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Elderly parents

How to draw lines in the sand re: help and support

77 replies

SmaugMum · 26/04/2021 11:36

I’ll try to keep this as brief as possible. I’m a totally lone parent to two children, one of whom has a physical disability and significant emotional issues. In the last nine months I’ve become the default carer to my elderly parents, both of whom are physically frail with severely restricted mobility, and with the added complication that my mum is in very obvious cognitive decline (appointment with a Memory Clinic doctor in a fortnight to determine more).

Anyway, like many of you here, I’m run ragged trying to maintain two homes, keep two households going, doing all the transporting to the multitude of doctor and hospital appointments, and I’m starting to feel resentful.

I have a sibling who lives solo 200 miles away (who is in denial about mum’s cognitive decline) and maintains the prodigal child status by phoning my parents twice a day. But that’s pretty much it. I’ve been asking (well, in several heated discussions that have turned the air blue) for said sibling to organise a supermarket delivery service for my parents. Weeks later, and I’m still doing the shopping. My parents are old school and have never had a new-fangled shopping delivery; they prefer me to pick up the orange-stickered reduced items they’ve been used to buying all their adult lives.

They are effectively living in one bedsit-style room with a kettle, toaster and microwave. My suggestion of installing a stair lift to enable them to access their downstairs kitchen and maintain some semblance of independence was met with ridicule, like I’d suggested blowing all their savings on a trip to Vegas.

It will probably not surprise anyone here to learn that between my sibling and I, only one of us has a vagina!

I’m so stretched, my children are fed up because all of our weekends are consumed by helping their grandparents. I’d like to know how other people in a similar situation have managed to draw effective lines in the sand in terms of what they are prepared to do and not do?

For example, my sibling doesn’t have a car (no need in Zone 1 London) so is visiting my parents by train next week; my request that taxis are booked to transport my mum and dad to their various hospital appointments has been met with radio silence. And every discussion I try to start about new ways of doing things ie shopping home delivery is shut down with the implication that I’m being deliberately awkward.

OP posts:
LinenBundle · 26/04/2021 11:40

I have no real advice but huge amounts of empathy. It's astounding what a hindrance these damn vaginas can be isn't it Wink.

I changed things around by also turning the air blue and refusing to do more. Finally golden boy has begun to do a little. Could you do the same?

cheerfulpanda · 26/04/2021 11:40

How long is your sibling staying for?

Is it possible to stop all your caring responsibilities whilst they are here to get them to understand the severity of the situation? If you stop picking up the slack (well more than just the slack!) your sibling might realise the extent of the support needed.

Honestly, it sounds like time for you to be deliberately awkward.

Miasicarisatia · 26/04/2021 11:44

I think I would feign a breakdown and refuse to do anything, I realise that is much easier said than done but you have no legal duty of care towards your parents you do have a duty of care towards your children and of course one's first duty is towards one's own well-being!
You have been maneuvered into a position where your priorities are upside down, this is very much against your interests.
I hope you can find a way to put yourself first and get things back in order.

Purplecatshopaholic · 26/04/2021 11:49

Well there will be a limit to what your sibling can do if he lives far away without a car and presumably works full time. However of course he could, for example, organise food deliveries - but you seem to be saying your parents don’t want that, as they want you to do it. Well, tough, you will need to get a bit tougher. So a conversation needs to be had when your sibling is visiting - get round the table and decide what needs to be done and by whom.

Miasicarisatia · 26/04/2021 12:02

Good luck with getting round the table.... the sibling who lives closest by default has the short straw, the one that lives a long way away....you won't be able to get them to do anything, it's too easy for them to wriggle out.
The person who assumes the burden (like Atlas🌍) carries it for life, of course this fundamental truth does not reveal itself until you have taken up said burden

MereDintofPandiculation · 26/04/2021 12:11

Try to pretend you don't have a sibling. You're clearly not going to get anything from him, so write him out of the equation and cease to have expectations.

He does have one useful function - if he's phoning every day, you can rely on him to raise the alarm if something bad does happen.

Remind your parents they've been saving for their old age/a rainy day and that time has now come - that may mean spending more to make shopping easier.. The more they make their current house suit their needs, the longer that they can stay out of a care home. Stairlifts are cheaper than you think if you go for reconditioned - the average stair lift only gets about a year's use (ours managed 3 months) so reconditioned ones are in good condition.

You basically have to stand firm. It may be easier to delay. "We have no milk, can you just pop and get us some?" "Yes of course, but I can't do it till Wednesday". Once you've done this for a few weeks, they may be ready to see the attractions of on-line shopping.

Have you got adult social services involved yet? If not, do so, and go in on the basis that with a child with disabilities you are unable to offer any help at all.

You'll inevitably find yourself helping with admin and decision making, so don't do anything that can be outsourced, like being a taxi t a medical appointment (unless you want to be there to hear what the doctor actually says). If you haven't already, sort out lasting Power of Attorney, for both Health and Welfare and for Finances. Golden sib will no doubt have to be one of the attorneys, so get it that decisions can be made jointly and separately - that way, you won't have to get his agreement to use their money to order the weekly shop.

