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Please help me to help my father

10 replies

PickledMoomin · 09/09/2010 20:43

My father is a mess. For the last twenty years or so he's suffered from unexplained pain in his chest and legs but despite many tests, doctors have never found a cause or cure.

He's spent much of these years alone in his bedroom. My mother lives with him and takes care of him the best she can and I visit a few times a week, as do my sibilings and their children. The only time he used to leave the house was for a monthly appointment with his GP or for a hospital appointment. He'd occasionally take my Mum food shopping but would wait in the car.

He's taking prozac and over the years has taken lots of presciption drugs - mainly painkillers but nothing has helped him. He'll often throw a line such as 'You don't know pain like this' and I've often thought that he doesn't help himself in any way...perhaps I've run out of sympathy (after seeing how much he's controlled and prevented my mum from leading any sort of life) and can't help but think that the problem is in his head and that I'd be in pain if I only travelled to and from the toilet and spent the rest of the time lying in bed - surely it'd hurt anyone to get up?!

In the last six months, he's declined even further. He hasn't visited his GP (who has now sent, by post, another repeat prescription - that'll be 9 months in total without even so much as a phonecall to see how he is), no longer leaves his bedroom, watches tv, reads, or sees anyone other than my mother who he can't hold a conversation with and instead lies all day, everyday, with the pillow over his head.

Before March 7th (the last time he went out and nothing happened that day to cause these changes) he'd answer the door if I was there with my children or answer the phone if my mother was out. These days, he'll leave me standing on the doorstep in the rain, ignores the phone and has no contact with his grandchildren who he used to make an effort to come downstairs and see if they were there. A few months back, a repair man came to the house and unsually, my dad had gone into the kitchen to get some water. When he heard the door knock, he ran and hid in the downstairs storage cupboard.

More worryingly, prior to six months he'd have one meal a day and now he's often going days - right now two weeks without any food. My mother cooks for him and throws away meal after meal uneaten. He's drinking LOTS of tea and smoking as much as he always has - if not more. My mum thinks he weighs less than eight stone and he's touching 6 foot. He can't stand up straight and every step seems to take him a lifetime. He doesn't wash, shave or cut his hair. And, when he does eat he'll sit on the side of the bed all night with his head in a bucket.

My poor mother has done all she can - this situation has become 'normal', not just for her but for all of us. She has stood by and supported him in everyway possible, attended every hospital appointment (but he makes her wait in the car) and has no life of her own - he won't allow her to work or leave the house often because there'll be no one to look after him...and he'll make her feel guilty her by saying, "There's nothing here for me to eat - you don't buy any food for me - I'd better have a slice of bread before I die" etc. despite her almost having an anxiety attack when she's in the supermarket because she can't think of anything exciting that he'll definiately eat.

Life can't go on like this for either of them and I've decided to make an emergency appointment in his name tomorrow and go along myself to speak to his GP. I've convinced my mother to go along with me but she feels as though she'll be going behind his back and he'll be FURIOUS if he finds out she's spoken about him. I really think we need to get a crisis team to see him, have him assessed and even sectioned. Does anyone know how likely this would be given the circumstances? I really cannot see anything changing if he's only medicated - he needs to be taught how to live again.

I'm so sorry this is so long...I guess I'm just looking for some advice on where we can go from here and what might happen so that I can prepare my mother.

OP posts:
PickledMoomin · 09/09/2010 21:06

Bump

OP posts:
PickledMoomin · 09/09/2010 21:34

Bump

OP posts:
pippop1 · 10/09/2010 17:13

I'm sorry that no one has replied. I think you are taking positive action by seeing the GP.

My DH had to do this for his mother (different reasons) and he went to the GP in her name in desperation. A few days later two GPs (hers and another one at the practice) were in her house with my DH and a plan was devised. GPs were very helpful and things have started to happen.

Your mother (if not your father) will be grateful.

PickledMoomin · 11/09/2010 18:54

Thanks. Saw his GP on Friday and he's going to visit on Monday. This will hopefully get the ball rolling.

OP posts:
hugglymugly · 11/09/2010 19:36

I've only just read this. Obviously, there could be many possible reasons for your father's feelings and behaviour and I hope for everyone's sake his GP can provide some much-needed help.

I just wanted to post a little anecdote about my (now late) MIL who started doing something similar. This was quite some time after her DH had died. She had been genuinely ill, but then took to her bed, and wasn't eating. We visited every day, sometimes more than once, but nothing I suggested, such as different foods, moving in the television or radio, worked at all. She just seemed to want to lie in bed in silence 24 hours a day. We did get her GP involved, but she was clear-minded and articulate, and her health wasn't too badly affected at that time through not eating. However, what her GP suggested was that she spend a short while in a particular nursing home - one which he knew well. We were somewhat surprised when MIL agreed - maybe because it was the GP saying she needed to go there, maybe she wanted more peace and quiet than we were giving her, maybe she just wanted her situation sorted out and neither knew how to do it herself nor felt we could help her do that.

The nursing home manager/nurse came and collected her, and advised that we shouldn't visit MIL for the first few days - though we visited the manager every day who updated us. The manager had experience with older patients with symptoms of depression/self-neglect, and seemed to have just the right attitude, and MIL started eating again.

Because MIL's episode was fairly brief, her recovery was quite quick. Obviously, if the situation had gone on for a long time, it would have taken longer for her to recover. I do think that what helped was that she moved to a completely different environment with nursing staff who had experience and various tactics to use. And also I think in her case, she wasn't in the environment which was full of her emotions and memories.

I do hope your GP can get the recovery process started - whether that's by your father's consent or via a section. It is so very hard to see what's going on and have run out of ideas about what to do.

PickledMoomin · 13/09/2010 19:15

Thank you for posting, hugglymugly. I've only just logged on - busy weekend combined with further issues with my father.

The GP visited today. Dad was happy to see him and said afterwards, "See, someone cares/a visitor - wow!!!!". The GP wants some tests done - bloods etc. and the district nurse will visit this week. I'm going to call him tomorrow for an update.

OP posts:
pippop1 · 14/09/2010 16:52

Sounds positive and that your Dad was grateful for some help. Well done!

lal123 · 14/09/2010 17:01

well done - hope your Dad and the rest of you are feeling better soon

hugglymugly · 14/09/2010 19:19

That's a very good and positive start, PickledMoomin. Some people seem to need a professional from outside the family to help them get back on track. Even my MIL's neice, who is a community nurse, couldn't make any headway!

It sounds as though there's a lot to unravel in your father's case as he's had issues for so long, but there's now hope for the beginning of recovery for him, and also the rest of you especially your mother. He's now on the radar as far as your GP is concerned, although you might need to keep making sure he stays there and gets all the help he needs.

Well done for getting his GP involved. Undoubtedly there will be ups and downs in the weeks and months ahead, but now you've started the process of getting HCPs involved there's a good chance of getting his physical and mental issues sorted out.

chilipepper27 · 17/09/2010 22:25

it seems like your dad could be depressed but he really needs to accept help , it seems unfair that everyone is running around after him and then he is basically saying no one cares. a person very close to me suffers depression its occaisonal but when it hits it is awful and i used to try everything i could to help but the person in question told me (when they were better that it doesnt ). im not qualified in any way to give help but i think your mum and anyone helping look after him should do some things for themselves and not run around after your father so much. i am a carer for the elderly and have found that if you arew willing to do everything for a person then most of the time they are quite happy to let you do everything for them. i hope things turn out well for you all

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