 years ago). She has always self medicated. Whilst not at work to give you all an idea, she would self medicate (phenergan otc painkillers on top of her prescription, which I know would have included ads and sleeping pills and valim it was and is honestly quite a big list) along with the self-medicating she would take to her bed, no-one outside of the family (and we are a small family) was/is allowed into the house and she would take to her bed. Mum would never go out of the house unless it was to go shopping and we have always been in debt (always the best dressed family lol!). Mum has always been verbally aggressive, a lot towards me to the point I am destroyed and now towards my sister. She likes to think when she is like that that I am evil or sister is evil. But when she is good she is very very good as the old nursery rhyme states and you could not wish for a better mother.

Anyways in the summertime of this year she started to get confused break out into rashes and stumble and in the background for approx 2years she believes she has a worm in her head, and is constantly attacking her scalp with scissors - that sounds really funny but it is so distressing she belives it and is just so convincing about it. Also she has just stayed in her bed. Mum was stumbling around a lot so my sister (another mumsnetter who may read this! and be glad i posted) took her to casualty. This happened a lot and my sister kept taking her to casualty. Mum was discharged each time and kept deteriorating. We thought it was a stroke and possibly vascular dementia or a problem with her artery. Mum has had every physical test known to man and it is psychiatric (which i always had known).

The last few months have been so so tough, we thought mum was at high risk through stroke/tia's and her arteries. She just lay in bed all day. And on top of that kept on self-medicating (I know now what the stumbling was about)and to my shame if mum did not get her otc drugs things can get very nasty so we got them - i feel and my sis feels so guilty but please do not judge.

On Sunday of last week my sister called me she was really upset mum was in bed being rotten to her, my sister smelled burning - my mother decided to set fire outside her bedroom to kill herself. My sister got it out. Please bear in mind mumsnetters that my sister and i have told the gps, called social services everything in the past few weeks, absolutely no help (they state she has been referred, due to the fact she was having hallucinations when admitted in the summertime for her so-called turns)as they referred her to be assessed by a mental health team for next week.

The next day i had the most horrid sixth sense and went to my mothers, she was again in bed with a lit cigarette and half-asleep, i woke her up and she told me that she had taken x48 painkillers and a strip of diazepam. I called the gp, and he said he would come out. I told my mother - which i worried about as no-one is allowed in - and she said great she needed help and i told her maybe hospital (psychiatric for a break) and she was glad. The GP arrived and called an ambulance, my sister and i went and mum was given a drip with antidote.

My mother told the doc on duty how she didnt want to live etc, and my sis and i spoke privately to the nurse and told her the sit, she was great. Mum was moved up to a ward, and again my sis and i told the doc on the ward what was going on and again - great.

The next day mum was visited by a sw and i think psychiatrist. They asked my sister and i for a private chat and we told them everything, they told us about sectioning mum etc. They met with mum as well on her own.

My sis and i were preparing ourselves for mum being sectioned it was really hard but we really cant cope any longer and i have a dd that sounds terrible but it is now affecting our mental health.

Another social worker and cpn came to see mum and guess what they discharged her. My sister went mad at them etc we feel they have not listened (and my mum is sitting there on the bed denying the fire, lying in bed, self-medicating) she asked my sister and i if we could stop in the chemist on the way home and get her phenergan and painkillers..... so the cycle and hell starts again.........

The sw said that a psychiatrist would see mum that was yesterday, he had a private chat with me and was excellent he thinks schiophrenia (sp?) or manic depression i agree, he told me that my family meaning dd and i come first and my sis also needs to care for herself and that he would offer mum an inpatient place.... Well he spoke to mum and (she was sitting looking perfectly calm) mum roared at him - how dare you, i had a blip etc, i do not lie in bed all day the whole lot, the psychiatrist said someone would be around to see her in the morning...

A sw and cpn came to see her this morning and i could hear her laughing and joking with them they left and told her they would be back in the morning.

I went to ask her how it went and she said to me - dont you ever dare discuss my personal business with anyone again, and all day long she harped on and on at me to get her otcs until my dd came back from school and i took dd home

I called the gp, to ask for something for her (as she asked me to) he called me back when i arrived home and said no she is not getting a prescription, he also told me if she wants something she can ask for herself- which i agree on - but how do we tell her that?

So the whole cycle starts again and my sister and i cant cope, she lies to the professionals about it all and what she has done so what next....

Who to turn to?

OP posts:
madmouse · 01/10/2010 07:21

Oh my word what a situation Sad

I feel almost arrogant posting here because I have no idea what it is like to have to live with a situation like this!!

But I have some experience with drug addicts and I know there is only one thing you can do in the end and that is stop buying drugs, stop funding their 'habit' and let them go their own way. To help them, and to protect yourself and your family.

