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Elderly parents

Am I wrong/going crazy?

60 replies

avecmum · 29/10/2024 23:26

I am a 57 year old woman and support my elderly parents, my dad is 91 in January and my mum is 87 they live in their own home still and with lots of help from me look after themselves. I live approximately 20 minutes away. I know it is amazing they still live on their own but it’s what goes on beneath that layer. My dad is ex-military and is very Victorian in his ways. He has never had patience and I have never had a very good relationship with him, I could never ask for advice growing up he would just shout his opinion at me. He has no means to reason with anyone, he has fallen out with many people over the years including his brothers and sister, we’ve been sat in the car when I was little down small country lanes when he has refused to pull over even getting out of the car to confront the approaching vehicle. I just remember cowering in the back seat.
It’s very much a 50’s environment my mum has done everything for him over the years so now the only thing he can cook is toast and boiled eggs. She says it is her fault. They are both so stubborn, my mum chunters about him all the time and blames him for everything, he is as deaf as deaf but will not admit it. I very much feel even at 57 I have to conform, I have known for the last 30 years it was expected of me to look after them in their older years.They have been very private with their finances it is only up until the last couple of years I have taken over all their bills and banking for them. But everything I do is nothing, that is what is expected of me. I am there to be called up on 24/7. I have been dreading winter some weeks last winter I would go everyday taking stews and food when my mum was ill. I take care of them better than I do of myself definitely in winter!
My only sibling, brother was killed in a motorcycle accident 37 years ago when i was 20 which was devasting to us as a family but my parents stuck together my mum was the only one who ever talked about it my father never did. From that day, for 37 years, all I have ever done is pacify and make sure they are ok. I have briefly mentioned this in later years and my mum looked at me as if I was stupid.I had my family within 5 years of the accident and I have always hoped that helped them in a way but my mum just shook her head when I suggested that recently. They live approximately 20 minutes drive away from us, my kids have all left home now, 2 have moved away and 1 lives close by. My father is very Victorian in his ways, you have a boss and they are the king, “get in with a good company and they will look after you” I feel and have known for a long time he could fall out with me and tell me to get out of their house which I know sounds crazy, I’ve said this to other people and they know this too.
Over the last 8 years my mum’s memory has been declining but she will not admit to this either everything is riddles and she just says it’s fine forget it for now. You wouldn’t know anything if you talked to her in the street or had a quick conversation with her. Things have been going missing for years but she will not let me put a camera up and my dad refuses point blank to have a security camera inside the house. He says “as long as I’m in this house no one will come in”.It’s crazy because he falls a sleep with his false teeth hanging out and would not hear anyone coming in. Money has gone missing too, she has hidden it over the years and she forgets where she has put it and blames him for taking it. She just says it’s fine she’ll just get some more out of the bank.

