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Elderly parents

Does anyone else find having elderly (and unwell) parents absolutely draining?

141 replies

Bluespecs · 17/05/2025 11:15

To the point that running away or disappearing seems like such an appealing option right now?

I am so envious of my friends, none of them have this issue and all of their parents are either in good health and independent or have passed away quite quickly.

My parents live a 5 min walk from me. Mum is 82 and has Alzheimer's (7 years in so far), breast cancer, can't walk far due to being bent over with osteoporosis and also has issues with her heart. The dementia is working itself in quite deep now but she is otherwise quite happy but it's very much like looking after a toddler these days. She can do very little for herself.

Dad is 84 and actually in really good health but he is miserable from all of mum's issues. He has always been a difficult character but over the last few years has become worse. He is now so very bitter and he is very difficult to deal with at times. He has fallen out with everyone (including neighbours) and has become obsessed with moaning about absolutely everything and everybody. He does not care what he says to us all and can say some very upsetting things. He refuses to acknowledge that he is depressed. It is beyond draining.

We have all the practical stuff in place. Full POA's, Attendance Allowance etc. Mum goes to a day centre two afternoons a week and there is a carer in every day to help shower and dress mum. Mum has had respite care in a local care home but not sure if this is good from her as she came home very confused. And having viewed quite a few local care homes, all with great reviews and ratings, we are not sure what to think of care homes.

But regardless of all the practical stuff it's the emotional turmoil which is so hard on both my sister and I. Watching my lovely mum slowly dying and losing her mind and us having to put up with my dad's constant nasty ways.

I am so tired of it all. I love them both dearly but bloody hell, it is so draining having elderly and unwell parents and the fact that it's dragging out for years is down right depressing. I honestly wasn't prepared for this, all my grandparents died quickly so I never saw my parents struggling with years of caring. I genuinely imagined my parents would go in a similar way.

Does anyone else really struggle watching their parents coming to the end of their lives?

OP posts:
TorroFerney · 21/05/2025 15:34

BlueLegume · 21/05/2025 08:47

I concur with living with guilt being better than resentment. Posted this before but it is really useful
https://outofthefog.website/toolbox-1/2015/11/17/fog-fear-obligation-guilt

A million per cent this. It helps me to remember that Guilt is just a feeling, feelings aren’t facts and guilt won’t kill me.

Bluespecs · 21/05/2025 15:37

Projectme I often mention that I feel sandwiched between my dc and my parents (who in all sense and purpose have also become my kids). The guilt is overwhelming at times and it is so much easier said than done when people tell me to drop the guilt. They are elderly and struggling. I have dropped a lot of what I was doing for them but it is so hard to drop more.
My parents had none of this as their parents went fairly quickly and my dad just can not comprehend just how stressful it is having elderly and unwell parents to worry about alongside my every day concerns.

Angrymum22 I totally agree, I do NOT want my children to go through any of this if dh or I get dementia. It actually keeps me awake at night, worrying about it.

OP posts:
SockFluffInTheBath · 21/05/2025 16:04

But now with a generation that don’t see it as the norm.
That sounds like there’s an expectation we should just suck it up. My norm is working full time as an engineer. If anyone thinks I should be giving that up to be more available to wipe my FIL’s bum they can take a walk. Can’t expect women to work AND carry everything for everyone.

toomanydicksonthedancefloor1 · 21/05/2025 16:07

Yes absolutely. My DH bears the brunt of it too,but we are both exhausted with my PIL. both ignored their health for years. We’ve spent 5 years battling with them both to get MIL diagnosed as she clearly had dementia. They both spent this time falling out with us and covering it up and saying nothing wrong with her. FIL spent 3 years doing nothing (despite us going on and on at him) about a persistent cough and several blood tests with raised white blood cells. They eat KFC and Greggs every day and never even go for a walk. Now we are in a position where within the last 3 months MIL has an Alzheimer’s diagnosis and is clearly a lot worse than even we thought. And my FIL has terminal cancer diagnosed in his brain, stomach, lungs and kidney. Obviously both can no longer drive. And we’ve spent 15 years trying to get them to move nearer to us and they were too stubborn. They’re 30 minutes away now. My MIL doesn’t know what day of the week it is and my FIL is getting more and more irrational and selfish due to the brain tumour. My poor DH is there every day to collect a prescription from Half a mile from their house, racing over to sort their Ring doorbell out (they seem obsessed with the stupid thing) and being chastised for not getting there quick enough through rush hour traffic due to yesterdays emergency requiring a GP visit. They haven’t seen their grandchildren for almost 3 weeks and don’t even seem bothered, they’re just absorbed in their own world and seem to have lost all
consideration for others. They won’t even FaceTime us. It’s an absolute rollercoaster of emotions and daily drama. My DH is an absolute saint and he is on his knees. Sending massive hugs to everyone else struggling. Take it one day at a time, that’s all
you can do!

thepariscrimefiles · 21/05/2025 16:16

Bluespecs · 20/05/2025 10:49

My sister and I would be content with a care home (even though we would both prefer the care to be at home) but our dad doesn't want to spend the money.
I can not emphasize how hard it has been to get him to agree to the simple things such as the carers and the day centre and it's all because of the cost. If they were all free he would have everything available to him. He constantly asks me to check what he's entitled to even though it's very little as he has a lot of money. He's tight and mean with his money, always has been sadly and now in their hour of need he is still being very obstinate and hard work (even getting new clothes for mum as she's put on so much weight from her medication is hard work).