It sounds to me like no longer buying her OTCs although really hard would short circuit the whole cycle. She would no doubt deteriorate so quickly that soon no one would doubt she needed serious help.

Whether you can find the strength to do that, whether I could in the same situation, I have no idea Sad

Wishing you strength!

Toffeefudgecake · 01/10/2010 07:30

I'm so sorry for you and your sister - sounds like a truly terrible situation. I have no experience with this, but I did wonder if Mind would be able to advise you on what to do next. Their helpline is here

I hope you are getting support yourself - do you have good friends you can share this situation with? You need all the support you can get.

Best of luck.

alisara · 01/10/2010 08:57

Thank you Madhouse and Toffecake.

Madhouse - I refused outright yesterday to buy her otc's (bear in mind she has been lying to the mental health team all week long - making my sis and i look like idiots) well she harped on and on all day, to the point where if i dont have a mental health problem now i soon will! She was actually looking for the car yesterday to drive herself to the chemist - this is coming from a woman who wont leave the house and has already crashed the car twice - not major but her driving is swervy sp? and she has left it with dents etc. My sis is taking the car keys everywhere with her. You are right about mum not having access to otcs my sis and i wont be buyin them and as you said we will see what happens then, and yes it will be hard.

I am only popping over to see her for a couple of hours today not a full day - i have already missed a week of work and money has become really tight, i cant afford to keep going to see her and its not nice when you are trying to help someone mental health prob or not and they are being rotten. My sis lives with her and i am so glad she works f/t otherwise i would worry about her - which i am already.

I am just sick sore and tired of trying to help, contacting gp, sw, mental health teams its like talking to a brick wall, the whole family is affected and they just dont want to know Sad

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alisara · 01/10/2010 08:59

Thank you Madhouse and Toffecake.

Madhouse - I refused outright yesterday to buy her otc's (bear in mind she has been lying to the mental health team all week long - making my sis and i look like idiots) well she harped on and on all day, to the point where if i dont have a mental health problem now i soon will! She was actually looking for the car yesterday to drive herself to the chemist - this is coming from a woman who wont leave the house and has already crashed the car twice - not major but her driving is swervy sp? and she has left it with dents etc. My sis is taking the car keys everywhere with her. You are right about mum not having access to otcs my sis and i wont be buyin them and as you said we will see what happens then, and yes it will be hard.

I am only popping over to see her for a couple of hours today not a full day - i have already missed a week of work and money has become really tight, i cant afford to keep going to see her and its not nice when you are trying to help someone mental health prob or not and they are being rotten. My sis lives with her and i am so glad she works f/t otherwise i would worry about her - which i am already.

I am just sick sore and tired of trying to help, contacting gp, sw, mental health teams its like talking to a brick wall, the whole family is affected and they just dont want to know Sad

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Besom · 01/10/2010 09:28

This sounds awful for you. I agree you should contact Mind or maybe Rethink for advice and support for yourself. There may be carers orgnisations local to you.

Just to get this straight, the psychiatrist offered her a place in hospital so he thinks she needs this, but she doesn't want to go? At one point they thought she was 'sectionable' but not at the moment? Have they explained to you exactly why she is not considered 'detainable' in hospital? (Sorry for all the questions). It's just that if this is what they are saying, I think you are entitled to have it explained to you what the reasons are behind this.

Also, what exactly is their plan for her care and treatment then?

Could you phone the helpful psychiatrist and ask him ? Write down any questions you have. Speak to a carers organisation near to you first and see if they can offer you any advocacy support.

alisara · 01/10/2010 09:52

Thanks Besom. This morning i just feel terrible and upset and just havent got the energy to pick up the phone for help, its just easier putting it all down here at the moment. Mum was verbally aggressive and horrid to the psychiatrist, she kept saying how dare you etc theres nothing wrong with me but depression (it is def not depression!)he told her to consider a place in hospital again she shouted at him, and he said to her to consider my dd and myself and my sister, he also said to me that he is sorry for being blunt but to make sure i get back to work and to look after dd and my home as she comes first" and also to convey the conversation with my sister and that she needs to put herself first as well - but mum being mum (sounds horrid seems happy to let us do it all) but as i said we are not coping and we love mum very much, the mother when she is well..