In winter I find myself going every other day or 2 or 3 times a week.I do all of their finances, take her for all of their shopping every week which is usually a full day thing.I arrange and take them to all of their doctor and hospital visits. I basically create a setup where they can live in their own home whilst they are fortunate they are still mobile although they cant drive. My dad will get up in a morning make himself some tea and toast, watch tv and go on his exercise bike and sleep. At 91 I know this is really good but my mum constantly moans about him behind his back saying he does nothing, she will not say it to his face.My husband cuts their grass and we go every Sunday to check things are ok and sit there listening to what my dad has done with his life and all about his past. He will give me my £10 pocket money which seems mad at 57 but it’s a respect thing he has done it for the past 25 years with my 3 children as a form of bribery if they didn’t go to visit him during the week it was a sign of disrespect that they didn’t want the money he would give them. It has got slightly better as they have all grown up and left home now but that is where this comes from. Over the last couple of weeks I have had to go a lot more, at the end of September after taking my mum for blood tests I took her to Emergency Care where we were in all day for 2 blood transfusions because her iron was extremely low. This all went well and we were all relieved that she felt better. Then over the last couple of weeks she had to go for another hospital visit where they took bloods again and they said she needed the same so we spent all day last Saturday sat in the hospital again from 8am to 8 pm. Don’t get me wrong they were amazing and got her sorted.She would not let me leave her though saying I might break my leg and who was going to look after her. She repeated herself so much that day and talked about her past and kept asking the same questions over and over again. I went every other day over the last couple of weeks and I just felt numb, I’ve brought washing home to make things easier for them and got shopping as and when they needed it when she couldn’t get out.She had it in her head I could claim carers allowance for looking after her but I don’t believe I can. With her saying this I said last Sunday to my mum, how would you feel about paying me a small amount every month for what I do as I’m not earning and I would struggle to get a job when they need me? I do not have a job in winter and in some ways to me it would be a little thank you although I do appreciate I am their daughter and know they believe all of this is expected of me. My mum was unsure so I said we’ll ask Dad. We went to talk to him and my mum said if Sarah (me) comes and does some more for us she said would we pay her £50 a week? Bearing in mind they get over £1700 a month pension. My dad said well I give you £10 pocket money and your mum gives you petrol money ( she will occasionally give me £20 towards my petrol but not every week) and they umed and arghed so I just said well we can just leave it as it is and my dad said yes leave it as it is. I said I may have to find a little job and I left though if I can. My mum followed me out of the house and said don’t worry if you’re dad doesn’t agreeclass="underline">msocom1 [j1] , I’ll sort it out.I was so so so upset I am 57 years old I do so much for them I know they do not realise so how can they ever appreciate what I do. When I got home she face-timed me and said don’t worry, how much was it £24.50 a week we can sort it and not tell you dad?

Today I had to take my mum to see my eldest son, this had been arranged a while ago. The journey was an hour in the car there and I felt numb she never mentioned our conversation on Sunday and the same on the way home. I took her to get her boxes of Frosties as she loves these and she wanted to go and get her pension out of the post office so she could give my dad his money to give us our pocket money!!!

When we got sat back in the car I said “on Sunday you said to Dad I would come and help you more, what more do you think/want me to do”? She said “I know you do a lot for us”. Although she forgets a lot, she remembered the conversation on Sunday. She started crying and put her head down and I was really upset too that I had upset her but when I looked she wasn’t crying at all, like a child gets upset as if for show.She said “if it’s better for you, get a job” I feel utterly worthless, im not even worth £24.50 a week to them they must have discussed it. I said I feel worthless and she snapped at me “thank you very much, all I have done for you”We have never argued, and I have always picked her up when she’s down which is a lot of the time. She used to get carers allowance for looking after my Grandma and my Grandma paid her to help at other times in her life. She says my dad has said he is going to live until he is 100 and she says if you are that determined then you will. I hope he does and he is very happy but I just know at the rate we are going this will break me. I just do not understand their side of things, please enlighten me I am totally in the wrong here, maybe I am, I don’t know anymore.
class="underline">msoanchor1 [j1]

OP posts:
78Summer · 30/10/2024 15:25

I have been looking after my 86 year old father since he was unwell in January this year. I took an unpaid break from work in June due to his suffering from delirium after a pacemaker operation.

As of last week I found two Carers to start to help him during the day. He was of course extremely resistant, saying that he would rather go in a home, but I had found after so many months, he was taking me for granted and sometimes being quite rude. I was so exhausted by catering for him one day I walked into a lamppost and got a black eye. That was my wake up call.

The ladies I have found cannot so enough for me and I feel there is a weight off my shoulders. My plan is to increase the care hours and for me to return to work.

I would urge you to contact social services so they can give an assessment for care so you can start to hand off some of things you are doing for your parents. If they have ample savings they will be charged, if not the council will pay some or all of the cost. If you do not want to hand off the care then you must insist on being paid properly for your time. Care ranges from 18-35 pounds an hour in London.

Elderly parents get afraid and then angry, and they cannot seem to see the effect they have on their children who care for them. The reptilian part of their brain kicks in and it is about survival.

You can argue your case til you are blue in the face but they will not hear it or cannot hear it. In effect they become very child like. So I urge you to look outside the house and seek help. Put yourself first as no one else will.