Mentally, start counting up all the time you send dealing with their affairs, not just the time you're actually in their company - that will help reassure you are doing a lot. Ignore relayed comments from neighbours and relatives about daughters who do a lot more - they don't know your full circumstances, and most of them won't have a clue what it's actually like caring for elders. Social Services I found were quite accepting of my limits, I didn't feel judged by them. Never justify your lines in the sand - useful to say to outside people "I have a child with disabilities so I can't do more", but otherwise "I can't do that" is as much as you need say.

doodleZ1 · 26/04/2021 14:44

I would be thinking what am I prepared to do and try to stick to that. Whatever you can do without resentment long term. We've decided that a once a week visit to my father-in-law's is enough. We've taken on specific tasks in his house and garden and share hospital appts etc but it's working out about once a week. However his daughters doing more than that. However I have tried to get her to buy groceries online but it's not happening. She could do that but doesn't seem to want to but it's her choice. I feel we should be organising things eg cleaners not necessarily doing it ourselves. If he doesn't want to spend the money why should we do it and give up our precious time? I suppose the thing is your brothers too far away, quite like my husbands brother and he doesn't do much, read hardly anything. Thing is you have kids and I think that's different. Your responsibility is to them. One of my aunts ran after my gran while the rest of the family left her to it. The kids are now adults and have said they felt they lost out as my aunt was always looking after her mum. You have kids and you can't always be there. They need to accept that and you need to keep telling them. There's no need to always answer the phone put it on voicemail. Also as someone else said if they want milk etc they fit in with your schedule. If they don't like that they are adults they can fix their own problem. They can get groceries delivered. Morrisons deliver same day through Amazon. Don't want to pay, well you can't, the kids are getting older and need me more. Your kids may start joining clubs again so that's another instant reply, you can't the grandchild has something on. My father-in-law started with the phone call saying can you just get me such and such when you are out? My husband eventually said we are not going out. Your parents need carers as you can't be there as much, as the kids are getting older and have social events. Basically they can't make you do anything and if they have needs they need to think how they can organise it so your kids have a life. Think what you are prepared to do and limit it to that. Personally weekends would be a time to spend with the kids while they are at school. Best of luck but you are entitled to your life with your kids and they should know that. I would also be taking a break from hospital appts while my brother was up. They can take a taxi as they will have to soon anyway when your kids start joining clubs again

doodleZ1 · 26/04/2021 14:54

OP who is it that's shutting your conversations down? If you said book a taxi and it's ignored the next move is theirs. Back to the, they can't make you do anything and if you are the only child living close they are hardly going to fall out with you. Be unhappy certainly but you are unhappy atm and so are your kids.

picklemewalnuts · 26/04/2021 14:57

Dear Fred, I've let Mum and Dad know I can't do the shopping anymore, as I've mentioned before. Please make sure they have food in- I don't mind what arrangements you make.

Hi Mum, Dad.
Fred is going to organise your shopping from now on. Make sure he knows what you like!

Just make it clear you aren't available when appointments crop up.
'Sorry, I'll be out. Tell Fred to book you a taxi.'

When you have become used to working around their needs for so long it's hard to remember that actually you don't have to.

You can also ask for a social services assessment. SS will put in all sorts of aids- rails, shower seats etc. But they have to come it to see. AND you must make clear to the assessor ahead of time that your parents will say they don't need it because little Sarah helps, but that you can't help and they must be supported.

cptartapp · 26/04/2021 15:02

Your anger is misplaced. There are things your parents could do/have done to make their lives easier but have chosen not to.
Whilst you prop them up, nothing will change. Your siblings life is panning out as a result of the choices he makes, as it's yours. Time for you to make different choices. Your DC must be your priority.

Your parents are responsible for their own well being. Very tough to do, but refer to social services, give them a date you will be stepping back and do so.

I'm afraid I would feel very differently about parents who were happy for me to live like this.

LinenBundle · 26/04/2021 16:35

@cptartapp

Your anger is misplaced. There are things your parents could do/have done to make their lives easier but have chosen not to. Whilst you prop them up, nothing will change. Your siblings life is panning out as a result of the choices he makes, as it's yours. Time for you to make different choices. Your DC must be your priority.

Your parents are responsible for their own well being. Very tough to do, but refer to social services, give them a date you will be stepping back and do so.

I'm afraid I would feel very differently about parents who were happy for me to live like this.

I'm not OP but really needed to read that tonight. Thank you.
thesandwich · 26/04/2021 18:20

Excellent post cptart and wisdom from dint
Other ideas- milkman delivery- milk and more are very good.
Do they have attendance allowance? Would help fund support. Non means tested. They could then pay for help like shopping etc.
Get help completing attendance allowance from carers uk or age uk.
Your children deserve your time- and you deserve a life of your own.

SmaugMum · 26/04/2021 21:03

Time-lapse of several hours, honestly, I’m not one of those super-annoying OPs who posts, never to return (been a bit busy having my second Pfizer vaccination, among the usual routine of keeping two households going).