Yes my sister and i were told about sectioning and as i said mum was released back home, they explained to us that someone would see mum everyday which they have, but no-one spoke to me yesterday, other than the gp last night and he said to me to look after myself and dd and i am sick of trying to explain that my mum is unwell we need help. I dont even feel like asking for any more explanations as each time my sis and i try to explain and get help its a brick wall...they just said well someone will be visiting your mum everyday - fair enough - but as soon as they go i have to listen to her ranting and raving and the problem is she just comes accross as a woman who is just a wee bit depressed - as i said mum was a medical professional which makes it all the more difficult she knows exactly what to say and how to act - it feels so so bad at the moment as my sister and i just look like fools

Sorry for the rant, but i am just so frustrated, and feel whats the point of callin the professionals again, as its just someone is seeing her everyday, a 24hr number for the home treatment team has been given, what more do you want seems to be the attitude. (i am also reluctant to call again, as my mum put me through hell yesterday goading me about what did i say, what i did say and going on and on about dont dare tell anyone about my personal life again)

I just want mum to get better, and to stop frightening my sister and i (and in a way affecting dd)with taking to her bed, the suicide attempt the rotten behaviour.

I know i am ranting here - but it feels good to type it all out iyswim!

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swallowedAfly · 01/10/2010 10:05

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alisara · 01/10/2010 10:19

swallowedafly thanks. You got it about my mum! savvy is the word, yes i think i shall have to be savvy as well, and get off my bum and pick up the phone, and keep at the profs!

Just right now i can't, i am just really down about it all this morning, this is the first morning i have had to myself since the beginning of this awful week. I really need it, i told my mum yesterday that i would see her this morning and i just cant i will see her in the afternoon and for an hour or two, my dd needs time with me and i her.

I am meeting my sister for lunch and we can both talk freely that way as we cant talk at mums house as mum listens and we cant talk on the phone same thing - its horrendous!

I do knnow i have to phone the teams again etc, but just cant manage it this morning i am just so sad

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alisara · 01/10/2010 10:41

Just before i sign I sign out of mumsnet, the social worker from the mental health team just called.

She told me that my mum is not answering her telephone (that is because i am not there!) the sw also asked me how i am etc it was great and she told me she has the feeling that mum is telling her what she wants to hear - so maybe we are making headway?

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Toffeefudgecake · 01/10/2010 10:42

You are doing the right thing to have a morning to yourself and make sure your DD has time with you.I'm glad you and your sister can talk about the situation at lunchtime.

I agree with Swallowed and Besom - you need to keep on at the professionals until they help you. Don't give up. The psychiatrist may well be able to advise you or explain the actions taken so far.

Get some time to yourself to recover, then take a deep breath and start making phonecalls.

I really hope your mum gets the help she clearly needs very soon.

And I'm so very sorry you are feeling so down about it Sad. It sounds like a truly awful situation and it must be very worrying and utterly exhausting.

Toffeefudgecake · 01/10/2010 10:45

Ooo - x-posted with you Alisara - that is great news about the sw!

alisara · 01/10/2010 10:54

Thank you Toffee, still sittin around the house but need to get ready now, i just feel a lot better with the fact that the sw has called, she said she felt that mum is telling them exactly what they want iyswim and so thats why she called, she also said to make sure my sister and i (which is hard for my sis as she lives with mum) call the home treatment teams number when we can and it is 24 hrs - so maybe just maybe they believe my sister and i, please God

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swallowedAfly · 01/10/2010 10:58

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swallowedAfly · 01/10/2010 10:59

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bigstripeytiger · 01/10/2010 11:11

I would agree with putting everything in writing and sending it to the psychiatrist. They can only act on information that they have, and if you have put it in writing then that shouldnt leave any room for doubt.

It might also be worth finding out what the procedure is for sectioning people where you are (different countries have different laws) for example in Scotland the approval of a 'Mental Health Officer' (a type of social worker) is needed, so it might be that the psychiatrist had wanted to section your mum and then the mental health officer hadnt agreed, leading to the change in plans.

alisara · 01/10/2010 19:44

Swallowedafly and bigstripey tiger - thanks.

Thats a good idea putting everything in writing, i will do that this weekend, my sister is great though I shall get her to do that. I have a feeling they know as well and thats why a sw and cpn are calling out each day. They are calling tomorrow as well - saturday, cant believe that so they know something is amiss.

Thats a good point with the different views re the change of plans i didnt think of that.

Anyways after lunch with my sister today I went to see mum. Surprisingly she was up and washed etc. In a grim form though harping on about drugs and on the phone to the gp for a prescription aaaaaaaaaaaaaahhhhhhhhhhh anyway she told me that sw and cpn had gone, they are great girls etc etc. They recommended medication for her which the chemist can deliver each day (she got a supply until monday today) i had a quick google of the meds she received and it is called Olanzipine/sp? anyways it states that it is a drug for schizophreinis/sp? and bi-polar.

My sister came back home and this evening we had a quick update - re mum being in goodish form today etc. If i get a chance it will prob be monday (if mum doesnt get up to any antics that is) i shall call the home treatment team and see what the diagnosis is. I have always felt mum had bi-polar.