He moans about the cost of everything. I have started threads about this in the past and people have told me to go over his head due to our poa status but that is so much easier said than done especially as my sister will often back down and side with dad. It is so very tiring and frustrating, a brick wall scenario at every step.

Are you the poster with previous threads where you said that most of the money that your dad is hoarding came from your mum's inheritances which made his refusal to spend any of it making your mum's life better/easier seem even more selfish?

lemon6 · 21/05/2025 16:21

My mum did care for her parents, she had three siblings that did hardly anything even though they all lived close. The difference being was mums parents were young when they had their children, so of course mum was younger too plus, as was common then mum only worked very part time.
My mum could never understand why I was working until I was 66 and why I was caring for young DGC when I was well into my 60s. She used to say I always looked tired and I should give up work. If only it was that easy.

Bluespecs · 21/05/2025 18:29

thepariscrimefiles · 21/05/2025 16:16

Are you the poster with previous threads where you said that most of the money that your dad is hoarding came from your mum's inheritances which made his refusal to spend any of it making your mum's life better/easier seem even more selfish?

Sadly, yes that's me.

As you can see, it's not getting any better.

OP posts:
GreatTheCat · 21/05/2025 18:40

Yep, so I changed it.

I only go round once or twice a week now, for about an hour. Rest if the time i leave it to the carers (who are both good friends of mine). I can't do it anymore.

thepariscrimefiles · 21/05/2025 18:41

Bluespecs · 21/05/2025 18:29

Sadly, yes that's me.

As you can see, it's not getting any better.

What does/would he say if you pointed this out? Surely, your mum's parents would be absolutely furious if they realised that the money they left to your mum, presumably to make her life better, isn't being used to help her when she is in greatest need because their selfish son-in-law has basically stolen the money for himself, to hoard it like an old miser in a fairy tale?

This is financial abuse perpetrated by your dad. Although legally it is joint money because they are married, morally and ethically, that money should be used to to give your mum the most comfortable end-of-life that money can buy, and to alleviate her suffering as much as possible.

Projectme · 21/05/2025 18:54

My heart goes out to you all. Such strong warriors we are. We all just have to keep on, keeping on don't we. Solidarity to you all. ❤️ and lots of unmumsnetty hugs!

MotherOfCatBoy · 21/05/2025 19:23

Neither of my parents really cared for theirs. Both my grandfathers dropped dead of heart attacks in their 70s. My DM’s mother died at 72, cared for by her live in single daughter (my lovely DAunt). My DF’s mother died at 89, on her feet and baking every week until she suddenly felt a bit unwell, went into hospital and slipped away within a week. My DF went to see her faithfully every week but didn’t do any physical « caring » as such.

They are now 96 and 89, still mobile and at home but living in a 4 bed ex council house that is completely beyond them and expecting me and DH to move things, fix things and arrange things. I don’t mind the admin and finance stuff, but I won’t clean for them and they refuse to get a cleaner or gardener. They are practically living in squalor but refuse to get anyone in to do anything about it although they can afford it. I live an hour away and we have DS doing his A levels. DM is a hoarder and won’t clear out and so cleaning is almost impossible.

Part of the problem is modern health care. DF had several incidents with arrhythmia and fainting, he now has a pacemaker. Last serious incident was in 2019 (which led to the pacemaker, when he was 90). DM has heart valve problems and had an op when she was 74. So in a sense they might have died a decade ago, but have been kept going. I suppose they have some quality of life in that they eat and watch telly, but it’s only going to get worse and I just dread it. This would not have happened in their parents’ generation.

On top of that, they keep acting like they have total independence, but then they have falls, or the house needs maintenance, there’s always something, and more and more it comes to us. We tried everything to persuade them to move round the corner from us when DS was young, but they wouldn’t. Now he’s about to leave home, they’ve missed his childhood and don’t even seem interested, they only care whether they can get Escape to the Country on the telly.

Bluespecs · 21/05/2025 19:50

Very much like my parents. Huge 4 bed bungalow with an equally huge garden which dad keeps nice but is struggling with now. DH's cousin is a gardener but he refuses to have him in to help. The house is grotty, my sister does the basic cleaning one a week or fortnight, she works full time so can only do so much, dad refuses to have a cleaner and I detest cleaning my own house so will absolutely never clean theirs.