Thanks so much to everyone who has taken the time to respond - with buckets full of humour and empathy, plus challenging attitudes - it’s all really helped. Ironically, the vaccination needle was about to pierce the skin on my upper left arm when my phone rang, it was my dad asking if ‘I happened to be passing a shop’ if I could pick up a fresh loaf, bearing in mind that I’d already picked up a few requested groceries this morning, after the school run.

Anyway, emboldened by the advice here, I texted Golden Balls Brother (no relation to David Beckham) to advise that I would be taking a full week off caring for my parents when he returns (to eat the fatted calf) on Sunday. I sent a text devoid of any emotion, advising that I would not be available to (and submitted a list of EVERYTHING I do in a usual week). The response? ‘Please keep messages civil’ ie don’t rock the boat as I know the tipping point will have been my refusal to drive my parents the 25-mile round trip for their various hospital appointments and my suggestion that instead they use taxis. There will, no doubt, be much mutual in-sucking of breath and a multitude of comments about my extravagance and profligacy, as, somehow, my car is the only vehicle in the world that does not ever cost any money to its passengers. Anyway, sod them, I’m having a week off and I’m actually going to do something for me.

OP posts:
SmaugMum · 26/04/2021 21:09

@thesandwich, oh god, the milkman row! It only took me six months to get them to agree to having the daily newspaper delivered. Why pay 60p per pint when muggins here can schlepp to the local supermarket to buy two huge cartons for the price of one. To paraphrase the old Mumsnet chestnut, I not only have an oblivious/in denial sibling problem, I have an ingrained systematic tightwad issue; after all, being incredibly frugal all their lives is how my parents have managed to afford their seven-bedroom house!

OP posts:
thesandwich · 26/04/2021 21:25

Well done on the text to goldenballs!!! Hold your nerve!!
Your time/ fuel/ wear and tear on car and you are a free good......
enjoy your week off.
Whenever you need to stiffen your resolve..... come on here!! We’ll cheer you on.

cptartapp · 27/04/2021 07:12

Your brother has got it right, he's not responsible for ensuring they have milk, they are. It's them who should receive the list. If your Parents have money they are massively taking the piss. I wouldn't be doing a 25 mile round trip for taxiing around either.

We 'scrimp and save' all our lives to ensure we are safe and can live well in old age. Save for a rainy day? Many benefits such as attendance allowance are amazingly not even means tested!!
Well now it's pouring down, and if your parents choose not to spend their money they should live with the consequences. As we all live with the consequences of our choices.
I would feel my parents had failed me badly if they behaved like this.

Neome · 27/04/2021 07:25

I’ve experienced this overload of caring more than once but never as badly as in the last year.

The stress of it all broke me emotionally, and physically to an extent, a few months ago. I literally cannot power through or do it all any more. I had to draw lines because I had got to the end of my strength.

I’m trying to put my child who, like yours, has complex additional needs, and myself at the top of the list as much as possible now. It’s a work in progress.

Good luck 🌺

picklemewalnuts · 27/04/2021 07:33

CPtartap, brother does need it- he needs to stop directing his parents to his sister, he needs to step up and support his sister by backing her up.

TeamCuthbert · 27/04/2021 07:39

He’s calling every day. If he also sorted out their shopping, then that would help. Ask him to liaise DIRECTLY with your parents in what they want him to buy.

If your parents kick up a fuss, then tough shit. You are run ragged.

Also, do they not want to put in a stair lift because of the money? If so, you need to insist. None of this is fair on you.

TeamCuthbert · 27/04/2021 07:41

Also, if they can afford to get taxis to their hospital appointments, then they should be doing that.

Carriemac · 27/04/2021 07:48

'Keep messages civil' ? Just reply ' yes , please do' and don't answer phone or text from either of them for the week.

MotherOfGodWeeFella · 27/04/2021 07:51

Do you think there's an element of your dad not wanting to leave your mum on her own to pop to the shops himself?

MereDintofPandiculation · 27/04/2021 08:09

My father doesn’t spend money on himself because a) he wants to give to charity b) he wants to leave it to his grandchildren. Not spending, and leaving the burden to fall on children, is a failure of decision making, but isn’t necessarily selfishness.

RandomMess · 27/04/2021 08:56

Honestly first day of your week off ring social services, GP etc and say that Golden Balls is there this week and after that they are on their own you can no longer doing ANYTHING for them.

It is the only way to get them to concede and pay for the help they need and for the professionals to take over.

Once you have done that, just phone twice a day like GoldenBalls, you could increase to on person social visits and perhaps help occasionally.

You need to prioritise your DC, you cannot do it all.

Lollypop701 · 27/04/2021 09:00

@MereDintofPandiculation
I disagree, it is selfish to say this is what I want to do with my money, and my children can run themselves ragged to ensure this happens. Just because what he wants is ‘nice’ does mean it’s not selfish.
Op bet you db won’t be telling you to play nice when it’s time for inheritance, that you have protected by doing all the work... he’ll want his half and won’t say no you deserve more as you did the work. This may be the stick to beat you with if you withdraw... you won’t get any and golden balls will (but they may have done it anyway).

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