EmotionalBlackmail · 30/10/2024 15:25

That's a ridiculously tiny amount compared to the benefits of having a job. It works out at about £83 per month or less than £20 per week. Does
that even cover your petrol and wear and tear on your car?

Sunnnybunny72 · 30/10/2024 15:32

Disgusting. I hope I never do this to my children.
I'd give social services one weeks notice in writing, step away and live your life.

AnnaMagnani · 30/10/2024 15:38

Are you sure your dad doesn't have dementia too? Or is he just very out of touch with modern prices/thinks you just need 'pin money'

I ask because everyone thought FIL was just 'set in his ways' when he actually had dementia and one of the things he did was offer what he thought was a 'very generous amount of money ' for doing a job and it would be peanuts in modern money.

It took a long time for everyone to realise - and he never did.

Youvebeenframed · 30/10/2024 17:10

avecmum · 30/10/2024 15:16

Sorry i meant they said they will give me £1000 this october now and if i dont waste it the same next year in october 2025.

OP, this could quite possibly be one of the boundaries you can put in place. You don’t want to be beholden to them for £19.23 a week and you are well within your rights to empower yourself and say so.
Telling them you are going to be less available because you need to work could be the jolt they need. £1000 a year for a 23/7 on call concierge service is a joke 🥺

Terrribletwos · 30/10/2024 17:12

avecmum · 30/10/2024 15:16

Sorry i meant they said they will give me £1000 this october now and if i dont waste it the same next year in october 2025.

Cheeky effers. If you don't waste it! Apart from the fact they have no idea of the financial cost nor the emotional cost it's so fucking demeaning to suggest this to you and think that's ok. Sorry, this is just so awful for you.

coxesorangepippin · 30/10/2024 17:14

They sound like they infantalise you

Don't waste a £1000, etc?!?

You're 50 fucking 7??

rickyrickygrimes · 30/10/2024 17:21

avecmum · 30/10/2024 15:16

Sorry i meant they said they will give me £1000 this october now and if i dont waste it the same next year in october 2025.

😂😂😂. op, this is your first lesson in breaking free. Think about all the things that you do for them, all the hours that you devote to them, then stand up and say, out loud and in a very determined tone, “are you shitting me?”. It’s not necessarily what a therapist would recommend but it might be a good start.

You are important too. You count.

SoporificLettuce · 30/10/2024 17:36

EmotionalBlackmail · 30/10/2024 15:06

Is that £1000 per month or £1000 as a one-off they're dangling in front of you? Either way, you'd be better off having a job even at minimum wage, getting some nice colleagues, pension and NI contributions and a great excuse not to have to be at their beck and call!

I found it helpful as looking at it as increasing their resilience. They're completely dependent on you. That isn't sustainable. You can't guarantee being fit and healthy for years to run around after them. You could catch Covid or flu or break a limb or have a stomach bug. What happens if you want a holiday or one of your adult children wants your help one weekend?

The current Covid guidance says to avoid contact with vulnerable people for 10 days if you test positive. That means you wouldn't be able to go near them for about a fortnight. If they have external care and support in place then they are more resilient and it wouldn't be a crisis situation if you're not available. So you'd actually be supporting them better?

I'd recommend catching Covid or "Covid" as soon as possible!

This is good advice

Mrsredlipstick · 30/10/2024 18:25

You are absolutely entitled to carers. Apply for it. £82? A week..
Next contact your parents GP and ask for a carers support visit. Most surgeries have a coordinator. They look at practical help and support for you.
I personally would arrange a cleaner to start then carers. Could they afford a care home? The burden will be even harder on you when they beccone one.
I agree with the pp who said elderly parents become child like.
I cared for both my parents in my home, it nearly killed me. I wasn't abused by them but the expectation to help was unfair. I had a baby! Later with my father I had to give up my director job. My siblings did feck all. I lost hundreds of thousands in wages, my home (I had to sell to rent a bungalow). My life was pretty shit. It effected my DC too. I was a prisoner of their care. I think the need to be a decent person and help your parents is a recipe for PTSD. Please get help and start saying I can't do this any more.
You could tell them you have gaps in your NI so have to return to work (whether it's true or not). Good luck.