Mum has a heart issue as well as the Alzheimer's and breast cancer. The BC is being kept at bay by meds, check up today and the tumor is shrinking and hasn't spread. Both her parents died from heart attacks and most on that side of the family have died quickly from heart issues or strokes. The pace maker keeps mum going along with all her meds but at what cost? She seems happy within herself but needs constant support like a child. I sat with her today as the breast specialist was explaining everything to her, she had zero idea what he was talking about and couldn't even respond because everything which comes out of her mouth makes no sense anymore.
It's heartbreaking to watch and I admit that I came home tonight, flopped myself on my bed and had a good old bawl.

Old age is great if you are super fit and healthy like my 93 year old neighbour but pretty hellish for those not so fortunate (and their close family members).

OP posts:
MotherOfCatBoy · 21/05/2025 20:15

I’m so sorry OP. I’ve always had a difficult relationship with my DM but rather than that making me jealous of yours, I feel for you even more that you are now losing her before she’s even gone. It’s not fair, and in a way prolonging it makes it even worse. You have my utmost sympathy.

Is there nothing to be done legally re funding better care for her? For instance in a divorce 50% of their assets would be hers; likewise when assessing for care, authorities can only take half the value of the house when there is a spouse still living in it. Your DF really is withholding HER OWN money. Does POA ever address this? Do they have a joint account or does she have her own savings you could use?

Mary46 · 21/05/2025 22:54

Yes draining we all work. We do what we can. There always a drama. 84. Some weeks I havent energy for her. We begrudged our hols too I said yep i work hard for it! Exhausting long term.

Zov · 22/05/2025 14:53

This thread makes for such upsetting reading. I am actually appalled at the amount of women - always women! - who are taking on the care of elderly and sick relatives. It's never men putting stress on themselves and running themselves ragged it it? I think you are all amazing women, and very brave to come on here and admit it's like death by a thousand cuts looking after very elderly, infirm, and ill parents, and it will be a relief when they're gone (or it WAS a relief if they have already gone.) Especially when they don't seem to appreciate the help, and just throw critisism and complaints at you!

This admission is probably very reassuring to many people (women) that they are not the only ones feeling like this. I am worried that all the women doing this (as well as looking after their own children, and sometimes whilst holding down a job) is going to make them ill! Sad

My parents were a bit older when they had me and my brother (early 40s,) and they died in their mid-late 70s when we were in our mid 30s. Dad died after suffering from cancer, but died quite fairly quickly - within 8-9 months of being diagnosed, and mum died 6 months after him, just found dead in her armchair, and diagnosed as 'heart failure.' She went downhill quickly when he died, and became weak and needy and couldn't do anything for herself.

I did look after them both for just under a year and a half - because mum struggled with dad. I had to do it. My brother - who is 3 years younger than me - was nowhere to be seen. He had moved 100 miles away 10 years earlier, and only turned up for the funerals. But yeah, I looked after them, and it was hard going (I had 2 small children, and a job too, and a home to run,) but it was for less than a year and a half.

I can't imagine going through this for some years... maybe 10+ ... Not knowing when it's going to come to an end must be horrible. The relentless grindstone of care for sick and elderly people - who are often rude and obnoxious and ungrateful - is relentless. My parents weren't too bad, (and were quite grateful for my help,) but my mum was very critical of pretty much everything I did!

What's the answer though? Sadly I don't know, and I don't think anyone else does, because there is no answer. I have seen many women burnt out by looking after elderly, infirm, ill relatives (usually their parents,) and as I say, it's always women. Men (sons) never step up. Well, I've never seen it happen! Even in my own extended family, it was always my aunties, female cousins, nieces etc, looking after the elderly and infirm (and even my own mother looked after her mother when I was a child. Her brother didn't do it. She looked after her for 5 or 6 years until she died in her late 70s.)

Some people say 'we need to take care of our elderly/have them living with us etc, as they do in other cultures/other countries.' (And like some of us used to do here pre 1980s I would say...) But it's a different world now, and the cost of living is higher in the UK than some other countries, and house prices are very high.

And as has been said, both people in any given couple need to work now. Also, people move away to other towns, counties, and even countries, (sometimes for work, sometimes just for a different life,) so the family network breaks down. And so lots of pressure is put on the women in the family - usually just one woman, often the eldest - to look after the parents/run around after them, as well as working, and looking after her own children (and sometimes grandchildren!)

Who'd be a woman eh?!

FormerlyPathologicallyHappy · 23/05/2025 12:23

Modern healthcare is to blame your not allowed to die these days but the life you lead isnt great.

I see a lot of patients who aren’t enjoying life and they’ve had quite serious strokes or heart conditions which would’ve killed them when I started work. When I started people had diabetes and hypertension and thought themselves hard done by but now it’s diabetes, atrial fib, heart attack, heart failure , previous cancer and raised cholesterol all in one patient plus the physical disability old age brings. I’m starting to get people who’ve survived liver cancer and that used to be fatal.

Im going to have an advanced living decision registered with my gp because I’ve seen what can happen to us if you don’t have a plan.

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