Meet the Other Phone. A phone that grows with your child.

Meet the Other Phone.
A phone that grows with your child.

Buy now

Please or to access all these features

Elderly parents

Moving elderly mother with dementia into care home near us

49 replies

Katymaus · 02/11/2021 18:16

My mother is in her late 80s and has middle stage dementia. She was living alone in London until 6 months ago when she came to stay with us, 150 miles away "for a couple of weeks". When we collected her from her flat it was immediately obvious that she wasn't coping with living on her own and that she had been disguising how bad things had become in our daily phone calls.
Staying with us brought about immediate improvements - she ate well and put on weight, despite frailty her physical fitness improved and she seemed happy and engaged.
However, she cannot stay as a permanent member of our household because I cannot provide the level of care she needs to due work commitments and teenage dc, because it puts a huge strain on our household, marriage and my dd's mental health and because my mother does not want to live in our household - she dislikes the busy-ness, the noise, the tv programmes we (occasionally, not every evening) watch, the food I cook, the noise of musical instruments being practised etc etc. She wants to leave London, to live near us, but not with us.
I have therefore been trying to find advice and ultimately to organise somewhere for her to live nearer here and to arrange care. My problem is that we seem to fall between areas for advice. Her GP in London cannot see her (obviously) because she is not there and they know nothing of the local authority or care-giving agencies in our area; our GP hasn't got her records (also obviously) and cannot do much because she is not a registered patient here. Her local London borough Council will only do a care assessment if we return her to live alone in London, but there is a long waiting list and she shouldn't be living alone (she would be a danger to herself). Our local Council can do nothing because she is not resident here and disuaded me from applying for a care assessment because she owns her flat in London and would therefore be self-funding. Even the Carers' agencies have said they cannot help because we are long-distance - my local Carers' agency say they cannot help because it depends on where the cared-for person is resident, which is London. And my mother's local agency cannot help because she is not physically there.
The obvious thing to do is to take her back to London and leave her in her flat there so that the care system can operate in its usual way, but that is not the best thing for my mother's welfare.
Sorry, a huge first post. I literally don't know where to turn and what to do next. Has anyone else had a similar experience or can anyone else suggest a route through this? Thank you so much

OP posts:
PersonaNonGarter · 02/11/2021 18:22

Take her back to London. You go too.

thesandwich · 02/11/2021 18:24

Would age uk or the Alzheimer’s society have any suggestions?
Could she go back with live in care? Until something more permanent can be sorted?

Katymaus · 02/11/2021 18:24

@PersonaNonGarter

Take her back to London. You go too.
Except that I have responsibilities here - teenage dc, work, home etc
OP posts:
HazelandChacha · 02/11/2021 18:26

If you can’t take her back to her flat then are you, at some point, just going to pack her stuff and put into storage until her flat is sold and she has a place in a home near you? If so then why can’t you just tell your GP practice she now lives with you so register her with them and get the ball rolling?

Have you tried speaking to age concern? They are knowledgeable in so many areas and may be able to advise the best way to go about it.

dotoallasyouwouldbedoneby · 02/11/2021 18:27

You know she wouldn't be funded anyway because of the asset so just organise it yourself. You choose the care home, then put her flat on the market etc. You should probably register her with your GP though as a temporary patient at least.
Has she done powers of attorney yet? She may still have capacity for this.

Katymaus · 02/11/2021 18:29

@thesandwich

Would age uk or the Alzheimer’s society have any suggestions? Could she go back with live in care? Until something more permanent can be sorted?
Thank you for the suggestions - Age UK and Alzheimers both suggested contacting my local Carers' organisation, which I did, but as I mentioned they couldn't do much as my mother is not in their area. I haven't got back to Age UK/Alzheimers since, your post has made me think I should. Live in care is a good idea in principle but I haven't really considered it because I know that my mother would resist it strongly, but thank you, I'll look into it further.
OP posts:
Dobbyafreeelf · 02/11/2021 18:29

What's her current financial situation? Could she afford to privately fund a room in a care home until her home in London sells? Is she able and willing to consent to selling her London home or rent it out? Do you have power or attorney? If not and she's still able to consent do that ASAP.
Register her as living with you and get her registered with a GP.

dotoallasyouwouldbedoneby · 02/11/2021 18:33

You should probably also apply for Attendence Allowance which she can still claim if self-funding in a care home. It is not means-tested.

PermanentTemporary · 02/11/2021 18:33

I'd go straight to Age Concern in this scenario. Given the obvious benefits of this outcome it seems like there has to be a way. Unfortunately that will probably be that she ends up funding herself entirely.

However, most assessments are being done on zoom or phone these days. She's just visiting you. Couldn't she have a care assessment remotely from her local authority? If not, why not?

Im currently in the middle of sorting out a care home for my mother. Dont underestimate the power of having a plan and continuing to march towards it with loud and dogged persistence. I've learned to be 'that relative' and am sure I have made many short term enemies but who cares.

Dobbyafreeelf · 02/11/2021 18:33

How social is your mother? Often care homes are better than live in care as it provides far more opportunities for social interaction which is really important for those with dementia.

Katymaus · 02/11/2021 18:42

Thank you all so much, I'm really grateful for all the suggestions.
HazelandChacha, we hadn't just registered her here because I didn't want to shut off the return to London option (with care coming in) in case that turned out to be necessary to get the best care in the end.

Yes the storage unit, flat sale, care home route is one of the options (becoming the obvious one), but I didn't want to just take that route without getting advice from professionals - maybe I'm being too careful.
dotoallasyouwouldbedoneby thank you too, and yes, we do have POA for finances but not for well-being at this point.