user8754387 · 30/10/2024 18:30

Mrsredlipstick · 30/10/2024 18:25

You are absolutely entitled to carers. Apply for it. £82? A week..
Next contact your parents GP and ask for a carers support visit. Most surgeries have a coordinator. They look at practical help and support for you.
I personally would arrange a cleaner to start then carers. Could they afford a care home? The burden will be even harder on you when they beccone one.
I agree with the pp who said elderly parents become child like.
I cared for both my parents in my home, it nearly killed me. I wasn't abused by them but the expectation to help was unfair. I had a baby! Later with my father I had to give up my director job. My siblings did feck all. I lost hundreds of thousands in wages, my home (I had to sell to rent a bungalow). My life was pretty shit. It effected my DC too. I was a prisoner of their care. I think the need to be a decent person and help your parents is a recipe for PTSD. Please get help and start saying I can't do this any more.
You could tell them you have gaps in your NI so have to return to work (whether it's true or not). Good luck.

Whether she is entitled to carers allowance depends on more than just how often she goes to their house. Are they in receipt of qualifying benefits?

Havalona · 30/10/2024 18:31

I'd be telling them to get a cleaner/carer for 20 quid a week. Let them see how that works out.

I am so sorry to hear that you are beaten down by them. I was you at one point too. There were four of us children, but it boiled down to me even though siblings did their bit willingly, as they had kids, I did not. But I had a busy responsible job.

Anyway, long story short I nearly had a breakdown as mother with dementia nearly broke my spirit. As siblings we agreed to try and get her respite for a couple of weeks, this was after 17 years of caring since my father died. She went into respite, got on well bossing everyone including the other residents around (staff could deal with it well, as no emotional involvement with her) and she never went home.

It was a blessing and a relief, although she still could hurt all of us from her care home, it wasn't relentless, and we could leave the minute she upset any of us knowing she was safe at least.

There are so many going through this. OP consider carefully if this is how you want to live the rest of your life. They had theirs, your turn now.

AnnaMagnani · 30/10/2024 18:35

@Havalona my FIL also went into respite and never came home.

The care home said it was very common as families suddenly realised just how exhausted they were.

Lexy70 · 30/10/2024 18:40

You poor soul, I'm sorry but your dad sounds awful. What a humiliating and demeaning way he talks to you.

I'd be tempted to step right back for a bit so they can see how much you actually do.

He sounds quite intimidating, are you scared of him.

What a difficult situation to be in. Please value and prioritise yourself more xc

Mrsredlipstick · 30/10/2024 18:46

Additionally you can access eight weeks respite care. If they have savings or private pensions they will have to pay towards it.
I think for carers to be automatically granted the parents woukd need to be in receipt of attendance allowance. The care coordinator can help with that or age UK. I paid for everything for my parents for 16 years until I found out what they were entitled to.

Pumpkinsandchutney · 30/10/2024 19:05

Your DF is a financially abusing tyrant and your DM enables him (probably through fear). They treat you like a naughty child and at this rate you'll crash and burn before they will!

How would they cope if you went on holiday for 1 or 2 weeks (no internet)? Do it! They'll cope (or fail, and maybe have a better appreciation of all that you do for them!)

Pancakeflipper · 30/10/2024 19:21

I think you refuse the money.
Look into carers allowance if you are continuing to support them. But the £1000 comes with too many ties,rules, threats. Don't accept it.

Be ill for a few days. Nasty head cold! Possible covid!

Look into all the brilliant suggestions that people have said. Tell your husband you want support to give you strength.

Start thinking of you want and balance things out more fairly in your life - you deserve respect and fun x

mildlydispeptic · 30/10/2024 19:27

Agree that you shouldn't take the money, OP. It would totally undermine your ability to say no. And clearly saying no is something you need to start doing.

