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Elderly parents

Impossible Question but how long?

37 replies

ShouldIknowthisalready · 18/10/2022 16:58

I feel awful asking this but anyway....

89 year old Mum in a care home for 2 and half years. Has dementia and not been able to walk for the last 18 months & incontinent. Hard to understand but did chatter away, could not answer questions directed at her.

In the last week she is now not able to swallow and bed ridden can no longer make any words, sleeps a lot but does open her eyes and tries to talk. Not in pain and does not appear to be agitated etc.

It seems she is swallowing small amounts of soup but can not take her meds. The home has set up end of life medication but she is not having it yet as seems settled.

Previously she seemed to declined in stages and then level out at that stage for quite a long time.

Can this stage go on for a while. It is no life for Mum but I am grateful that at the moment she is not frightened or in pain.

OP posts:
IthinkIsawahairbrushbackthere · 09/11/2022 09:41

So sorry for your loss. I'm glad the end was peaceful.

Mumski45 · 09/11/2022 18:19

@ShouldIknowthisalready so sorry to hear hear about your Mum passing but good to hear it was peaceful. My Dad has had Lewy bodies dementia for a few years now. He has deteriorated significantly in the last few weeks to the extent that I think the best we can hope for now is a quick and peaceful end. However I feel so guilty thinking like this. A month ago his quality of life was worth fighting for but now he seems so confused when awake and sleeps most of the time. He is well cared for (my mum is a saint) but I feel I should be doing more.

ShouldIknowthisalready · 13/11/2022 14:06

XingMing · 06/11/2022 19:03

And we are relieved. DMIL was returned to her residential home on Wednesday afternoon and passed away later that day.

Flowers
OP posts:
ShouldIknowthisalready · 13/11/2022 14:08

Mumski45 · 09/11/2022 18:19

@ShouldIknowthisalready so sorry to hear hear about your Mum passing but good to hear it was peaceful. My Dad has had Lewy bodies dementia for a few years now. He has deteriorated significantly in the last few weeks to the extent that I think the best we can hope for now is a quick and peaceful end. However I feel so guilty thinking like this. A month ago his quality of life was worth fighting for but now he seems so confused when awake and sleeps most of the time. He is well cared for (my mum is a saint) but I feel I should be doing more.

Dont be hard on yourself we can only do what we can do. It is a very hard time and we all have to deal with it the best we can. Unmunsnetty hand hold.

OP posts:
ShouldIknowthisalready · 13/11/2022 14:09

Thank you all for your comments. The words of strangers has really helped.

OP posts:
Words · 13/11/2022 14:29

Condolences OP. So glad it was peaceful.

Embrace the relief. FlowersFlowers

XingMing · 13/11/2022 18:08

I only jumped in here at the tail end, but the kind words to the OP have soothed me too. So thank you all. The internet can be very kind too.

Mumski45 · 13/11/2022 21:05

@ShouldIknowthisalready thank you for the hand hold. Dad is still clinging on but is getting more sleepy and confused every day. It's awful to see him like this and I do hope he is not in pain. But how would we know? He can't communicate well at all now. He mouths some words but even when you can make out the words they don't make any sense.

Arucanafeather · 13/11/2022 21:09

imaditto · 18/10/2022 17:59

I've a parent whose has yet to get this bad, still mobile, sometimes incontinent but is so deaf that talking to them is impossible. No quality of life and I know they would not like to be in the situation they find themselves in. They need to be prompted to eat and drink.

I have an LPA along with other family members. If it was down to me I would not be prompting them and let nature take it's course. It sounds so harsh and cruel but I long for them to be out the miserable life they now have. We've done all we can to improve life quality but nothing has worked, they can't hear the tv and books and magazines can't be followed because their memory does not retain what's just been read.

OP, I hope your mum passes soon and painlessly.

I feel the same. I’m all for prolonging life but I’m not a fan of prolonging death.

Arucanafeather · 13/11/2022 21:12

ShouldIknowthisalready · 01/11/2022 16:18

Just to update that Mum passed away yesterday.

We were so fortunate that the last couple of weeks were totally peaceful and calm for her.

I hope for any of you still facing this that your loved ones may also have a peaceful and calm experience

Thinking of you, your Mum and your family.

Mumski45 · 14/11/2022 14:22

@Arucanafeather that is exactly what it feels like. Prolonging the suffering of both my Dad who is dying and my elderly Mum who is his carer.

Arucanafeather · 14/11/2022 17:51

Mumski45 · 14/11/2022 14:22

@Arucanafeather that is exactly what it feels like. Prolonging the suffering of both my Dad who is dying and my elderly Mum who is his carer.

I would feel the same too. Sending you some big hugs for this tough time.

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