Well off to enjoy my weekend and daughter Smile

p

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Besom · 01/10/2010 20:00

I'm glad your last post seems a bit more positive alisara.

I think you're right - they wouldn't be visiting every day if they were not concerned about her. I hope she continues to improve and the new meds help.

You must be exhausted. Hope you get a bit of a breather this weekend.

knobbingnowt · 01/10/2010 20:20

Glad things are improving, I few things I thought of which might help/explain:

Sometimes there is a fine line with someone being detainable, they may need to be in hospital but they dont meet the criteria for being detained, it sounds like this may of been the case when your mum was first assessed.

Is it a crisis team she is seeing? it sounds like it if she gets daily visits at home, this is the second best option than hospital. It may seem they believe your mum but believe me they wont Wink its all about getting a rapport so they can start to do work/talk about medication and hopeful complete a full assessment.

A diagnosis will take a while, they may initially give her a working diagnosis while they continue to assess but a bi polar type illness normally takes a few cycles to be confirmed. The treatments for schizophrenia and bi polar are similar so they will suggest medication to help and assess the effect it has on your mums symptoms.

Always write things down for the professionals if you feel your not listened too, it really does help.

As next of kin you can request a Mental Health Act assessment at any time, they will assess if your request is appropriate.

HTH.

QueenofWhatever · 01/10/2010 20:37

You are in a very difficult situation and it sounds awful. My amateur diagnosis is paranoid schizophrenia compounded by painkiller addiction, personality disorder at a push. The bipolar surprises me a bit.

I have just had a few very traumatic weeks with a friend who was eventually sectioned for bipolar although absconded a couple of times and the police were involved in tracking her down as a missing person.

My comments might sound blunt, but are genuinely meant to be helpful. Why are you actually going round to your Mum's? When she calls, why are you talking to her and not getting her to call the crisis team. I have a very strong suspicion that she would not take an overdose that will kill her or set the house alight. I think she is adept at creating crises and the family dynamic is contributing to this.

You do not know what the health professionals and social workers are doing. Unfortunately they are not there to do what you and your sister think is right. In light of patient confidentiality, they do not have (and maybe should not?) tell you her diagnosis or the care plan.

However they are communicating poorly and inconsistently. I would continue telling the GP your concerns as s/he holds the primary records. When the situation with my friend kicked off, the lead GP I worked with (I'm NHS, ex mental health) said they love it when a friend or family member phones up and says 'I know you can't tell me anything and I don't expect you to, but my concerns are XYZ'. I agree with an earlier comment that the staff involved will have seen all of this before, I think they may be less taken in by your Mum than you think.

Reading back my post, I am tempted to delete it but will just go ahead and post. I think you are having a horrible time, but you can't be responsible for your mother at the end of the day. You have gone beyond the call of duty to look after her and I think now is the time to be selfish and look after yourself and your family.

Good luck and I hope it works out well. I think the next few days could be tricky as she is going through painkiller withdrawal. If you end up going to A&E with her for any reason, take any member of staff aside and tell them she is withdrawing.

alisara · 01/10/2010 20:59

Oh Queenofwhatever that was actually a good post, and i posted here for help and also a rant and thank you for posting i am in no way offended. Yes you are right we are adding to the family dynamic and it is hard not to, it is about my mother whom i love very very much and in her 'right mind' would be mortified. But you are right and i should be selfish but i am finding this nigh on impossible.

A doctor in the hospital whom my sister and i did pull over after the overdose incident did say that my sister and i didnt really have a 'normal' life and its not our fault. That sounds really weedy but its all we have known for our lives it was our normality (but as you grow up you know it is not).

I have posted that she seems better at the moment but i think going by your post when you say tricky i feel on edge iyswim?

Well i am off to take your advice and try to have a lovely weekend with my dd!

OP posts:
alisara · 01/10/2010 21:04

Thank you Besom.

Knobbingnot thanks as well, your post has been really helpful and has made things really clear to me. I feel very much in the dark about it all, even though i have been speaking to the profs.

And yes it is a crisis team.

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swallowedAfly · 01/10/2010 21:18

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swallowedAfly · 01/10/2010 21:20

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alisara · 01/10/2010 21:25

thanks swallowed a fly, been googling it it does seem a heavy drug, but if it helps her.....

hopefully she wont be messing about, but my sis and i are refusing to go and get her anything and if she does i will be straight on the phone to the crisis team which yes will be behind her back but i am not going to lose my mum...

well off to watch the eejits on Strictly Smile

OP posts:
LucindaCarlisle · 07/10/2010 17:59

Have you and your sister considered making an appointment to see mums doctor (GP)?

Other alternative is to phone up the fire service and ask them to make a Home Safety visit to your mum.

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