NoBinturongsHereMate · 30/10/2024 20:42

I disagree. Take the money! Just not the obligation- consider it as payment for the past, not an advance on future wages.

avecmum · 30/10/2024 21:37

Thank you again for all of you kind words of support, i am so so grateful for them , writing this all down and reading your responses has given me so much strength. There will come a time when outside help in what ever form that is will be needed and karma will catch up with my dad. He would not be able to treat carers in the way he treats me and have already said to my mum i would not be able to physically care for him. I feel so much stronger reading your responses and i feel for everyone on here that has been in a similar position to me. Thank you again.

OP posts:
AgreeableDragon · 30/10/2024 22:20

avecmum · 30/10/2024 15:16

Sorry i meant they said they will give me £1000 this october now and if i dont waste it the same next year in october 2025.

Honestly @avecmum it’s not worth it. That money will come with so many strings, and is less than £100/ month.
Get a job, build your self esteem and let them find a carer who’ll accept peanut instead of pounds!

avecmum · 31/10/2024 22:28

i am at a loss for words yet again and just wanted to update happenings today. When I was driving back home this afternoon my mum rang me. I asked if they needed any shopping and she said they would need some bread and I said I would drop it off tomorrow on our way to Tom’s. She asked again when we were going away and I said Simon was going away on Saturday coming back on Sunday afternoon. She talked a little more and that was that.She closed the lid of the iPad but it didn’t cut the call off so the rest of the way home I could hear their conversation. She said we were going to my son’s tomorrow which was fine and my husband was away over the weekend. That started my dad off raising his voice and ranting “I don’t want them wasting the £1000”.He’s (meaning my husband) had a lot of money through his hands, some people can but he can’t hold money. He went on how he himself can hold his money and he looks after it!! He said my husband had told him in the past that I was spending money I didn’t have (which when I told my husband he didn’t know what he was on about and it’s just something my husband wouldn’t say. My dad carried on ranting and shouting she (meaning me) shouldn’t need a job at her age. We went into business with my husband’s brother 25 years ago and he still owes us £20K from that and my dad went on to say my husband had given all that money he can’t hold money” My jaw was literally on my knees the rest of the way home I couldn’t believe what I was hearing. My mum was sticking up for my husband saying how hard he has worked (he is a farm manager and with harvest he has had approx. 4 days off since July) I just couldn’t believe all this venom was coming out of my dad’s mouth about us. My mum said what if they heard you and he said “I don’t care I only speak the truth I don’t care if they hear me”. He carried onto say my husband had told him one Christmas that we had gone out for a meal and it had been £100 per person and that he thought that was ridiculous.We hardly ever go out and it must have been a special occasion and a long time ago as I can’t remember. The phone cut off when I got home. I was shaking but I’m over the shock now and think well we’re obviously not the best daughter and son in law he could have had are we!My husband cuts his grass all the time in summer although he is working and harvesting he comes with me to my parents on a Sunday for a couple of hours and helps. I do everything for them and am on call 24/7!! My dad only leaves the house for doctors appointments which i take him too, he could not walk far! I think my husband is shocked now too that my dad has involved him.What a going on really, families!!!! I feel in a more powerful position now cause at least I know truly how he feels.There wasn’t an ounce of understanding, compassion in his shouting rant. All he kept saying “I just tell the truth I am an honest man” I won’t be taking the £1000 I have decided. He knows nothing about our finances, both my husband and I have worked hard all our lives and long long hours, it’s crazy cause I feel it’s quite sad, and comical too now. He demands respect but talks about me with such disrespect.

OP posts:
Mum5net · 31/10/2024 22:57

Good to write that down, OP, and not bottle it inside. This exchange is probably what you needed to hear. Your DF will only get worse. Go back through this thread and take the action you need to take.

avecmum · 31/10/2024 23:07

Thank you @Mum5net I think i just needed to write it all down, just doing that has helped together with everyone's advice earlier.

OP posts:
mathanxiety · 31/10/2024 23:20

EmotionalBlackmail · 30/10/2024 15:25

That's a ridiculously tiny amount compared to the benefits of having a job. It works out at about £83 per month or less than £20 per week. Does
that even cover your petrol and wear and tear on your car?

Yes to this.

Spend the money immediately on therapy, OP. Look on it as an investment in yourself.