OP posts:
Katymaus · 02/11/2021 18:51

I'm so grateful to you all for taking the time to reply - so helpful, thank you all so much!
Dobbyafreeelf yes, she could self-fund a room, but only for about
9-12 months, I think and for complicated legal reasons it will take 6-12 months to prepare her flat for sale, so we'd be on a bit of a knife edge, but I do have POA so should be possible. This is why I wanted to retain living in her own place with care as a option in the first instance, but I'm not at all sure I would be giving her enough care if I went for that now.

OP posts:
Katymaus · 02/11/2021 18:52

dotoallasyouwouldbedoneby that's very useful info about Attendance Allowance, I didn't realise she would still be able to claim it as a self-funder in a care home, thank you

OP posts:
Katymaus · 02/11/2021 18:56

PermanentTemporary, thank you so much for your empathy! I hope your situation is making progress. It hadn't dawned on me (or been offered?!) that a care assessment could be done online from a remote authority, I'll pursue that tomorrow.

OP posts:
Babymamamama · 02/11/2021 18:58

I’m not sure I understand your issue. If she is self funding you don’t need assessments, you just choose the care home you like and apply privately. No need to take her back to London. Put her in a care home near you and ask for a financial assessment for the longer term.

Katymaus · 02/11/2021 19:00

@Dobbyafreeelf

How social is your mother? Often care homes are better than live in care as it provides far more opportunities for social interaction which is really important for those with dementia.
My mother can be lovely and chatty and can also make dreadful stage whisper comments depending on the day! But yes, isolation is a really big part of the reason we have kept her here and her memory consultant a few years ago now said that social interaction was as good as any medication he could prescribe.
OP posts:
Katymaus · 02/11/2021 19:01

[quote dotoallasyouwouldbedoneby]www.citizensadvice.org.uk/family/looking-after-people/managing-affairs-for-someone-else

www.citizensadvice.org.uk/benefits/sick-or-disabled-people-and-carers/attendance-allowance/before-you-claim-attendance-allowance/check-if-entitled-to-attendance-allowance/[/quote]
Thank you! I'm embarrassed to admit that Citizens Advice hadn't even occured to me...

OP posts:
PermanentTemporary · 02/11/2021 19:04

I found it helpful to talk to a care agency about 1:1 care (probably 2 carers a day in my mum's case as she couldn't be left unattended for a 2 hour break). They said they couldn't even consider taking on a contract like that until January at the earliest due to lack of staff. Care agencies are returning contracts quite a lot at the moment because they are unable to get workers. It stopped me even considering that at the moment.

DreamingOfTheSouthOfFrance · 02/11/2021 19:06

My mum spent far too long in a grim care home (post hospital admission after a nasty fall) as I was awaiting an assessment for her. I then discovered that as she was going to be self funding I could just move her. It was so frustrating that no-one told me this! Just go and explore your local homes. I would recommend looking for one with specialist dementia units. In the grim care home everyone was lumped together whatever their care needs. The home I moved her to, near me, provides continuity of care as the dementia gets worse, and really focuses on the needs of their residents.

Katymaus · 02/11/2021 19:13

@Babymamamama

I’m not sure I understand your issue. If she is self funding you don’t need assessments, you just choose the care home you like and apply privately. No need to take her back to London. Put her in a care home near you and ask for a financial assessment for the longer term.
Yes, sorry, maybe I wasn't clear enough - I wanted to make sure that going into a home is actually the best option. Mum won't want to, although she wants to live near us and there is a lot of advice saying that staying in their own home for as long as possible is the best option for an elderly person. Also, some of the homes near here that I have contacted want to see a care assessment before they'll accept a new resident (I don't know if that's all new residents or because she's got dementia). Lastly, although she owns a flat, we have limited funds for the first year or more while we sell it, which as I mentioned above is more complicated than a normal sale.
OP posts:
Metallicalover · 02/11/2021 19:14

I'm with @Babymamamama as I have been through this myself with my grandparent.
When you speak to social services they only care about if she's self funding or not. If she is self funding (she has a property so she is!) she can choose where she wants to live. If a care home is the best option (which it sounds as though it is) then she can choose any care home in the country. Ring up homes, ask for prices and have a look around and arrange it with the manager.
When my Grandparent was in hospital after a nasty fall the hospital said that they weren't safe at home and the social worker said go and have a look at homes and let us know where you want them to go and my mother sorted it all out with the home. She has power of attorney for finance so the care fees go to her house and she pays. Initially using savings and rental from the grandparents property and then once that got too much then sold the property.
Once his savings get to a certain amount the social will pay.

Metallicalover · 02/11/2021 19:19

Just read your update about not sure if the home is the best option.
You said your mother has been isolated, carers popping in a few times per day (they stay 20-30 mins as they don't get paid between calls etc) unless you employ your own carers. Don't really give much interaction I see many elderly lonely people in my job at home waiting between carers, can't go to the toilet, having to wait for carers, can get a cup of tea when they want as waiting for carers etc where as in a home that can be accessed any time.
Unless she goes to day centres most days that could be an option.

Metallicalover · 02/11/2021 19:19

*cant

Katymaus · 02/11/2021 19:20

@PermanentTemporary

I found it helpful to talk to a care agency about 1:1 care (probably 2 carers a day in my mum's case as she couldn't be left unattended for a 2 hour break). They said they couldn't even consider taking on a contract like that until January at the earliest due to lack of staff. Care agencies are returning contracts quite a lot at the moment because they are unable to get workers. It stopped me even considering that at the moment.
Oh, Goodness, yes, of course. I have spoken to a couple of local care agencies but only very generally about the kind of care they can give. I will get back to them and ask what kind of waiting list they have at the moment. That might well be the deciding factor, thank you
OP posts: